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Back On Gluten For Testing... Now Worse! Help!

KimKF

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KimKF Apprentice
KimKF
Posted

As suggested by all, my daughter went back on Gluten (she went off for 2 days and was told to stay on it) to comply with further testing and YOW! Stomach hurts so much she's in tears, as she had some Boston Market chicken and triscuits (better gluten choices?). It didn't hurt this much before she stopped the gluten, just diarrhea! So, she see keeps this up until the GI doctor (who she sees tomorrow) sends her in for further testing?

How long do Celiac Panels and Stool samples take for results (taken 4 days ago), not that they will show anything? My daughter felt that as long as she could eat foods with gluten at this point, she would have her favorites. Big mistake? Better gluten choices, perhaps?

What do I tell her? Thanks to those who are patient enough to read my rantings. Just a concerned Mom!!

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Skylark Collaborator
Skylark
Posted

Give her a big hug tonight and whatever medicine you usually use to help her feel better. Tomorrow tell your GI exactly what's going on, how she's suffering, and that you really want to take her gluten-free even though she hasn't had a biopsy. Maybe he can schedule the biopsy quickly if he wants to do one.

And yeah, Triscuits on a sensitive stomach might be rough. That's a lot of fiber. White bread or Saltines?

ravenwoodglass Mentor
ravenwoodglass
Posted

If she can take Pepto Bismal Liquid give her some that may help. Please do tell the doctor about this when you see him. I used cream of wheat and triscuits for my challenge and yes the challenge reaction was severe. I am sorry she is feeling so bad. You have to decide when you see the doctor whether continueing the challenge should be done or not. There are times when doctors will diagnose based on the reaction to the challenge and the relief of symptoms on the diet. That said although a diagnosis is sometimes desired there are many who are 'self diagnosed' by their severe reactions to gluten. You don't need a doctors permission to be gluten free but it is helpful when it comes to going to school.

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