Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free Lifestyle And Having Trouble: Help!


BethProverbs31

Recommended Posts

BethProverbs31 Newbie

I am new to a gluten-free lifestyle, not "officially" diagnosed yet, but MD and I suspect it might be the case because of symptoms and such. I have a 16 yr old daughter who has all kinds of bowel disturbances and since the intolerance is hereditary, think she might be as well...however she refuses to believe she is and won't let me get her tested. :(

Anyway, I have been avoiding gluten as much as is possible for about 2 1/2 weeks now. I am feeling better as far as mental clarity goes, but still feeling a little sluggish and haven't dropped any weight yet. I know it may be because I am not avoiding all gluten in products, but I am finding it very difficult to prepare gluten free meals with a husband who loves his pasta and sandwiches and a teen who balks at the idea of not being able to eat "regular" bread and pasta. I have not intentionally ingested the stuff, but am finding it confusing :unsure: reading labels on products that don't have gluten-free clearly marked on the label. I have been purchasing some gluten-free products, but with being on a strict budget, this has put a serious strain on our finances seeing that most of them are so expensive (seriously, 8 dollars for a bag of gluten-free pretzels and 5 bucks for a small box of lemon wafer cookies?! Sheesh!). And I really don't like many of the gluten-free breads/crackers/etc I have tried. Trial and error is getting rather expensive as well since the gluten-free products I don't like are getting wasted.

I am having the most difficulty figuring out what to take in my lunches for work. Sandwiches are out most times because I don't like the heavy gluten-free breads that are out there if they aren't freshly toasted. I tire of salads and fruit rather quickly when I take them so frequently. Strictly made gluten-free foods such as the pretzels I mentioned above and gluten-free frozen meals are rather expensive to be taking 4-5 days a week. I could cook and take leftovers, but a lot of days I don't have time to cook a decent meal (SIGH).

Does anyone have any ideas that will help me keep my sanity with these issues? :wacko::lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

I encourage you to look around these boards for ideas. Many of us are whole-hearted fans of Udi's bread which is even better than regular sandwich bread! And Tinkyada rice pasta and Schar pasta is excellent, and taste like regular pasta. I make them often.

Start buying naturally gluten free foods so you don't waste foods. If there is a gluten free item you really want to try, hop on here or google, and check out the reviews for that item. That should tell you quickly if it is a good option for you.

It is overwhelming in the beginning. Just give yourself some time to adjust, and for your family to adjust. It's a strain on everyone. But before long, you'll be surprised how easy this is...it is healthier, easier, and soon, you'll be throwing meals together like a pro!

Another help: get a cookbook of fast, easy recipes. I avoid the gluten free cookbooks, because it takes a lot of work to make gluten-y things gluten free. Instead, I got the biggest loser, an old fashioned Better Homes and Gardens cookbook, etc, and I started making regular dishes and subbing any ingredients that had gluten in them. it's super easy, and the meals are fast. Example: I cooked up potatoes and grilled chicken on Monday for dinner (had sandwiches for lunch Monday and tuesday). Tuesday night, I took leftover grilled chicken, cooked up some pasta, with sauce and provolone, and voila, dinner is served. Tomorrow, I'll make a crockpot meal of pork and saurkraut. That will last me two days with leftovers. I'll sub sandwiches in the in between days. if you don't like sandwiches, just take sandwich meat and cheese with you. I also eat rice chips, corn chips, regular chips. Salads here and there. Fruit. Rice crackers. Cereal (watch your labels!). Oatmeal. A frozen burrito (Glutenfreeda's). quesadilla (rice tortillas -- in freezer section). Gluten free pizza (I use frozen crusts as I don't have time to make my own). I whip up brazillian cheese bread, which is a tapioca flour based bun, or Robin Ryberg's biscuits. There are so many things you can make that will taste so yummy. Just take it easy, and ONLY add one extra trial food a week -- whether you buy it or make it. That way, you don't have a lot of pressure on you.

