Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Living Abroad And Recently Diagnosed Son


GlutenFreeinPanama

Recommended Posts

GlutenFreeinPanama Newbie

My 2 year old son was diagnosed recently with Celiac Disease. We are an american family living in Panama. Medical care is good here, but I spent the last year arguing with the ped about our "poo" issues. Finally, we made it to the ONLY neonatal gastro dr. in our province. She took one look at my son's distended belly and wasted arms and said "Celiac" and off we went to the public hospital for blood testing. Our positive test results were not a surprise, but a relief, he is only 22 lbs, not even on the growth charts and refuses to eat. Now we have our answer, but our journey is beginning. I cannot get purchase the gluten-free foods available in the USA. So I am desperate for quick snacking ideas for him. Any ideas and support for our journey would be so appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

My 2 year old son was diagnosed recently with Celiac Disease. We are an american family living in Panama. Medical care is good here, but I spent the last year arguing with the ped about our "poo" issues. Finally, we made it to the ONLY neonatal gastro dr. in our province. She took one look at my son's distended belly and wasted arms and said "Celiac" and off we went to the public hospital for blood testing. Our positive test results were not a surprise, but a relief, he is only 22 lbs, not even on the growth charts and refuses to eat. Now we have our answer, but our journey is beginning. I cannot get purchase the gluten-free foods available in the USA. So I am desperate for quick snacking ideas for him. Any ideas and support for our journey would be so appreciated.

You can order gluten free products online - if you do a bulk order it tends to reduce the sticker shock of shipping. But think first of things that are naturally gluten free. There are wonderful recipes on here for cheese crackers and cheese/nut crackers. Think carrot and celery sticks, cheese sticks, lettuce wraps with cold meat and cheese and veggies in them. almonds, dates, dried apricots, apple slices and pineapple chunks, or combinations of all these (have a cocktail party :lol: ). He is young enough to be converted to the more vegatarian kind of diet. He may also be sensitive to lactose at this point so you will need to trial him on milk, yogurt, ice cream. He will probably be able to add these back in if he is sensiitive to them now. But he can probably stilll do potato and corn chips as treats if you make sure they are gluten free (do they have U.S. labelling laws in Panama?) I am not sure how "American" it is any more. When you make up an order from the U.S. include bread mixes, cake mixes (Pamela's is a good all-purpose mix), pastas, etc., so that you can make him pancakes,cookies, cakes, bread. That way he won't feel deprived.

Good luck, and I am sure others will come on with more ideas.

GlutenFreeinPanama Newbie

Thanks! We tend to eat a vegetarian diet as that is what I follow. We live about 8 hrs outside of more modern Panama City in a small country town, so our ability to buy is limited. I love all of your ideas! Yes, right now he is lactose intolerant and the dr. took him off all milks except an infant formula. I am glad to hear we might be able to reintroduce that at a later date. She left it open ended when I asked her. She also took him off all juices, colorants and dyes..I was wondering if I juiced our abundance of papaya, mango and mangostein if those juices would be acceptable - I really don't like the idea of his only liquid consumption is of infant formula or water.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,198
    • Most Online (within 30 mins)
      7,748

    Joanne01
    Newest Member
    Joanne01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.