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What Vitamins/supplements Should I Get?

Joe0123

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Joe0123 Contributor
Joe0123
Posted

So what vitamins or supplements do I need to get while being gluten free? I know magnesium cuz of constipation, but what else should I get?

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kayo Explorer
kayo
Posted

Great question. Looking forward to what people have to suggest as I'm new to the vitamin portion of dealing with this lifestyle as well.

I'm currently on 50k units of vitamin D once a week (Rx from GI doc, my D level was super low)

In addition I take a multivitamin and a calcium/vitamin D daily

I take a digestive enzyme, grapefruit seed extract pill and probiotic with dinner

masterjen Explorer
masterjen
Posted

I would suggest you get blood tests done to determine if you are low in any vitamins or minerals (I'm not sure if they can test for all of the main ones or not, but they can test several). I know that some vitamins can cause harm if taken in excess, so you don't want to take what you don't need. If you suffer from weakness, like I have, ask that your potassium levels be checked in addition to the others.

detritus Apprentice
detritus
Posted

So what vitamins or supplements do I need to get while being gluten free? I know magnesium cuz of constipation, but what else should I get?

I was concerned about the anemia, so instead of coffee every day I drink hot almond milk with a tablespoon of organic blackstrap molasses. It has lots of good vitamins in it, and I actually get a little "happy" high about 20 minutes after drinking it :)

I also take calcium with magnesium, digestive enzymes with every meal, probiotics, fish oil, and a multi-vitamin. All of these gluten-free, of course. Be careful to check on-line if the vitamins, etc. are gluten free.

I'm also adding brewers yeast to my hot cereal.

Mtndog Collaborator
Mtndog
Posted

From TEXEdie:

The only accurate way to know what vitamins and supplements you need are to have your doctor run a complete blood assay for your body's current levels of vitamins and minerals. Most doctors do not do this (?) unless asked! A Nutritionist should be involved since recommended levels differ for celiacs compared with the standard lab ranges of low/normal/high. Remember that a malfunctioning small intestine is a nutritional disease, but too often is not treated beyond the gluten-free diet recommendation.

TEXEdie- you accidentally reported this. You want to hit "Add Reply," not "Report this post" unless it violates the rules of the board. Thanks!

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

I started taking everything I could get my hands on, thinking it couldn't hurt. I then started getting very bad paresthesia (numbness and tingling) and I thought it was due to the Celiac. I stopped taking most of my supplements for 2 days and the tingling went away. I had a vitamin screening by my doctor, but only on select vitamins......I decided to take the rest LOL. Now all I take is sub-lingual b12, sub-lingual b complex, fish oil, aloe vera juice and D.

bridgetm Enthusiast
bridgetm
Posted

I started a women's one-a-day multi-vitamin last week. It has a little of everything in it. I was planning to stick with this until I go back to my doctor (appointment in 4 weeks), but I really don't feel good when I take them (I always take the tablet before bed with a rice cake or two and lots of water; wake up almost nauseous and I can't even think about breakfast for an hour). I might try something that's not so dense.

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  • 5 years later...
Momma2PirateNPrincess Rookie
Momma2PirateNPrincess
Posted

I know this post is super old but I'm looking for a good whole food gluten-free multivitamin. Any suggestions???

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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