Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Defatted Wheat Germ Gluten Free?


labrisbin

Recommended Posts

labrisbin Rookie

Just curious to know anyone's thoughts/experiences. My doctor prescribed Standard Process Cataplex F tablets (along with other things). I took them for 3 days only as I noticed I felt nauseous after each time I took them. Well, it's a week later and I have been having a very trying week filled with every celiac symptom I've ever experienced. Here's my question. These tablets contain defatted wheat germ. I called my doctor to tell him I was having a reaction. My doctor said these tablets do not contain gluten. Something about how it's processed, etc. I really don't understand. My body says they do contain gluten. Has anyone else had any experience with defatted wheat germ. I have an appointment with him next week and I would like to be armed with knowledge. Here's the other thing - if they are okay, then I've been glutened at home :unsure::angry: It's EXTREMELY frustrating to be made to feel wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I looked up defatted wheat germ. Sounds like they extract the oil but the point is to leave the proteins. I think gluten is a wheat protein. I would think these contain gluten. Have you tried to call the manufacturer?

ravenwoodglass Mentor

IMHO your doctor is flat out wrong and your body is bearing that out. I would stop taking the tablets immediately.

T.H. Community Regular

Think your doc is totally wrong on this one, and wow did I find some fun info to bring back to him!

First, the Standard Process Company has this answer to the fact that they do NOT have a list of products that are gluten free:

"...There are a few reasons Standard Process does not label products "gluten free":

* Grains containing gluten, barley, rye, and wheat, are used in many of our products

* Presently there is no established "gluten-free" standard, but the FDA is in the process of addressing this issue

No two patients have the same sensitivity to gluten; therefore, nutritional counseling should be individualized and potential gluten allergies discussed before a patient takes any Standard Process supplement.

Since this is a complex issue, we encourage you to find out more by visiting relevant websites, such as www.celiac.com, which discusses gluten allergies and safe foods to eat for those sensitive to gluten."

So, let me just say, HA, doc, the company does NOT say this is gluten free! And also get a chuckle because coming here is exactly what you did! :D

If you want more to offer your doc? You can call the company (1-800-558-8740 Their website is: Open Original Shared Link ), or buy some of the home tests for gluten that are now available on-line and test this stuff.

Here's something that may be tripping up your doc, too - Cataplex F tablets have the defatted wheat germ.

Cataplex F PERLES do NOT have defatted wheat germ.

Maybe the doc has mixed up which is which in his head?

There is also this issue: if you are eating something that is derived from wheat, what does that mean? That it was made by fallible human beings, in a facility and on equipment that is handling this ingredient all day long. What are the odds that there will NEVER be a contamination issue?

Pretty darn good. I'd drop it flat.

And one last nail in the coffin of Standard Process Cataplex F. I was googling to see if I could find any information on this, and came across another person having the same issue with this same product in 2007. You aren't alone, at least.

Sorry your doc is not only incorrect, but responding in a way that makes it seem as though it is YOUR fault. If you have any choice in the matter, I'd hunt down another doctor ASAP.

labrisbin Rookie

Think your doc is totally wrong on this one, and wow did I find some fun info to bring back to him!

First, the Standard Process Company has this answer to the fact that they do NOT have a list of products that are gluten free:

"...There are a few reasons Standard Process does not label products "gluten free":

* Grains containing gluten, barley, rye, and wheat, are used in many of our products

* Presently there is no established "gluten-free" standard, but the FDA is in the process of addressing this issue

No two patients have the same sensitivity to gluten; therefore, nutritional counseling should be individualized and potential gluten allergies discussed before a patient takes any Standard Process supplement.

Since this is a complex issue, we encourage you to find out more by visiting relevant websites, such as www.celiac.com, which discusses gluten allergies and safe foods to eat for those sensitive to gluten."

So, let me just say, HA, doc, the company does NOT say this is gluten free! And also get a chuckle because coming here is exactly what you did! :D

If you want more to offer your doc? You can call the company (1-800-558-8740 Their website is: Open Original Shared Link ), or buy some of the home tests for gluten that are now available on-line and test this stuff.

