Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Dreaded Diarrhea/bowels Topic


BamBam

Recommended Posts

BamBam Community Regular

We read a lot about this topic, but I guess what I am wondering is how do you work and live a normal life when diarrhea/bowels are always on the mind. Having to know where the bathroom is all the time or do I travel or don't I travel... I had diarrhea for years - accidents and you name it. I am now gluten free and am feeling better, but just can't seem to get that anxiety/panic out of my brain. I've been gluten free for about nine months, will this just get better over time. I just need some reassurance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I know what you are talking about and had nighmares about it in my early gluten-free days :o But now I lead a busy life running around to various dog trials, shows and I even teach large quilting classes. Now I will admit having some anxious days and weeks convincing myself to do that one :lol:

What I do is ... before the event, make doubly sure that there is no chance of contamination and eat simply. Fresh only. Then pack immodium!! It doesn't matter that I don't need it .. it's a way to calm my crazy bathroom anxiety. I know it's there and that's what matters. I still of course need to know where the bathroom is at each school, hall, or show grounds that I teach or trial at, but it works for me, and I'm not hiding in my house anymore.

Hope this helps a bit ... time is what is going to help more :rolleyes:

judy05 Apprentice

That's what I was going to say. I never go anywhere without carrying my Immodium, Pepto for upset stomach, NuLev tabs for spasms, and various snacks and fluids in case I am "stranded" somewhere( hardly likely :rolleyes:) but this is my way of containing my anxiety.

cmom Contributor

I know EXACTLY what you are talking about. I have had the accidents which has caused the anxiety. My husband (as understanding as he is) gets aggravated with me because when we get ready to go anywhere, I often go back to the bathroom 4 or 5 times to "make sure" I can make it to my destination. If I am going to be away from home, I take the Imodium whether I have the "D" at the moment or not. It helps me function as a normal human being. I also check out the restroom location first thing wherever I go and don't go places if access is not readily available. However, the longer I go without an accident, the more confident I become. It's a vicious cycle and one that is not easy to overcome. Know that we're with you on this one! :)

luvs2eat Collaborator

Yea, Immodium is my friend too.

BamBam Community Regular

Viola

Can you give me some suggestions on safe food - I know gluten free, but what are some safe items that you eat before travel.

Guest Viola

I stick pretty much with a gluten free cereal for breakfast with a piece of fruit. A gluten-free soup and cheese for lunch and a plain meat with potato and vegie for supper the day before, then just gluten-free cereal the morning of the event and carry in a cooler, cut up cheese, fresh strawberries, and or banana, cellery sticks and carrot sticks. I use cheese a lot (swiss is low in lactose) although I don't have trouble with dairy anymore. But it's a super protein if you can handle it. The day before and the day of the event, I don't snack on anything that doesn't have gluten free written right on it! Unless it is fresh fruit or veggie. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748

    MandyK
    Newest Member
    MandyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.