BethProverbs31 Newbie

Ty for the tips, Ciavyn! I tried some brands that are absolutely yummy....including the bread mixes from Chebe (I make turkey pepperoni rolls with the focaccia mix...yummy), and my absolute, out of this world good fave Italian rolls from French Meadow Bakery (SOOOOOO darn good!). Schar white bread is good IF YOU TOAST IT, but if you don't it doesn't taste very good or hold up well as a sandwich (learned that the hard way...lol), and it costs 6 dollars a small loaf at my local grocers. French Meadow Bakery has a site you can order gluten-free products from and they are reasonably priced (bread, rolls, pizza shells, tortillas, cookies, brownies, and muffins). They ship on Tuesdays (frozen so they are thawed by the time you get them, but per the bakery you can refreeze them) if you order by Friday of the previous week. Here is the link for their gluten-free products: Open Original Shared Link

sb2178 Enthusiast

I'm a huge fan of bean based soups and dips, with either some rice or potatoes (sweet) thrown in. Currently can't because of an elimination diet, but am looking forward to eating them again... Summer tends to be dip, winter is soup. Fritatas, crustless quiches, or egg "bakes" with cheese and vegetables are good too if you can eat the cheese.

These are actually all things I ate regularly pre-gluten-free. What I miss are good, easy to find cookies that aren't $0.50 each for a little one. Baking is definitely going to be explored soon. And you could easily sub in yogurt or cottage cheese for the crackers if you like either.

ex. White beans pureed with marinated artichokes, carrot rounds, rice crackers, apple

Sweet potato and black bean soup with apple

Pinto beans cooked with smoked turkey wing piece, pureed, celery sticks, crackers or rice, fruit

Chick peas mashed with roasted red peppers, maybe garlic, generous slosh of oil; feta; cucumber; fruit

Daal, rice, fruit

Yumm... now I want a second dinner.

BethProverbs31 Newbie

I'm a huge fan of bean based soups and dips, with either some rice or potatoes (sweet) thrown in. Currently can't because of an elimination diet, but am looking forward to eating them again... Summer tends to be dip, winter is soup. Fritatas, crustless quiches, or egg "bakes" with cheese and vegetables are good too if you can eat the cheese.

These are actually all things I ate regularly pre-gluten-free. What I miss are good, easy to find cookies that aren't $0.50 each for a little one. Baking is definitely going to be explored soon. And you could easily sub in yogurt or cottage cheese for the crackers if you like either.

ex. White beans pureed with marinated artichokes, carrot rounds, rice crackers, apple

Sweet potato and black bean soup with apple

Pinto beans cooked with smoked turkey wing piece, pureed, celery sticks, crackers or rice, fruit

Chick peas mashed with roasted red peppers, maybe garlic, generous slosh of oil; feta; cucumber; fruit

Daal, rice, fruit

Yumm... now I want a second dinner.

LOL...yeah, I haven't eaten much today except for some buttered brown rice and pear flavored applesauce, so all that you listed sounds good! The beans with smoked turkey sounds like a great idea...except maybe I would use lentils or white beans, so does the chickpea mixture (I love hummus), but doesn't feta have gluten in it? My daughter thinks I am nuts...the family does, too. I don't know why folks look at a gluten allergy as something weird or unlikely.

The Glutenator Contributor

As a suggestion, I would get tested for celiac (blood work and biopsy) before going gluten free. If your doctor is suspicious, ask for the tests now. If you feel better gluten-free, it will be really hard to go back on gluten to get your diagnosis, and many people often don't. It is really worth knowing if and your daughter are celiac vs gluten sensitive. As my doctor said, if you are celiac you absolutely cannot consume gluten because of the harm it does to your intestines. However, as awful as glutenation is to someone with a gluten allergy/intolerance, they don't have the GI damage. So, to fully understand what is going on in your body it is definitely worth getting fully tested, and before going gluten-free will so much easier!

sb2178 Enthusiast

My feta does not. But it's a block, not flavored crumbled stuff which could well have other nonsense in it.

