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notme

By notme
in Coping with Celiac Disease

Recommended Posts

notme Experienced
notme
Posted

thank you all so much - i am trying to do the glucose free thing - 2nd day - my guts feel muuchh better and i am not throwing up :) but i am so completely angry/depressed/sore! all my muscles feel like i have the flu but i had never heard of any of this withdrawal stuff before. thank God i don't have to kill everyone and this should pass???? thanx! arlene :)

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Lisa Mentor
Lisa
Posted

Welcome! I am assuming your meant "gluten" free diet.

Keep hydrated, that will help. Hope you feel better and there is lots to learn here. :)

kareng Grand Master
kareng
Posted

Get some Dove dark chocolate or some other kind. It makes you feel better and you deserve it! ;)

notme Experienced
notme
Posted
  • Author

Welcome! I am assuming your meant "gluten" free diet.

Keep hydrated, that will help. Hope you feel better and there is lots to learn here. :)

omgosh - sorry (i have a type 1 diabetic son - "glucose" just rolls off the keyboard) yes, gluten-free. i had no idea that i would have any kind of emo/bio reaction! my husband googlied y'all and watched me cry when i read that i am not alone

notme Experienced
notme
Posted
  • Author

Get some Dove dark chocolate or some other kind. It makes you feel better and you deserve it! ;)

is that safe? i am freaking over everything that contains gluten. uhhh... soy sauce??? whaaaaat?

Takala Enthusiast
Takala
Posted

You just have to train yourself to read labels, like a reflexive reaction, before you eat anything.

This is an auto immune disease reaction which interferes with how you absorb nutrients, hence, the very real physical reaction in turn effects how efficiently your brain is working- or is sort of sputtering and short circuiting. Taking gluten free vitamin and mineral supplements helps to overcome this. Some brands of vitamins will say "gluten free" right on the label. B complex vitamins really help. Calcium and magnesium also help reduce sugar cravings.

You may need to change your diet to eat more fresh vegetables and good fats. Olive oil is your friend, so is coconut oil or coconut milk if you are also having problems with dairy. Sometimes people find out that they are rather carbohydrate intolerant overall if they just try to substitute gluten free baked goods for regular baked products. Other people discover they also don't do well with certain common ingredients in gluten free baking, so they have to learn to bake their own customized versions if they want something fresh and not resembling a cardboard styrofoam brick. If you bake, use new bakeware pans so you don't get cross contaminated. You also will need your own dedicated toaster. If cooking rice pasta, your own colander. Some families go gluten free at home to make things simpler.

Some brands of chocolate are safe at this time, but always read the labels to be sure.

A short cut is to google:

_______

gluten free dove chocolate

_______

and see what comes up. You can do this with any sort of food. There is also a search function here on this site. Check the date on the information, as sometimes an old story comes up and it turns out this was from years ago and the manufacturer may have changed the formula so it is not gluten free anymore.

Regular soy sauce usually contains wheat. There is a brand of very good soy sauce called "San J" which is wheat free soy sauce and so far, is okay.

notme Experienced
notme
Posted
  • Author

thank you all very much :) the first morning in years i didn't spend making 300 trips to the bathroom!! sorry if that is tmi, but i am celebrating :D maybe i will gain weight! good point about brain function - this diet change affects every function of my body. i have to remember that. i am a breadaholic but i have always cooked and eaten minimally processed foods so that won't be that much of a stretch - label reading on everything else! making roasted tomato-garlic soup to can today: it will only include whatever i put into it. wow.

i should have done this two months ago when the doc advised instead of being in denial... ;)

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ravenwoodglass Mentor
ravenwoodglass
Posted

The important thing is your doing it now. I am glad you are having a good response. We do sometimes have ups and downs at first but we are all here to help in any way we can.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

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    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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