Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared


Scaredandworried87

Recommended Posts

ravenwoodglass Mentor

so i am also reading about how people are allergic to other things like soy and vegatables and other thing right now im so worried about what i can and can't eat i could handle going breadless but to me it feels like if i go gluten free it will end up revealing other allergies im a security guard i can't afford buying all the other things and i live in a hick town i might as well just drink myself to death

Sorry about calling you a 'she'. It is hard to know whether we are she's or he's often times from out board names. There are a couple of folks here that I assumed were men and then found out after a couple years they were women so I make the mistake the other way too. :D

Right now just be concerned about the gluten. If after you have been gluten-free for a couple months you are still having issues then explore the possiblity of other intolerances.

There are some convience foods that are gluten free like Hormel Beef stew and their scalloped potatoes and ham that you can find in a regular grocery store. I know this seems like it is going to be a horrendous change but it becomes easier in time. I don't know where you are but if there is a Wegmans within driving distance they label all their gluten free food with a circle G. Hopefully you have one close by to shop at but even if you don't it won't be too long before you learn what 'regular' grocery items are safe. There are some good gluten free breads, Kinnickinnick and Grainless Baker are both good, Ener-g makes crackers and pretzels etc that you can find on line if not at a store near you. You don't have to cut them out of your life completely just eat the high calorie stuff in moderation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



farmwife67 Explorer

I found I was gaining weight because I was buying all of the gluten free processed crap! I decided to go completely grain free, especially after watching the videos on www.(Company Name Removed - They Spammed This Forum and are Banned). Dr. Osborne says all grains contain gluten, even rice and corn. So I made the switch and have been losing a pound or two a week ever since. I eat all of the fruits, veggies, meats and nuts and seeds I want. There are flours you can use to make things, like almond flour, tapiocca flour. You have to make most of your foods because you can't even have corn syrup or corn starch but I feel much better than when I was just eating traditional gluten free.

If you are getting tested I would keep eating gluten or you will test negative. Then, I would get back on the gluten-free wagon and live healthy! :rolleyes:

Good Luck,

Lori

MartialArtist Apprentice

I know this is so hard to take, but it's best if you start to look at bread and pasta as a treat you have every once in a while instead of a staple of your diet. There are gluten free breads and pastas out there that are good, but they will not be what you are used to. They are also expensive, much more expensive than regular gluten food. Finally gluten-free baked goods are usually higher in carbs than non-gluten free. If you want to lose weight you don't want to eat gluten-free bread for every meal.

At first, I totally ignored any nutritional info about the gluten-free bread, pasta, dessert, and pancake (especially those) replacement products and went totally on TASTE (i.e. which one tasted the most like my favorite gluten version). But I have discovered that what you say here is very right -- that they are higher in carbs (including sugar) and by extension calories than their gluten counterparts. So I'm going to have to discipline myself b/c I really WANT them.

That said, I disagree about the gluten-free pastas not being what one might be used to. I have found the Tinkyada brown rice pastas to be almost perfect replacements for my old pastas in all cases. They don't have all the shapes I used, but as far as taste and texture, by the time they're in a dish with a sauce, I don't notice the difference at all. That's true whether it's a tomato sauce or a cheese sauce.

psawyer Proficient

I have found the Tinkyada brown rice pastas to be almost perfect replacements for my old pastas in all cases. They don't have all the shapes I used, but as far as taste and texture, by the time they're in a dish with a sauce, I don't notice the difference at all. That's true whether it's a tomato sauce or a cheese sauce.

I love Tinkyada brown rice pasta! :)

Korwyn Explorer

im not a diagnosed celiac but i have been developing problems that fit the bill, just last week i got my blood test results and now the doctor wants an upper endoscopy, i was prepared to go gluten free and help my self get healthy in fact im avoiding already breads and watching products that have gluten, but now that i've read that when you go gluten free you will gain weight it nearly drove me to tears i was a skinny kid all my life and had gained 200 pounds from the ages of 19-21, lost the weight (nearly 80 lbs) mostly from what i thought was hard work diet and exercise. im so scared because the thought of being my old self i couldn't stand it please someone help me....

Hi Scaredandworried,

Not everyone gains weight, that depends on a lot of factors. I lost 45 pounds in the last year. The problem for a lot of people is that if they have the nutritional malabsorption issues, when they go gluten free and they continue eating carbs and refined grains that are gluten free, their bodies start healing and they start absorbing nutrients they were not getting before. This impacts their insulin levels, hormones, and the triglyceride fat storage cycle.

One of the things that I have suggested to people I've had this conversation is that once you go gluten free, move to a whole (unprocessed, mostly raw) foods diet, rich in protein, meat broths, and lots of veggies (especially green, but very few grains at all including corn), avocados and unrefined coconut oil. Then, once your body begins to heal up, you can being adding grains and things back into your diet - assuming you want to! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.