Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi From Atlanta!

Allisoprano

Recommended Posts

Allisoprano Newbie
Allisoprano
Posted

Salutations! I'm a singer from Atlanta, GA and was JUST diagnosed with Celiac Disease on January 10th of this year. I was losing weight, getting violently ill (I like to describe the feeling as "someone running bleach through my intestines") sleeping 18 hours a day, and getting a terrible rash (which I thought was bedbugs or insanity!) - I even thought I was pregnant at one point because the intestinal spasms were so intense I thought it might be "Signs of Life" - Hilarious in retrospect!

My celiac presented after a longterm, incredibly harsh antibiotic was prescribed to me by a terrible doctor. I took strong doses DAILY for two years! Eventually, I developed a severe allergy to the antibiotic (involving scary ER visits). The stomach ulcers it caused went away after a few months of medication, but I'm stuck with the Celiac. We are now speculating that the original illness for which the antibiotic was prescribed was early presentation of Celiac Disease. Has anyone else had a similar experience?

So far, everything has been fine since I went off gluten. I dealt with the depression of being an "Italian losing Lasagna" by gaining back all the weight I lost ("Hey, I can supplement my wheat-grief with chocolate!"). Sometimes I feel like I'm in denial, and nothing's wrong with me, and I masochistically chow down on a scone or something else incredibly illegal. That... never ends well. NOTE: Singing in a renowned concert hall? Don't gluten yourself the day before. Idiot.

Anyway, there's my little schpeel. I don't like talking about it with my friends or family, because I'm afraid they're all rolling their eyes and thinking of me as incredibly "High Maintenance" or just simply faking it for attention. So glad I found this site!

- Allie in Atlanta

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Piccolo Apprentice
Piccolo
Posted

Allie,

Welcome, I am another one from the area. You have come to the right place for a lot of good information and support. If you need information about a support group there is the Atlanta Metro Celiacs. It has meetings at Scottish Rite Hospital.

Ask any time you have questions.

Susan

mommida Enthusiast
mommida
Posted

Hi Atlanta peeps! :D

How is the job market in the area? We are thinking of calling it quits here in Michigan and are putting out job applications. Some nice warm weather might be nice for a change. Considering the Tigers baseball game might play into the early evening temperature of 40 degrees (not counting any wind chill). :blink:

Lycopene Rookie
Lycopene
Posted

I'm moving to Georgia too. Marietta! [: Right outside of Atlanta. I've been looking into it and there's supposedly a pretty nice gluten free bakery there. I can't remember the link so I'll have to look it up later, but yeah. They have gluten-free pizzas that you can take home and bake, breads and more. Seems pretty interesting!

Andddd. I know how you feel. I'm Italian too and I LOVE ravioli and stuffed pastas that I can't have anymore. Supersad about that. )=

Needless to say though, there is a LOT of gluten-free food that is actually to die for, so I'm not worrying about it as much anymore.

Also, about the whole "high maintenance" bit, just explain to them that it's a lifelong autoimmune disease. If you eat gluten you can die. Toxic to you. That usually scares 'em off and stops them from thinking you're "high maintenance." Ridiculous thinking, in my opinion. Can't believe some people. So rude. )= But this site is enormously helpful. It's helped me out quite a few times, too. (=

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748
    Stacy W
    Newest Member
    Stacy W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.