Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Like A Horse!


The Glutenator

Recommended Posts

The Glutenator Contributor

It seems as though, no matter how much I eat, my body can barely keep up. Has anyone else noticed this with the celiac diagnosis? I am usually hungry, but even if I'm not I''m diligent about snacking between meals, plus my meals are just bigger than those around me. Add to that the fact that gluten-free processed foods tend to be more calorie dense than the regular stuff, and I am thinking "where are all these calories going?". I am fairly balanced during meals with fruits, veg, protein, and dairy but have dessert almost every night (cheese cake, brownies with ice cream...). My snacks are pretty big too! It has been about 3 months gluten free and at this stage I feel like I can barely maintain my weight! Can anyone else relate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



my.oh.my Newbie

Hi there,

Must be difficult to eat a lot knowing that they are full of carbs and can show.What I would suggest is having your Thyroids tested. I know my mom had the same issue and was clueless until she got her thyroids tested.That was the answer!!!

Good Luck!

The Glutenator Contributor

It can be socially awkward. I try to keep snacks around, but my friends are just getting used to me always munching on something. Since I am pretty tiny, when people see me consistently eating the quantities I do they begin to have questions! Gah.

chasbari Apprentice

I know what you are dealing with. For the first 9 months or so I couldn't get enough calories and could barely keep from dropping any more weight after dropping a frightening fast forty pounds... and I was eating all day long. Huge meals and constant snacking. In the last several months things have finally eased a bit. Coincidentally I upped my vitamin D3 intake substantially and the appetite seemed to settle a bit and I also actually gained a pound over the course of a few weeks. I figure with all the healing that has to happen it is no surprise that I have been this hungry. Now that I am not assaulting my body with poison it wants all the calories it can get to try to make things work better again.

ciavyn Contributor

Me too! I've been gluten-free for six months, and I'm ALWAYS hungry. I am training for a half-marathon, so logically I'm going to be hungry, but I'm famished constantly. And it's real hunger, not emotional munching craving. Very frustrating.

The Glutenator Contributor

Its great to hear that there is hope, then. I mean, I like having dessert every night, but it is less of a treat when it is part of your daily routine! Finger's crossed that my body will start to settle at some point too. I am spending some time in Europe in August, and would like to put on a bit of weight before then. I am tiny right now, and since most people lose weight backpacking (and thats when they enjoy pastries, gelato, beer, and all the other local foods that I am totally depressed to be missing out on!) I need some safety weight, or else I'm worried I'll have no energy.

allisons Newbie

I think it's possible there's a number of things happening here - first of all, gluten foods are higher in protein than a lot of their gluten-free substitutes and they're going to make you feel fuller longer. Sugary foods don't make you feel full, no matter how much calories you have because they digest so quickly. Rice NEVER makes me feel full, neither does corn. How often/how much meat do you eat? How much quinoa or other protein rich grains do you get? How about diary and eggs?

Second, you're probably not getting as much fiber as you used to, either. Another thing to make you feel full. Most American diets get a big ole chunk of their fiber from whole wheat - cut out the wheat and it's not easy to replace it with the rice flour based substitutes.

But also, 6 months is really just the very beginning of recovery of your villi - you may not be absorbing everything as well as a healthy person yet but with most of the inflammation going away, you might have an appetite back that was suppressed by discomfort before you began the gluten-free diet. If you still haven't gained any weight in another six months, I'd get worried.

I'll second the bit about getting your thyroid checked - many celiacs are falsely diagnosed with thyroid issues - maybe it could go the other way? I know that one autoimmune disorder increases your risks for a second one, and thyroid is a simple blood test so it shouldn't be hard to do.

Don't be ashamed of eating. But do talk to your doctor about anything you feel is "odd"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Leper Messiah Apprentice

I'm always starving. I've got weak adrenals too so it's like a constant worry where my next gluten-free meal is coming from. I need to plan my meals better.

Hunger was easing a bit on the gluten-free diet but after a glutening it goes back into overdrive.

Shannonlass Apprentice

If you are staying at the same weight I don't see a problem really. Lucky you. My weight just keeps going up and up and up no matter how carefully I eat or how much exercise I take :angry:

The Glutenator Contributor

I just saw my GI today, and he said that any time now, as my intestines heal, I'll start retaining more nutrients and my weight will go up. He was poking around my abdomen and said, due to muscle depletion, my abdominal walls are weak and my kidneys and other organs aren't very protected. Eek! So more brownies and cheesecake for now! Could be healthy and say protein bars, healthy fats, and proteins, but hey how often in life do you have a excuse for constant treats?!?

Note: No I am worried I will be on here in 2 months saying I can't control my massive weight gain, but one step at a time for now...

ciavyn Contributor

I just saw my GI today, and he said that any time now, as my intestines heal, I'll start retaining more nutrients and my weight will go up. He was poking around my abdomen and said, due to muscle depletion, my abdominal walls are weak and my kidneys and other organs aren't very protected. Eek! So more brownies and cheesecake for now! Could be healthy and say protein bars, healthy fats, and proteins, but hey how often in life do you have a excuse for constant treats?!?

Note: No I am worried I will be on here in 2 months saying I can't control my massive weight gain, but one step at a time for now...

If you are able to start some light exercise (or continue, if you already are) you should be fine. I eat like a horse, too, and I think it's because I'm so active...but I also don't gain weight at this point. Which I'll take...

The Glutenator Contributor

I am active with exercise, so that could be part of it. For now, just going to eat more calorie dense foods and more often. Once I get my weight up a bit, I can go back o eating what I have been (still a lot) and hopefully stay stable. Come on muscle...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.