Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergy Testing

butterfl8

Recommended Posts

butterfl8 Rookie
butterfl8
Posted

So I went to the allergist to inquire about allergy testing for both foods and environmentals, and was told to think about what foods I wanted to be tested for. (uh, isn't that his job???)

Ok, so anyway, I have been avoiding soy, and just challenged it to be sure. Yep, heart racing, pounding, stomach hurting a bit.

Cumin is really evil.

I'd like to throw in corn, potatoes, rice.

Does anyone have any other suggestions? Something makes me salivate, and get really hungry, and I haven't been able to pinpoint that yet. I'm just hoping the testing will narrow that down a bit.

Thank you for any input!

-Daisy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Do you mind sharing what cumin does to you? I'm curious because cumin is on my avoid list because I tested pos. to it but haven't reintroduced it yet. I know sometimes reactions are hard to describe.

Our first allergist was like yours and didn't believe in his own tests much. I just asked for the top 8 or 10. Wasn't helpful. They dismissed kiddo's reaction to wheat. 2nd allergist gave us a list of about 100 and asked us to check all foods that we routinely ate. We have a fairly vaeried diet so ended up checking about 80 each. Those are what we got tested for and I'm glad it was done that way. I had NO idea that I could be allergic to the 26 that I reacted to. I could not have come up with that list on my own. When I eliminated all of them I felt remarkably better. That's what convinced me that there was something to this and that I needed to take the journey. I've been reintroducing them one by one. Still got quite a few to go. Reaction to individual ones weren't so strong but at least the total sum was making a significant impact on how I felt on a daily basis.

sa1937 Community Regular
sa1937
Posted

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

missy'smom Collaborator
missy'smom
Posted

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

Both allergists did skin testing. One was not helpful and the other was very so I wonder if there was any difference in the tests or not. I haven't asked yet. The results of the first time I was allergy tested(skin) everything came back neg. too. With this new set and elimination/challenge my symptoms have been primarily GI but a little mouth or other with a couple. I am recognizing that many of them give me this feeling of pressure and inflamation in the GI tract that I didn't have when I was not comsuming them. All was blissfully and strangely calm for the 4 weeks without. It was SO strange to not feel anything after a meal!

Yes, I would find an allergist who believes in eliminating foods even if you don't have an anaphalactic reaction and one who routinely runs large food panels.

StephanieL Enthusiast
StephanieL
Posted

If you take any allergy/antihistamines prior to testing it can cause false negatives. Allergy testing is NOT 100% accurate. Skin or blood! The only true test is an allergy trial. Many Dr's don't do these. Testing can give you an idea. Food logs can be really helpful too! Listing foods, times eaten and any reaction you feel you may be having. Good luck in your search!

GFinDC Veteran
GFinDC
Posted

Nightshades, tomatoes, potato, peppers, carrots, turnips, soy, dairy, oats, garbanzo beans, fruits, all the top 8 food allergens, celery, corn.

butterfl8 Rookie
butterfl8
Posted
  • Author

Okay, now that I'm back!!

Missy's mom, cumin makes my stomach cramp up. Just feels like my stomach is turning inside out. My coworkers were telling me to go home all day! Not fun. The more I had, the worse. Just a little seemed to be less cramping, but still enough to avoid. :blink:

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." <_< The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? :angry:

StephanieL: Yep, I'm not looking forward to stopping my happy allegra, and flonase, and benedryl. It will be a miserable few days, but hopefully answer a few questions!

GFinDC Thanks! Those are great suggestions!

Any more?

-Daisy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


butterfl8 Rookie
butterfl8
Posted
  • Author

GFinDC, did you find out you were uh, coffee intolerant (I love my coffee!!!) through testing or elimination? I wonder because I know if I avoid it for a few days it bothers me to go back to drinking it, but only for a day or two. Once I readjust to it, we get along again, and I can wake up in the morning. . . mostly. :P So if I were to eliminate coffee, then challenge it, I would seem to be reactive to it. I just wondered.

Thanks!

-Daisy

sa1937 Community Regular
sa1937
Posted

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." dry.gif The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? mad.gif

I'll admit that I don't have a clue about allergy testing. Obviously the RAST test I had was not the right one. I'll be anxious to hear how everything turns out for you.

Is the Dr. you're seeing an allergist?

butterfl8 Rookie
butterfl8
Posted
  • Author

The Dr. is an ENT, who was recommended by my GP. His office does allergy testing, which is handled by this one nurse. Unfortunately, I'm quiting work in three weeks to go back to school and get my master's, or I would look for a different Dr. Insurance coverage will run out at the end of August.

-Daisy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748
    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.