Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Early Menopause?


henny

Recommended Posts

henny Explorer

I'm 38 and didn't go gluten free until about 2 years ago after having pretty bad symptoms for at least 12 years.

I have been having many menopause symptoms for the past year! I plan to go get myself evaluated and hormone levels measured very soon (had to save up the cash), but isn't this way too young?

Anyone know if untreated gluten intolerance can bring about early menopause? Could going gluten free and getting my energy back have brought this on?

(I am from a diagnosed celiac family but did not pursue diagnosis myself so I just refer to myself as gluten intolerant.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I'm 38 and didn't go gluten free until about 2 years ago after having pretty bad symptoms for at least 12 years.

I have been having many menopause symptoms for the past year! I plan to go get myself evaluated and hormone levels measured very soon (had to save up the cash), but isn't this way too young?

Anyone know if untreated gluten intolerance can bring about early menopause? Could going gluten free and getting my energy back have brought this on?

(I am from a diagnosed celiac family but did not pursue diagnosis myself so I just refer to myself as gluten intolerant.)

Celiac Disease and early menopause are strongly linked. It may be from a variety of reasons but I think one of the stronger ones is malnutrition...this can wreak havoc on your hormone levels. I am the only officially diagnosed Celiac in my family but there are many with strong symptoms but they all choose to live in denial.

I was 38 also when I started having severe menopausal symptoms but my cycle didn't stop until I was 45. That was 6 years ago. I will warn you that if you go to a doctor and tell them you are having menopausal symptoms, they may not take you seriously at such a young age. They truly do not get it. They out and out refused to do any hormonal testing on me and I left the office, never to return. Besides, you can start up with symptoms before your hormone levels have really dropped and this is why so many women, who complain about severe symptoms and go to their doctors for help, are told there's nothing wrong and it's all in your head! One piece of advice I can give you is your progesterone levels will drop first, before your estrogen levels do, when true menopause (that is detectable on blood work) starts. You may have severe symptoms and missed periods for awhile but no doctor considers you menopausal until you haven't had a cycle for 1 year. Honestly, trying to get anyone to take you seriously is akin to trying to be tested for celiac disease.

If you are having normal periods but are symptomatic for other things like hot flashes, changing sleep cycles or difficulty sleeping, it's most likely the start of peri-menopause and it could last up to 10 years before your cycles stop. I do use bio-identical hormones now and have for the past 3 years and it has made a huge difference in how I feel. BTW....my mother was 36 years old when her cycles stopped completely and she went into full blown menopause. I truly believe she is an undiagnosed Celiac as she has many of the symptoms I did. At 77 years old, she absolutely refuses to go gluten-free and her health is not good.

FYI, I went into full blown menopause at 45, one year before I was diagnosed with celiac disease. It was the worst year of my life, health-wise. If you are going into menopause or starting peri-menopause, don't sweat it too much....no pun intended! It's completely normal and and it's nice not having a monthly cycle anymore. Good luck with testing and I hope you can at least get someone to do that but don't be surprised if they tell you there is nothing there

on your blood work. That's more often the norm unless your cycles have stopped for good.

ravenwoodglass Mentor

Celiac can cause an early menopause and it can also cause issues with fertility. When I was diagnosed celiac I asked my OB/GYN if celiac had caused it and he said yes but they don't know why. I saw him about 3 months into the diet when I had some spotting and since I hadn't had a period in a couple years I figured I should check it out. He told me not to be surprised if my periods came back but it was too late for me. If you are still having your period hopefully the perimenopause symptoms will abate soon. Some OB/GYNs may be more open to testing your hormone levels if you are celiac as it is a know cause of 'female' issues.

henny Explorer

Thank you both for the information!

You are right - my regular doc, who thought my stomach pain was 'nerves' for 12 years, refused to consider perimenopause or do any tests.

I will be seeing an OB/GYN soon that I was referred to by my psychiatrist, who is concerned that my recent out-of-the-blue bipolar symptoms may be hormonally-triggered. My mother went from unipolar to bipolar at this age and had perimenopause also at the same time (she is diagnosed celiac)

I am having many symptoms but am still having a tiny bit of period most months. The trouble is that I am on birth control pills so I *should* be having normal periods just due to those. For about the past year I have had some strong periods but mostly just a hint of one, which is absolutely not normal for me.

Anyway, I'm gonna get it all checked out but was glad to hear your experiences. Advice from fellow travelers is immensely comforting, as always.

Thanks

cyberprof Enthusiast

Celiac Disease and early menopause are strongly linked. It may be from a variety of reasons but I think one of the stronger ones is malnutrition...this can wreak havoc on your hormone levels. ...

snip...

FYI, I went into full blown menopause at 45, one year before I was diagnosed with celiac disease. It was the worst year of my life, health-wise. If you are going into menopause or starting peri-menopause, don't sweat it too much....no pun intended! It's completely normal and and it's nice not having a monthly cycle anymore. Good luck with testing and I hope you can at least get someone to do that but don't be surprised if they tell you there is nothing there on your blood work. That's more often the norm unless your cycles have stopped for good.

My experience is similar to Gemini's. I had no perimenopause symptoms at 47 but BAM I was fully past menopause in about 3 months. Very strange. I was so unhealthy and exactly a year later I was diagnosed with celiac. I think I had celiac since I was 18 but it got so much worse between 46 and 48.

I do agree with ravenwoodglass, though, that if you are not fully through menopause and are now gluten free, there is a chance your hormone levels could return to (near) normal. Just as some who are infertile can get regular ovulation after going gluten-free. And that might be better for you because some of the menopause side-effects are bothersome to me.

