Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fasting Glucose & Celiac


Seeschell

Recommended Posts

Seeschell Newbie

I am new here. I am so frustrated because I have being eating gluten free, low carb and excerising and still my fasting glucose is in the "prediabetes" zone and my A1c is high. Has anyone had expeirence with this? How long did it take to start seeing results?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

How often are you checking your blood sugar levels? Something I found really helpful was to keep a diet and bs log. I would test before I ate, an hour after and then again 2 hours after eating as well as my morning stick. That helped me see how what I was eating was effecting my blood sugar. I had it under control in a couple months.

I also got a book on the glycemic index of foods and ate as much on the low glycemic end as I could.

Increasing the amount of excersize you get may help also if you haven't done that already.

missy'smom Collaborator

Good for you for keeping an eye on it. Keep it up. It would be good to check after meals from time to time. Good for you for following a low-carb diet. That really goes a long way. It can take a good long while for us to heal-even a year or two so hang in there and keep up the good work. For some, like myself, gluten-free didn't cure my diabetes. I went undiagnosed a long time and it seems that I am very insulin deficient. There's nothing to about that now, but keep my BG well contolled to preserve what insulin producing capacity I have left. Not to go on about me, but my main point is to just keep up the good work and keep a close eye on it. There is a lot we can do but there also comes a point where we can't contol everything. Stay well hydrated, don't snack before bedtime or inbetween meals. For some, there comes a point where certain amounts of protein(meat) or fat at the evening meal can cause elevated fasting numbers. I don't have that problem but have met some who do. Depending on how much meat you eat at dinner, maybe just cut back by an ounce and see what happens. If you are eating close to bedtime, try moving your dinner up earlier to give it more time to digest. For me, exercize elevates, rather than lowers my BG, so doing it in the late afternoon or evening could possibly cause elevated BG that would carry over to the a.m. However we are on the opposite ends of the spectrum so that might not be a problem for you, but you could test and find out.

Seeschell Newbie

I exercise almost daily for 40 min. I don't check my blood sugars daily though. I did when I was a gestational diabetic. Maybe I should again? My fasting glucose was 111, A1c was 6.6 and fasting insulin was >2. I found out I was a pre-diabetic three months before I found out I was a Celiac. I was so diligent about my carb counts at first but then I became consumed with finding all the hidden gluten in my life that I got relaxed on the carbs. I am trying to do this "naturally" without meds, but I am starting to feel like it is useless! Maybe I should give in and go on Metformin?

psawyer Proficient

I wish my A1C was only 6.6. Yours is in the uncertain zone, with 6.0 or less considered "normal" and 7.0 being considered "optimal control" for a type 1 diabetic. Mine runs around 7.6 to 7.8.

Tighten up on your carb counts, and remember that many gluten-free substitute foods are higher in carbohydrates than the gluten-loaded ones that they replace.

From day one of being a diabetic celiac, I was told one rule to follow at all times: If your diabetic diet and celiac diet are in conflict, FOLLOW THE CELIAC DIET. A few extra carbs will do a lot less damage in the long run than some gluten will.

missy'smom Collaborator

I exercise almost daily for 40 min. I don't check my blood sugars daily though. I did when I was a gestational diabetic. Maybe I should again? My fasting glucose was 111, A1c was 6.6 and fasting insulin was >2. I found out I was a pre-diabetic three months before I found out I was a Celiac. I was so diligent about my carb counts at first but then I became consumed with finding all the hidden gluten in my life that I got relaxed on the carbs. I am trying to do this "naturally" without meds, but I am starting to feel like it is useless! Maybe I should give in and go on Metformin?

Forgive me but, Yikes guys! Please don't let gluten-free and diabetes be in conflict. You shouldn't have to choose! Please, you can get both in line, you shouldn't have to choose! My A1c was 5.4 a year ago and I am VERY insulin deficient. Yes, do check often. It can give you valuable info. I don't venture into the land of "what if's", these days but if I did, my greatest regret is that I believed and totally trusted and believed the doc. that my GD(gestational diabetes) would and did go away. I VERY regretfully retired my meter and now(12 years later) find that I am VERY restricted and VERY insulin deficient. Please do check daily. Info. is power. The more data we can collect, the better off we are. It CAN be done naturally and without meds for some. However, insulin is not the last resort, nor are SOME meds. If you are really interested in dietary management, I STRONGLY recommend Dr. Bernstein's methods. There is a book and a forum set up for those who follow his methods. He is a long standing and very healthy T1 diabetic and a doctor, completely dedicated to diabetes. Very inspirational story. Don't give up hope! You can also check blood sugar 101 website for some good info.

ravenwoodglass Mentor

I exercise almost daily for 40 min. I don't check my blood sugars daily though. I did when I was a gestational diabetic. Maybe I should again? My fasting glucose was 111, A1c was 6.6 and fasting insulin was >2. I found out I was a pre-diabetic three months before I found out I was a Celiac. I was so diligent about my carb counts at first but then I became consumed with finding all the hidden gluten in my life that I got relaxed on the carbs. I am trying to do this "naturally" without meds, but I am starting to feel like it is useless! Maybe I should give in and go on Metformin?

Your numbers are not really too bad and I do think you can get it under control with diet. Do start checking your BS levels daily and do check after meals for a while. Before you give in and take metformin do check the side effects and adverse reactions. Pay particular attenition to the black box warning. I have very severe reactions from gluten and the side effects and black box warning are so similiar to the effects from gluten that I didn't think I would be able to tell the difference between the two. That is why I turned it down and chose to go with frequent BS checks and diet change instead. My doctor thought I had adult onset type 1 due to effects that being an undiagnosed celiac had on my body and told me that when the time came he would just give me insulin. That day looks like it won't be here anytime soon thankfully. Go back to being strict about carbs and do check out glycemic indexes and that should help you out a lot. Becoming more relaxed about checking and your carb intake is what is most likely leading to your difficulty in control.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 months later...
4mom Newbie

I was diagnosed with celiac disease about 6 months ago at the tender age of 53. Explains so much of my past medical history. I know the diet and have stuck to it religiously. I am not over weight, exercise regularly, eat a healthy diet but am still feeling sickly and tired sometimes. After my most recent blood test I was upset and surprised to find that although my celiac disease is under control, I am prediabetic. Will this explain why I still feel unwell? I'm going to meet with a dietician to hopefully find what I can do to change and improve. Any advice will be gratefully received.

missy'smom Collaborator

I was diagnosed with celiac disease about 6 months ago at the tender age of 53. Explains so much of my past medical history. I know the diet and have stuck to it religiously. I am not over weight, exercise regularly, eat a healthy diet but am still feeling sickly and tired sometimes. After my most recent blood test I was upset and surprised to find that although my celiac disease is under control, I am prediabetic. Will this explain why I still feel unwell? I'm going to meet with a dietician to hopefully find what I can do to change and improve. Any advice will be gratefully received.

It could very well be contributing to feeling unwell. I went in and asked to be tetsed for diabetes 2 years ago because after 2 years gluten-free, I felt that I had had quite enough time to heal and still felt more fatigued than I wanted to be. Managing my blood sugar has given me back that energy that I was looking for. Be sure to test often and after meals and record your meal contents and blood sugar readings on a chart for a while. It will give you valuable information. This does not have to be a progressive disease. You can stop it where it's at with careful dietary control. Carbs raise blood sugar. period. so controlling them is your key to management. And not all carbs are created equal, some are fast acting(rice, anything made with flour, sugar, things easily digested etc.) and some are slow(non-starchy vegetables and such). Slow acting carbs will have the least immediate and long-term effect on blood sugar.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.