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Beth Israel Deaconess Medical Center

lilbit

By lilbit
in Doctors

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lilbit Apprentice
lilbit
Posted

Has anyone dealt with the Beth Israel Deaconess Medical Center in Boston? Any recommendations for a doctor there?

Thanks!

  • 1 month later...
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Sarah1122 Newbie
Sarah1122
Posted

I was diagnosed @ Mass General in Danvers in March - the GI was nice, but certainly no expert in Celiac - I have been begging for tests that are supposed to be routine after this diagnosis, but not having any luck getting the answers I need. He said "yup, you have Celiac" and that was the last I heard! In the last 4 months, no one has bothered to check where my overall health stands today; after 10 years undiagnosed, I am assuming (and feeling!!) that the damage is extensive and want to, need to know what to do from here.

So, I did some research on Beth Israel - the Celiac Disease Center sounds great - what an impressive staff of MD"s! I just made an appt last week - originally it was with Seema Maroo, who sounds amazing! I was so excited! But the office just called me to let me know there was a "scheduling error" and she is not available for another 2 months. Ugh! So I switched my appt to Dr Daniel Leffman, a recent addition to the team - his primary focus is Celiac and is on the celiac research team, so I am hoping he has lots of answers for me! I am going August 20th, so the wait time is not too bad...

Did you ever end up going? Who did you see?

  • 2 months later...
TwitchyMcLurcherson Newbie
TwitchyMcLurcherson
Posted

I was diagnosed @ Mass General in Danvers in March - the GI was nice, but certainly no expert in Celiac - I have been begging for tests that are supposed to be routine after this diagnosis, but not having any luck getting the answers I need. He said "yup, you have Celiac" and that was the last I heard! In the last 4 months, no one has bothered to check where my overall health stands today; after 10 years undiagnosed, I am assuming (and feeling!!) that the damage is extensive and want to, need to know what to do from here.

So, I did some research on Beth Israel - the Celiac Disease Center sounds great - what an impressive staff of MD"s! I just made an appt last week - originally it was with Seema Maroo, who sounds amazing! I was so excited! But the office just called me to let me know there was a "scheduling error" and she is not available for another 2 months. Ugh! So I switched my appt to Dr Daniel Leffman, a recent addition to the team - his primary focus is Celiac and is on the celiac research team, so I am hoping he has lots of answers for me! I am going August 20th, so the wait time is not too bad...

Did you ever end up going? Who did you see?

How did it go? I'm trying to find a neurologist through them that also knows celiac.

  • 1 year later...
greystone Newbie
greystone
Posted

How did it go? I'm trying to find a neurologist through them that also knows celiac.

Sorry to bump an old thread, but I'm also looking for a recommendation at Beth Israel.

Thanks.

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      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      Kirkland brand (at Costco) is gluten-free and is 2,000 IU.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
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      Unexpected gluten exposure risk from cultivated mushrooms

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