Yeah, white beans or lentils, or black beans or even some combo would work well. The original recipe pretty much said make this, use whatever beans you want. I also throw in a bit of shallot or scallion, parsley, garlic, and a small chili pepper.

I've also been eating lots of rice and applesauce, but with the occasional dose of well cooked carrots and lamb. Fun fun...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethProverbs31 Newbie

My feta does not. But it's a block, not flavored crumbled stuff which could well have other nonsense in it.

Yeah, white beans or lentils, or black beans or even some combo would work well. The original recipe pretty much said make this, use whatever beans you want. I also throw in a bit of shallot or scallion, parsley, garlic, and a small chili pepper.

I've also been eating lots of rice and applesauce, but with the occasional dose of well cooked carrots and lamb. Fun fun...

Ok, now you made me want to go buy some lamb! I haven't eaten lamb in a while...hubby doesn't like it...but me, YUM! :) Have a grest weekend and TY for replying!

Northern Celiac Newbie

I am new to a gluten-free lifestyle, not "officially" diagnosed yet, but MD and I suspect it might be the case because of symptoms and such. I have a 16 yr old daughter who has all kinds of bowel disturbances and since the intolerance is hereditary, think she might be as well...however she refuses to believe she is and won't let me get her tested. :(

Anyway, I have been avoiding gluten as much as is possible for about 2 1/2 weeks now. I am feeling better as far as mental clarity goes, but still feeling a little sluggish and haven't dropped any weight yet. I know it may be because I am not avoiding all gluten in products, but I am finding it very difficult to prepare gluten free meals with a husband who loves his pasta and sandwiches and a teen who balks at the idea of not being able to eat "regular" bread and pasta. I have not intentionally ingested the stuff, but am finding it confusing :unsure: reading labels on products that don't have gluten-free clearly marked on the label. I have been purchasing some gluten-free products, but with being on a strict budget, this has put a serious strain on our finances seeing that most of them are so expensive (seriously, 8 dollars for a bag of gluten-free pretzels and 5 bucks for a small box of lemon wafer cookies?! Sheesh!). And I really don't like many of the gluten-free breads/crackers/etc I have tried. Trial and error is getting rather expensive as well since the gluten-free products I don't like are getting wasted.

I am having the most difficulty figuring out what to take in my lunches for work. Sandwiches are out most times because I don't like the heavy gluten-free breads that are out there if they aren't freshly toasted. I tire of salads and fruit rather quickly when I take them so frequently. Strictly made gluten-free foods such as the pretzels I mentioned above and gluten-free frozen meals are rather expensive to be taking 4-5 days a week. I could cook and take leftovers, but a lot of days I don't have time to cook a decent meal (SIGH).

Does anyone have any ideas that will help me keep my sanity with these issues? :wacko::lol:

A couple of ideas for you

1st don't tell them what you're cooking.

2nd ask your daughter if she wants to continue being sick?

3rd I learned to bake my own snack foods www.glutenfreeonashoestring.com

I suffered from insomnia during my bad time last year and started watching rachel ray"30 minute meals"

if you can find your way around a kitchen you can make these meals

Bets wishes

Mike

Northern Celiac Newbie

LOL...yeah, I haven't eaten much today except for some buttered brown rice and pear flavored applesauce, so all that you listed sounds good! The beans with smoked turkey sounds like a great idea...except maybe I would use lentils or white beans, so does the chickpea mixture (I love hummus), but doesn't feta have gluten in it? My daughter thinks I am nuts...the family does, too. I don't know why folks look at a gluten allergy as something weird or unlikely.

No fate doesn't have gluten in it. But remember to aways check. My hummus has the following

Chickpeas

Red pepers

Lots of garlic

Tahini butter(made from sesame seeds)

Lemon juice

pinch of sea salt

cilantro

and cumin

The Biggest thing I found is to keep it fresh and simple

And when in doubt leave it out

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.