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Gluten Free Day 1


gehry88

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gehry88 Newbie

I've always been a really sick child. I've been anemic my entire life, I've had mono and pneumonia and have just always been constantly sick. I've also always had low energy and would take tons of naps. As a kid I always had stomach aches but my mom and doctors always told me it was because of anxiety, my period and a bunch of other things. On april 20th I got really sick with really bad stomach pains that caused me to vomit and have diarrhea the entire day. The next day it wasn't as severe but I still had the pain....all located around my belly button. I ended up go to an urgent care where they told me I had gotten food poisoning. I began the antibiotics and a few days went by and I was still in pain so I went back to the doctor and he told me I needed to go the ER because he thought my pancreas was failing. I went to the ER and everything came up normal they gave me more antibiotics, an antacid and vicodin....none of which helped. I was still having stomach pains and soft, light tan stools. Then a few days ago I baked cookies for my girlfriend and that night I became VERY sick. I had the worst stomach pains and non stop vomiting. I went back to the ER and they gave me some medication to treat what they thought was a peptic ulcer. Yesterday I finally went to see a specialist and told me that non of my symptoms met the description of a peptic ulcer, he told me he believed I might have celiac and that I needed to get my blood tested. He recommended I also begin a gluten free diet. After my appointment I talked to my dad and found out my younger brother has celiac. I've begun the gluten free diet and for the first time in 3 weeks I haven't been in TERRIBLE pain. I'm hoping this trend will continue and that I will finally find out what's been causing me all this pain.

Do any of you have a similar story? Are these symptoms pretty standard with celiac? I'm pretty new to this and completely clueless.

Thank you so much for reading.


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lucia Enthusiast

Yep, pretty much. An endoscopy showed that I had gastritis, which means that my stomach was oozing blood. No wonder I was in so much pain. I stopped eating gluten, and the pain went away.

People on the forum will tell you that to us gluten is like poison. I understand that more everyday. The good news is that you can avoid it. It takes some work, but it can be done. Once it's out of your system, you can be healthy like everybody else.

Kudos to your specialist for diagnosing gluten intolerance. Another doctor have put you through the wringer as he perscribed this and that and all kinds of other things you didn't need. You should hang onto the doctor you have, if possible!

Good luck!

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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