Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Help

coffeetime

Recommended Posts

coffeetime Explorer
coffeetime
Posted

My 19 yr old son got his blood results back today. My brother was diagnosed in Nov, me in Jan, and my mom in March. He decided he wanted to be tested after a lot of debate. The final straw was when he had a really weird form of dandruff return. The first time was about 3 years ago when he dropped about 30lbs (5'10, down from 170 to 140), which at the time his hair became very thin, the hair on top of his head has never fully regrown and he has begun to lose it again. We did at the time all the usual test at that time, thyroid, blood work, various specialist etc. everything was normal with the exception of anemia at the time and was blamed on the weight loss. The digestive issues, especially diarrhea after eating, sadly often acting up during the meal have been less during the last month or so. He has a lot of trouble keeping weight on but has managed to get back up to 170, but will drop lbs so quickly if he isn't careful. He has battled anemia over the years but it is currently o.k. in that area.

O.k. I think that's enough history his results are

Immunoglobulin A 157 range 61-348

Deamidated Gliadin Abs, IgA 3.0 range 0-10 neg

Deamidated Gliadin Abs, IgG 16 H range 0-10

tTG IgA 1 range 0-3 neg

tTG IgG 1 range 0-5 neg

The doctor who ordered the test is on vacation till the 29th and if he should avoid gluten I want to help him understand how to do this before he returns to college in a few weeks.

Thank you all in advance for all your help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It does appear that his results (Deamidated Gliadin Abs, IgG 16 H) were positive. I think the TTG being negative is a good thing as it tends to be positive in folks who have autoimmune issues that have developed from the celiac damage. I could be wrong about that and if I am I am sure someone will come along and correct me.

However is he going to want to have a biopsy done? If so he shouldn't go gluten free yet. With 3 other family members already diagnosed I don't know if he will want to go through with the biopsy or if the doctor will consider it needed, especially since there are false negatives with biopsy anyway.

It can be tough for young people in college to be gluten free but he should do his best. Some colleges accomodate gluten free living quite well as it is getting to be common.

Hopefully his anemia and hairloss and other issues will resolve soon. It can take about 3 months before hair regrowth is obvious but many of us do have our hair issues resolve along with all the other issues. He should avoid dairy for a while also to heal the quickest.

I would suggest he spend some time here himself also. There is a section for young adults but he can ask questions on any topic he needs to.

I hope he heals quickly.

coffeetime Explorer
coffeetime
Posted
  • Author

It does appear that his results (Deamidated Gliadin Abs, IgG 16 H) were positive. I think the TTG being negative is a good thing as it tends to be positive in folks who have autoimmune issues that have developed from the celiac damage. I could be wrong about that and if I am I am sure someone will come along and correct me.

However is he going to want to have a biopsy done? If so he shouldn't go gluten free yet. With 3 other family members already diagnosed I don't know if he will want to go through with the biopsy or if the doctor will consider it needed, especially since there are false negatives with biopsy anyway.

It can be tough for young people in college to be gluten free but he should do his best. Some colleges accomodate gluten free living quite well as it is getting to be common.

Hopefully his anemia and hairloss and other issues will resolve soon. It can take about 3 months before hair regrowth is obvious but many of us do have our hair issues resolve along with all the other issues. He should avoid dairy for a while also to heal the quickest.

I would suggest he spend some time here himself also. There is a section for young adults but he can ask questions on any topic he needs to.

I hope he heals quickly.

Thank you for your reply. I don't think he is interested in the biopsy. I wish we had known about this illness years ago when he first started having issues. I must admit though I feel so much sadness that he will have to deal with this diet. He has other allergies (trees, grasses, cats, etc) but meds take care of those so well. I wish there was a pill for gluten allergy. It was so much easier for me, I love the area of nutrition and I love cooking. For the most part my whole family is already gluten free. All the desserts I make, and food I prepare is gluten-free. I had not switched their bread, just their pasta. So basically he has a real good understanding already. It will just be navigating the stores and restaurants. Actually, I am glad I replied to your email, as I just typed what we do, I realized he already has a good base of knowledge. Thank you, and have a wonderful day.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank you for your reply. I don't think he is interested in the biopsy. I wish we had known about this illness years ago when he first started having issues. I must admit though I feel so much sadness that he will have to deal with this diet. He has other allergies (trees, grasses, cats, etc) but meds take care of those so well. I wish there was a pill for gluten allergy. It was so much easier for me, I love the area of nutrition and I love cooking. For the most part my whole family is already gluten free. All the desserts I make, and food I prepare is gluten-free. I had not switched their bread, just their pasta. So basically he has a real good understanding already. It will just be navigating the stores and restaurants. Actually, I am glad I replied to your email, as I just typed what we do, I realized he already has a good base of knowledge. Thank you, and have a wonderful day.

One thing that may happen with him is that he may lose at least a few of those other allergies. Before I was diagnosed with celiac I was tested for true allergies. I was tested for 99 different items, I came back reactive to 98. The only thing I wasn't allergic to was beech trees. Within a pretty short time gluten free I had lost almost all the other allergies, along with my asthma reactions to them. My allergist said the gluten issue was putting my immune system into hyperdrive. Taking care of the gluten issue took care of the rest. Perhaps it will with him also.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,191
    • Most Online (within 30 mins)
      7,748
    teresa1955
    Newest Member
    teresa1955
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...