Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain Please Help!


MrsBaker

Recommended Posts

MrsBaker Newbie

Hi,

I started having joint pain seven months ago and it was all over my body ( hands,feet, ankles,, wrists, shoulders, neck, back, and other places) and couldn't barely even walk for a couple of months. I went to the doctors where I was diagnosed with hyperthyroidism and hashimoto. After a while the pain did not get any better and I went to the joint specialist and he diagnosed me with celiac disease about three weeks ago. I have been eating completely gluten free but still have flare ups. I also have stopped eating nightshades because they would make it worse. But I noticed that have eating dairy, my joints would get worse throughout the day. Is this common to have problems with dairy? Also, is there any natural medications that I can take to relieve my pain and does anyone have some recipe ideas that are gluten, dairy, and nightshade free?

Thanks,

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi,

Welcome to the board. Read as much as you can here and ask any questions you need to.

It would be a good idea to avoid dairy for a bit. Let yourself heal for a while, especially since you are noticing problems. Some of us have an intolerance to casein, milk protein, but many are able to add dairy back in after we heal. Some find soy to be a problem also. Eliminating that helped me a great deal. It might help you to try and avoid it for a bit in addition to the gluten and dairy.

It will get better in time. I used hot showers or bathtub soaks as well as compresses on my hands. For me asprin worked as well as anything for the pain. I was on a few different arthritis meds prediagnosis but never got much relief but after a couple of months on the diet my joints felt better than in years and within six months I had pretty much full use, with no pain. I hope your pain resolves well also and soon.

You may want to check out the recipe section of the board, there is a lot there and you can ask how to make some of your favorite things gluten free.

skigirlchar Newbie

episom salt baths sometime help me for the joint pain

not too many pain meds work - i can't take aspirin or ibuprofen. i avoid acetaminophen except for dire emergencies - especially since it doesn't really work.

i tend to just nap when i can and try to sleep it off - though the falling asleep part tends to be a problem (i keep piles of partly read books next to the bed and try to get lost in them til i nod off.)

MrsBaker Newbie

Thank you so much!! Your post was big help to me and I will be taking out dairy and soy out of my diet because I rather feel better then eat those things lol Would it be smart to get a test to see if I have dairy allergies by any chance? Its weird because before this year, I ate everything and one day I just woke up and had problems with food. But this forum is great and glad to speak with people who are going through the same thing!!

Jessica

MrsBaker Newbie

I have noticed that pain meds do not work with me, which sucks but thats ok!! I will defiantly try the salt!! thank you

Jessica

one more mile Contributor

ask your doctor about niaspan er 10000 for the pain. I use it occasional when i have a fibro day. The over the counter stuff never really touches it.

weishy Newbie

ask your doctor about niaspan er 10000 for the pain. I use it occasional when i have a fibro day. The over the counter stuff never really touches it.

i'd probably make sure you're not a 'hypersensitive celiac.' (i'd ask a celiac specialist for the details and not a regular doc who may or may not know) but my 3 kids seem to be hypersensitive... that is, because gluten is a sticky protein, if they touch objects (i.e. toys) that were handled by individuals eating gluten, and then eat their snacks without washing their hands, they end up eating the trace amts of gluten which over time is enough to give them joint pain and leg pain to the point they can't walk, along with other stomach pain symptoms. good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

Hi,

I started having joint pain seven months ago and it was all over my body ( hands,feet, ankles,, wrists, shoulders, neck, back, and other places) and couldn't barely even walk for a couple of months. I went to the doctors where I was diagnosed with hyperthyroidism and hashimoto. After a while the pain did not get any better and I went to the joint specialist and he diagnosed me with celiac disease about three weeks ago. I have been eating completely gluten free but still have flare ups. I also have stopped eating nightshades because they would make it worse. But I noticed that have eating dairy, my joints would get worse throughout the day. Is this common to have problems with dairy? Also, is there any natural medications that I can take to relieve my pain and does anyone have some recipe ideas that are gluten, dairy, and nightshade free?

After 55 years of digestive issues, then figuring out I was celiac, then being relatively free of gluten on and off (but lots of slip-ups due to non-acceptance on my part), my symptoms became more varied, and not just limited to digestive reactions. After a 3 week binge of having some gluten here and there, one morning I woke up with hands/joints so sore I literally couldn't grasp a glass of water. That really woke me up more than the other things did. It took about 3 months of being strictly gluten-free for it to gradually go away. But it came on overnight, like I said. At the worst, I just put a lot of heat on my hands, occasionally took Advil, and slowly it went away. I also cannot eat nightshades at all, and I can't tolerate starches/potatoes. I was diagnosed as sensitive to casein, and went dairy free for a long time as I was going gluten free. After 6 or 8 months gluten-free, I tried dairy again and now find that I can handle LIMITED amounts of it. But I don't eat yogurt (which I love) any more, that bothered me. I really do and feel best on a diet of meats, fish, limited green veggies, very very limited fruit (I don't handle sugar well either). And I gave up on the gluten free baked goods, I didn't do well with all the various gluten-free flour items either, they really upset my entire system.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.