Here's something that may be tripping up your doc, too - Cataplex F tablets have the defatted wheat germ.

Cataplex F PERLES do NOT have defatted wheat germ.

Maybe the doc has mixed up which is which in his head?

There is also this issue: if you are eating something that is derived from wheat, what does that mean? That it was made by fallible human beings, in a facility and on equipment that is handling this ingredient all day long. What are the odds that there will NEVER be a contamination issue?

Pretty darn good. I'd drop it flat.

And one last nail in the coffin of Standard Process Cataplex F. I was googling to see if I could find any information on this, and came across another person having the same issue with this same product in 2007. You aren't alone, at least.

Sorry your doc is not only incorrect, but responding in a way that makes it seem as though it is YOUR fault. If you have any choice in the matter, I'd hunt down another doctor ASAP.

Wow. Thanks so much for taking the time to find this information. I think I was so surprised/stunned by my doctor's reaction to my phone call (I was incorrect - the Cataplex is gluten free) that I didn't go to the Standard Process website myself. I will call them tomorrow to see what they have to say about it to me while I'm on the phone with them. From the statement on their website, it seems pretty clear that they may or may not contain gluten. :huh: Great.

labrisbin Rookie

I called the company this morning and was curtly told that I needed to contact my health care provider. I was informed that Standard Process sends the gluten free status of its products to the health care provider only. I mentioned that their statement on their website regarding the gluten free status of its products was quite ambiguous. The customer service rep said she agreed. I asked what would happen if the information Standard Process sent to my doctor was not entirely accurate. She didn't know. I learned nothing. Except that defatted wheat germ contains gluten. In my case.

ravenwoodglass Mentor

I called the company this morning and was curtly told that I needed to contact my health care provider. I was informed that Standard Process sends the gluten free status of its products to the health care provider only. I mentioned that their statement on their website regarding the gluten free status of its products was quite ambiguous. The customer service rep said she agreed. I asked what would happen if the information Standard Process sent to my doctor was not entirely accurate. She didn't know. I learned nothing. Except that defatted wheat germ contains gluten. In my case.

With a response like that I wouldn't used any of their products. Just my opinion but there are plenty of other supplements available and likely at a much lower cost.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
mmjj Newbie

I have had problems with Standard Process supplements that contain the defatted wheat germ. Of course the Dr says that there shouldn't be a problem, but if I take it, the symptoms are there, and stop taking it, symptoms resolve. Gone through this 3 times, so now I know for sure and I'm done. I also tried to talk to the company, and they were vague similar to above posts, and referred me back to my Dr. Final word: I cannot take those supplements. And yes, it is very frustrating and demoralizing to have to have these conversations repeatedly with practitioners when they try to say that it works for everyone else, shouldn't be a problem, I don't know why you're having these issues, blah, blah. GO with what the bod is telling you :) It knows.

  • 2 years later...
Eboronkay Newbie

Doc used applied kinesiology to test the cataplexy B and my body said yes. Read the ingredients after I had opened the bottle (this is a product I had used successfully years ago before I realized my son inherited his gluten sensitivity from me) Since really cleaning up my diet about 5 years ago, getting super serious 2 years ago, I have become super sensitive. So when I saw the wheat germ I added the gluten defense digestive which I keep in the house in case I think I've been cc. I live and work at a boarding school so the food issue can be super challenging. Finding this site has been hugely helpful. I'm currently on medical leave due to extreme anxiety, frightening memory loss, and depression. I've been referred for psychiatric care (taking too many Meds now as far as I am concerned) and a neurologist to explore Alzheimer's and CJD (human form of mad cow disease.) But first I went to this highly regarded chiropractor/homeopath who also thinks I've had false negative tests for Lyme.

Today reading on this site has convinced me it's all gluten! (the Lyme could also easily be correct, I live on a mountain in the woods. Tick city!) calling his office now to discuss the wheat germ issue.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.