Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Away From Gluten Filled Environment


jensey

Recommended Posts

jensey Apprentice

So I was diagnosed in July of 09. worked in a FULL on bakery environment until March 22,2010. I have excluded gluten from my diet since being diagnosed. Had severe attacks of gastro distress a few times after that but was still working in the bakery environment. Finally after a disturbing attack in January I had had enough, went to a GI got a colonoscopy which found I also had microscopic colitis. I have been on meds for that for a month. I don't notice much difference, but doc says may take SEVERAL weeks to notice. I really have just decided to settle into the fact that I will have chronic diarrhea for the rest of my life because nothing seems to matter.

Ok so I have been away from daily exposure for 2 weeks or so. I have been on meds for other issue for 1 month. I know there is no way for anyone to tell me "it will end in "X # of days, weeks etc." please has anyone experienced environmental exposure and if so how long did it take to be away from it to stop having significant symptoms? I am so fed up with it I want the steroids. Well don't really want them, but my other alternative is that I have accepted life with constant diarrhea.

What steps can I take to decipher other food allergies? I have a list of ?'s for my GI which include "tell me what to how often and what to eat so I can determine what is causing never ending diarrhea". Whatever ...it is what it is...many people suffer much more than I do, so I will endure regardless. At least the painful part has subsided. Aspiro is what I have been given as a treatment for my microscopic colitis, my father had to go to the steroids, we'll see. My assumption is that since every other aspect of this condition has been EXACTLY what my Fathers' condition is I will likely need to be treated the same.

Tonight my fight is GONE! I am done...doesn't mean I will eat gluten, but I don't know what else besides specific dietary guidelines, with time frames, to ask for. ANY SUGGESTIONS?

Oh if anyone knows the Louise L Hay affirmation for celiac I would love to know it!

Blessings of peace and health to all!

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KateGrace Newbie

Your story sounds like mine: I developed colitis after working in a bakery for close to a year. I never ate the food, but the cross-contamination was enough to make me sick.

I started feeling much better after a month of going gluten-free...BUT this was only after I cut out dairy, soy, corn, processed food, etc. I had no choice; as you must know, having colitis is no fun. What are you currently eating?

In order to heal (after quitting my job), I avoided anything that was hard for me to digest, which seemed to be everything! I ended up eating a lot of fruit, and juicing them to avoid the fiber (supplements often gave me an upset stomach and I desperately needed those vitamins). I practically lived off bananas, apples, and carrots. Soon I was eating mild salads (drenched in high-quality olive oil), broths, well-cooked rice, steamed veggies, and easy-to-digest meats like chicken or fish. I had no trouble with these foods, and I just took it slow and listened to my body's reactions.

And besides a couple accidental glutenings since then, I've been feeling fantastic. The only time my colitis flares up is when I burden my body with hard-to-digest foods (like beans) or dairy/soy/corn/and of course gluten.

I suggest sticking to as basic and "safe" a diet as possible. I promise, it is not as restrictive as it sounds.

Also, a lot of members of the board will tell you (better than I can) that feeling better takes a while. It's influenced by how severe your condition was and by the trace amounts of gluten that are still coming in from unknown sources. Eliminate the latter, and give your body plenty of time to undo the damage of the former. Some people start feeling better within a month, and some within a year.

Happy healing!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,345
    • Most Online (within 30 mins)
      7,748

    Nana3
    Newest Member
    Nana3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
×
×
  • Create New...