Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustration...am I Alone?


cmadam

Recommended Posts

cmadam Newbie

This is not the first time I have been on this site, but first time Im posting. I really have no one to bounce this off that understands so Im hoping you guys can help.

I was diagnosed in January (ya happy new year) and I have been gluten-free and diary free since then. I do keep a food journal, and my food intake is as follows: Weight Watchers gluten-free Yogurt for breakfast with a Med Black Ice Coffee decaf (also have gone decaf), lunch 4oz of leftovers from the dinner from the night before(see dinner for details) and for snacking through the day its almonds or 1 piece of hersheys dark chocolate minis or some UTZ chips since gluten-free , dinner is made in a wok, oil butter salt pepper , 1 frozen bag of veggies usually broccoli or brussel sprouts , and a lb of meat either steak or chicken typically and brown rice. This is enough for for the 3 of us (I dont eat it all myself). Usually have a bowl full. As for drinks ... I have water, black decaf coffee, gluten free beer or gingerale (on occasions).

Now.... I am on the bigger side (over 200lbs), yet since I have been diagnosed I have gained weight. Everyone around me sees waht i eat and drink and they even say I should be dropping like crazy but Im not. So Im frustrated with that... but what is killing me more.. is that people I know are doing the gluten-free diet just as a weight loss plan and its working ! They are shedding like nothing .... me I haveee to be on this diet for lifeee and Im gaining.. its soooo frustrating ..

I know people on here talk about the weight gain etc etc and I feel your pain, but Im not one of those that went for the gluten-free boxed items or high carb or watever, 90% of my diet comes from veggies and meat. How is it possible at my size Im not loosing, but everyoen else is ?

Someone please save my sanity and lead me in a direction...... Thank you guys


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

This is not the first time I have been on this site, but first time Im posting. I really have no one to bounce this off that understands so Im hoping you guys can help.

I was diagnosed in January (ya happy new year) and I have been gluten-free and diary free since then. I do keep a food journal, and my food intake is as follows: Weight Watchers gluten-free Yogurt for breakfast with a Med Black Ice Coffee decaf (also have gone decaf), lunch 4oz of leftovers from the dinner from the night before(see dinner for details) and for snacking through the day its almonds or 1 piece of hersheys dark chocolate minis or some UTZ chips since gluten-free , dinner is made in a wok, oil butter salt pepper , 1 frozen bag of veggies usually broccoli or brussel sprouts , and a lb of meat either steak or chicken typically and brown rice. This is enough for for the 3 of us (I dont eat it all myself). Usually have a bowl full. As for drinks ... I have water, black decaf coffee, gluten free beer or gingerale (on occasions).

Now.... I am on the bigger side (over 200lbs), yet since I have been diagnosed I have gained weight. Everyone around me sees waht i eat and drink and they even say I should be dropping like crazy but Im not. So Im frustrated with that... but what is killing me more.. is that people I know are doing the gluten-free diet just as a weight loss plan and its working ! They are shedding like nothing .... me I haveee to be on this diet for lifeee and Im gaining.. its soooo frustrating ..

I know people on here talk about the weight gain etc etc and I feel your pain, but Im not one of those that went for the gluten-free boxed items or high carb or watever, 90% of my diet comes from veggies and meat. How is it possible at my size Im not loosing, but everyoen else is ?

Someone please save my sanity and lead me in a direction...... Thank you guys

I'm overweight as well, I did lose 20 lbs the first month doing this, but I also eliminated all sugar. Once I added some sugar and carbs back in the weight stopped dropping. To be honest it sounds like you are not eating very much food at all. I don't know, but 4 oz of meat and veggies for lunch does not sound like much. Your body could be holding the weight because it's in starvation mode. If you really want to lose weight, I think you should increase the amount of veggies and fruit you eat and skip the chips and chocolate. Replace them with carrot sticks and other raw veggies-- I like celery, bell peppers, cucumbers and cauliflower. Also get some fresh fruit in-- bananas, apples, pears, grapes are all good portable fruits.

Are you exercising as well? If not you should start on something small that you can stick with. Even if you only do 5 minutes of exercise a day to start out it would help boost your metabolism.

Finally, I don't want to suspect this since you haven't mentioned any symptoms of it, but have you had your thyroid function checked? People with celiac seem to be more likely to have thyroid disorders.

starrytrekchic Apprentice

I also second the thyroid check. Also any other medical conditions or medications that could be causing problems with losing weight.

