Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawl Symptoms

Desiree49

Recommended Posts

Desiree49 Newbie
Desiree49
Posted

I am on day 3 of no gluten and I feel like I have been hit by a truck. Is it going to get worse? What other type of withdrawal symptoms are there? I was addicted to carbs so this is a huge change.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Black Sheep Apprentice
Black Sheep
Posted

:lol: First off, I'm not laughing at you, Desiree, I'm laughing in the memory of myself just over a month ago, as I went through that same thing. And I came here, bewildered, going, "What is going on?" Ahh, good times. Not. :rolleyes: I was glad I came here because everyone who responded to my question assured that withdrawal symptoms are perfectly normal. With me, I was so weak and exhausted, sometimes it was hard to just walk around the house. I was always sitting down and falling asleep. It was kind of like that extremely fatigued and weak way that you can get with a bad case of the flu, only without the fever and massive body aches. It was horrible.

A lot of people here were also talking about how their iron, ferritin, and B-12 levels were way low and that's what caused them to feel the same way; so I had my doc check, but mine were high. Much more and they'd have been too high; and she too, confirmed that this and other symptoms of withdrawal were extremely common after coming off gluten. But that doesn't mean you shouldn't get your iron, ferritin, and B-12 levels checked, if they haven't been lately. If being extremely tired all the time is one of things you're experiencing, it may or may not be that your levels in one or more of these are low. About 8 years ago I did have a nasty case of pernicious anemia, which is caused by a B-12 deficiency.

One way or another, this too, shall pass! ;)

irish daveyboy Community Regular
irish daveyboy
Posted

I am on day 3 of no gluten and I feel like I have been hit by a truck. Is it going to get worse? What other type of withdrawal symptoms are there? I was addicted to carbs so this is a huge change.

Hi, I originally posted on withdrawls from Gluten and Casein and Cravings.

The links were not working because over time the Url's changed I have updated the links in the Quoted post as the first posting cannot be altered.

Follow this link and check out the links in the Quoted Post.

Best Regards,

David

vbecton Explorer
vbecton
Posted

When I first went off gluten over 1 month ago, I thought I wanted to sleep for a week. I could barely function! I had an intense craving for sweet things and bread for about 3 days, but after day 4 my cravings were completely gone. However, the sleepy aspect took about 7 days to really go away. I would increase your protein and fat (good fat) during this time because your body is learning to burn fuel from other sources, especially if you've erased all processed carbs. I never realized, until I withdrew, how dependent my body was on cheap, easy gluten rich carbs. Now, after one month, my blood sugar is stabilized, the foggy brain is clearing and I my energy levels are back to normal. Not to mention my stomach is very appreciative :) Good luck and stick with it! Your body will start responding in very positive ways.

Coolclimates Collaborator
Coolclimates
Posted

I've been on the diet for almost 3 weeks and the 1st week was the hardest. I've had bouts of depression (esp. crying spells) and have felt more tired than usual as well as more anxiety and irritability. I'm also craving all kinds of carbs and I feel hungry more often.

Black Sheep Apprentice
Black Sheep
Posted

If you haven't already done so, maybe you could try eating more meat to help you feel full longer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.