Good luck to you!

  • 3 months later...
alli06 Newbie

Hello,

I'm new to this forum but I was hoping that this would help me with my questions. I was diagnosed with fibromyalgia and now an autoimmune disorder which may be systemic lupus but docs say they don't have enough evidence of it. Anyways I knew something was wrong with my body when I got continuous aches and pains throughout the 3 or 4 years til now. I have an awful intolerance to gluten which makes my pain 100 times worse. I find that if I eat cookies, cupcakes, anything with wheat or gluten my body just can't handle it and I can hardly move at all. So I have cut gluten and wheat out of my diet but something weird has been happening even though I don't eat it anymore. Yesterday when I woke up in the morning I felt fine, then I went back to bed, and got up, but when I got up the second time I was extremely dizzy, so dizzy I had to make my way back to the bed really fast because I felt so faint, and my body was getting so hot it was so hot that I felt as if I had to open a window, it was cold in my house and cold where I live, and I felt it was so hot that I had to change my pants into shorts and my stomach felt really uneasy. Later on in the day after coming home from a walk I was experiencing this pounding migraine and my muscles and joints where aching so badly. My stomach was feeling queasy again along with the migraine making me feel like I had to vomit, which I indeed did have to vomit quite a bit even though I didn't eat very much at all yesterday. Even before yesterday about a month or two ago I've experienced night sweats, and when I was at a restaurant, I felt like my body was completely overheating and dizzy, and the person I was with wasn't hot at all, and apparently it was just me. I'm only 25, and I'm kind of getting scared. I'm going to go see a doc probably tomorrow but can you get early menopause at the age of 25. I haven't even had any kids yet so I'm freaking out because I don't want to be infertile, I'm not sure if this may be symptoms of fibro and I've talked to some fibro sufferers but I feel like my symptoms are getting kind of scary.

ravenwoodglass Mentor

Alli the symptoms you are describing happen to me when I get CC'd. You may have had a small amount of gluten slip in somewhere. Eating in restaurants is risky for us sometimes even if they have a gluten-free menu. Processed food is also risky at times. What is your diet typically like? Have you eliminated gluten from your personal care products like shampoos, makeup, lotion etc? If you have a significant other make sure they brush their teeth well before you have a deep kiss as a bit of gluten reside can get us. You may also find a sublingual B12 tablet helpful with stuff like fatigue, just make sure it is gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 years later...
katie-sbb Newbie

Hello,

I'm new to this forum but I was hoping that this would help me with my questions. I was diagnosed with fibromyalgia and now an autoimmune disorder which may be systemic lupus but docs say they don't have enough evidence of it. Anyways I knew something was wrong with my body when I got continuous aches and pains throughout the 3 or 4 years til now. I have an awful intolerance to gluten which makes my pain 100 times worse. I find that if I eat cookies, cupcakes, anything with wheat or gluten my body just can't handle it and I can hardly move at all. So I have cut gluten and wheat out of my diet but something weird has been happening even though I don't eat it anymore. Yesterday when I woke up in the morning I felt fine, then I went back to bed, and got up, but when I got up the second time I was extremely dizzy, so dizzy I had to make my way back to the bed really fast because I felt so faint, and my body was getting so hot it was so hot that I felt as if I had to open a window, it was cold in my house and cold where I live, and I felt it was so hot that I had to change my pants into shorts and my stomach felt really uneasy. Later on in the day after coming home from a walk I was experiencing this pounding migraine and my muscles and joints where aching so badly. My stomach was feeling queasy again along with the migraine making me feel like I had to vomit, which I indeed did have to vomit quite a bit even though I didn't eat very much at all yesterday. Even before yesterday about a month or two ago I've experienced night sweats, and when I was at a restaurant, I felt like my body was completely overheating and dizzy, and the person I was with wasn't hot at all, and apparently it was just me. I'm only 25, and I'm kind of getting scared. I'm going to go see a doc probably tomorrow but can you get early menopause at the age of 25. I haven't even had any kids yet so I'm freaking out because I don't want to be infertile, I'm not sure if this may be symptoms of fibro and I've talked to some fibro sufferers but I feel like my symptoms are getting kind of scary.

I've had nausea, vomiting, sweats, chill, and dizziness as migraine aura before. I usually have no warning at all. It's only happened a couple of times, but it was so intense, I called into work and presumed it was stomach flu until the headache started.

katie-sbb Newbie

My experience is similar to Gemini's. I had no perimenopause symptoms at 47 but BAM I was fully past menopause in about 3 months. Very strange. I was so unhealthy and exactly a year later I was diagnosed with celiac. I think I had celiac since I was 18 but it got so much worse between 46 and 48.

I do agree with ravenwoodglass, though, that if you are not fully through menopause and are now gluten free, there is a chance your hormone levels could return to (near) normal. Just as some who are infertile can get regular ovulation after going gluten-free. And that might be better for you because some of the menopause side-effects are bothersome to me.

Good luck to you!

I think going gluten-free may be (unfortunately) reversing my menopause just as I thought I was finishing that little project. Where do I get more medical information on this??

bartfull Rising Star

I'm one of those whose symptoms were so mild I never knew I had it. It was the psoriasis that tipped me off. It too was mild at first although it started twelve years ago. But my early meonopause symptoms started 20 years ago. Makes me wonder if I had celiac for a lot longer than I had thought. Makes me wonder what kind of damage I really had/have. I sure wish I could have been tested, and that I could afford to get vitamin levels and thyroid tests.

I feel a lot better than I did, now that I have been gluten-free for a year and a half. But I wonder sometimes if I'll ever feel REALLY good again. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.