The best thing you can do is to count (accurately) the number of calories you're taking in every day. Depending on how far advanced your celiac was, your body may be in starvation mode, meaning losing weight for the first six months or so will be difficult.

Make sure you're getting 1500+ calories a day, more if you're not absorbing all of them. To lose weight, you don't want to be getting over 1800 or so. Keep yourself honest by writing down the calorie amounts of everything you consume (even things like sugar for your coffee) and calculating the total every day for a week, then average it out.

After that...you're going to have to look at other habits. Sedentary lifestyles are the biggest problem. Find a step-counter and put it on every morning, and check the amount every evening. You should be getting 10,000 steps in per day, if not you'll need to add walking time.

TVgirl Newbie

I gained weight for the first while, as my body was adjusting to finally being nourished. I'm finally, slowly losing weight.

It looks like your biggest issue is not eating enough. Breakfast is key. Eat plenty of protein at breakfast - it will kick start your metabolism and keep you full longer.

Try tracking your calories with www.dailyburn.com.

Also alcohol is brutal - even a little bit and your body will shift from burning fat to burning off the alcohol.

Wendy813 Newbie

This is not the first time I have been on this site, but first time Im posting. I really have no one to bounce this off that understands so Im hoping you guys can help.

I was diagnosed in January (ya happy new year) and I have been gluten-free and diary free since then. I do keep a food journal, and my food intake is as follows: Weight Watchers gluten-free Yogurt for breakfast with a Med Black Ice Coffee decaf (also have gone decaf), lunch 4oz of leftovers from the dinner from the night before(see dinner for details) and for snacking through the day its almonds or 1 piece of hersheys dark chocolate minis or some UTZ chips since gluten-free , dinner is made in a wok, oil butter salt pepper , 1 frozen bag of veggies usually broccoli or brussel sprouts , and a lb of meat either steak or chicken typically and brown rice. This is enough for for the 3 of us (I dont eat it all myself). Usually have a bowl full. As for drinks ... I have water, black decaf coffee, gluten free beer or gingerale (on occasions).

Now.... I am on the bigger side (over 200lbs), yet since I have been diagnosed I have gained weight. Everyone around me sees waht i eat and drink and they even say I should be dropping like crazy but Im not. So Im frustrated with that... but what is killing me more.. is that people I know are doing the gluten-free diet just as a weight loss plan and its working ! They are shedding like nothing .... me I haveee to be on this diet for lifeee and Im gaining.. its soooo frustrating ..

I know people on here talk about the weight gain etc etc and I feel your pain, but Im not one of those that went for the gluten-free boxed items or high carb or watever, 90% of my diet comes from veggies and meat. How is it possible at my size Im not loosing, but everyoen else is ?

Someone please save my sanity and lead me in a direction...... Thank you guys

I feel your pain but my problem is just the opposite. I am 110lbs and I am terrified I will fade away. I am actually looking for ways to gain weight on a gluten free diet. What was your normal weight before being diagnosed? I have always been thin. I have always tried to gain weight but nothing seems to work. I've been crying for 2 days now.... BUT.... its nice to know that I can east UTZ chips.....

  • 2 months later...
one more mile Contributor

For me my weight seems little related to what I eat. It's more related to my thyroid. Please get it checked. 1 in 4 women over 40 have a thyroids that do not work properly.

  • 2 weeks later...
txplowgirl Enthusiast

Hi Cmadam, I know this post was a while ago, but I hope this may help you or someone else.

I started this gluten free thing over a year and a half ago, I am 5 ft 2 and I was 205. I am now down to 160. I do not eat anything that is made gluten free except for kind bars and larabars. Those are the only gluten free items I seem to be able to handle. I eat mainly meats, some veggies, because not all agree with me and some fruits.

I eat a lot. I used to just peck at my food, never ate much but now I eat way more than I used to. I have noticed that when I stop eating a lot and just kind of do what you do my weight plateaus and I stop feeling good. I do not keep track of the calories I just eat until I'm full. I eat all day long. I eat meat of some kind for breakfast, then I eat meat, fruit and/or almonds, all day long then towards evening I eat something like a chicken salad or some kind of meat with brown rice in the evening..

May not work for everyone but I have gone off my blood pressure meds and my depression and anxiety, are gone. My cholesterol is finally good. The one thing I have found out is my anemia is finally gone after being anemic since I was 8 years old. There are a lot of other things that have reversed but I also had to get rid of dairy, soy and msg as well to finally feel good. I hope you're feeling better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.