Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dq2/dq8 Results

bilyjimbob

Recommended Posts

bilyjimbob Newbie
bilyjimbob
Posted

So I finally got my results for dq2/dq8 and they were negative...

My question is, is that conclusive? Or can those be negative and someone still have celiac?

I'd been off gluten for a couple months before the test, can that affect this test?

One last thing, can you not have celiac and just be gluten intolerant?

Any info is appreciated

Thanks,

Jorden

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Korwyn Explorer
Korwyn
Posted

So I finally got my results for dq2/dq8 and they were negative...

My question is, is that conclusive? Or can those be negative and someone still have celiac?

I'd been off gluten for a couple months before the test, can that affect this test?

One last thing, can you not have celiac and just be gluten intolerant?

Any info is appreciated

Thanks,

Jorden

Negative on the genetic test means you do not show the known markers predisposing you to celiac disease. However there are a couple people on the boards here who have celiac disease or Gluten intolerance (or have family members that do) who also did not show any of the known markers. While this would indicate you probably have a reduced risk, there are still many unknown genetic and environmental factors leading to the development of celiac disease.

Being off gluten will not affect the genetic test.

You can most certainly be gluten intolerant and not have celiac disease. My boss doesn't have celiac disease but he is severely gluten intolerant. He develops such joint pain that he has had to call in sick from accidental ingestion of a couple of bites of mole sauce made with flour instead of cornstarch.,

nora-n Rookie
nora-n
Posted

There are a few people here that are diagnosed celiacs with other genes,

another one was mistyped as not having DQ8 when she had DQ8 after all, and some half genes are around too.

Also, some DQ2,2 have been posting here.

Most of these with other genes have a hard time getting diagnosed, but some do get a diagnosis.

All in all, you cannot use the gene test to exclude celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

You can't use the gene tests as a conclusive yes you have it or no you don't and never will. I am a firmly diagnosed celiac without either DQ2 or DQ8, I have a double DQ9. IMHO it makes no difference if you are celiac or 'gluten intolerant' if your body is reacting to gluten you need to be just as strict with either label.

Skylark Collaborator
Skylark
Posted

I think folks who aren't DQ2/DQ8 should make sure their doctors rule out other conditions like inflammatory bowel disease or Crohn's. (Well, really everyone should but without DQ2 or DQ8 the risk of IBD and celiac is similar.) You can absolutely be celiac or gluten intolerant with other HLA-DQ genes but it's less common than with DQ2 or DQ8.

nora-n Rookie
nora-n
Posted

I am double DQ5 and Hadjivassiliou found that 20% of his gluten ataxia patients are DQ1 (DQ5 and DQ6 are DQ1)

There are even three forums for people like that so it is not so uncommon. (the DQ1 gluten thing. Also, they are way way more sensitive to small amounts of gluten than the DQ2 people)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,776
    • Most Online (within 30 mins)
      7,748
    peskywabbit
    Newest Member
    peskywabbit
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Ibuprofen

      By trents · Posted

      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.