Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank You


notme

Recommended Posts

notme Experienced

thank you all so much - i am trying to do the glucose free thing - 2nd day - my guts feel muuchh better and i am not throwing up :) but i am so completely angry/depressed/sore! all my muscles feel like i have the flu but i had never heard of any of this withdrawal stuff before. thank God i don't have to kill everyone and this should pass???? thanx! arlene :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome! I am assuming your meant "gluten" free diet.

Keep hydrated, that will help. Hope you feel better and there is lots to learn here. :)

kareng Grand Master

Get some Dove dark chocolate or some other kind. It makes you feel better and you deserve it! ;)

notme Experienced

Welcome! I am assuming your meant "gluten" free diet.

Keep hydrated, that will help. Hope you feel better and there is lots to learn here. :)

omgosh - sorry (i have a type 1 diabetic son - "glucose" just rolls off the keyboard) yes, gluten-free. i had no idea that i would have any kind of emo/bio reaction! my husband googlied y'all and watched me cry when i read that i am not alone

notme Experienced

Get some Dove dark chocolate or some other kind. It makes you feel better and you deserve it! ;)

is that safe? i am freaking over everything that contains gluten. uhhh... soy sauce??? whaaaaat?

Takala Enthusiast

You just have to train yourself to read labels, like a reflexive reaction, before you eat anything.

This is an auto immune disease reaction which interferes with how you absorb nutrients, hence, the very real physical reaction in turn effects how efficiently your brain is working- or is sort of sputtering and short circuiting. Taking gluten free vitamin and mineral supplements helps to overcome this. Some brands of vitamins will say "gluten free" right on the label. B complex vitamins really help. Calcium and magnesium also help reduce sugar cravings.

You may need to change your diet to eat more fresh vegetables and good fats. Olive oil is your friend, so is coconut oil or coconut milk if you are also having problems with dairy. Sometimes people find out that they are rather carbohydrate intolerant overall if they just try to substitute gluten free baked goods for regular baked products. Other people discover they also don't do well with certain common ingredients in gluten free baking, so they have to learn to bake their own customized versions if they want something fresh and not resembling a cardboard styrofoam brick. If you bake, use new bakeware pans so you don't get cross contaminated. You also will need your own dedicated toaster. If cooking rice pasta, your own colander. Some families go gluten free at home to make things simpler.

Some brands of chocolate are safe at this time, but always read the labels to be sure.

A short cut is to google:

_______

gluten free dove chocolate

_______

and see what comes up. You can do this with any sort of food. There is also a search function here on this site. Check the date on the information, as sometimes an old story comes up and it turns out this was from years ago and the manufacturer may have changed the formula so it is not gluten free anymore.

Regular soy sauce usually contains wheat. There is a brand of very good soy sauce called "San J" which is wheat free soy sauce and so far, is okay.

notme Experienced

thank you all very much :) the first morning in years i didn't spend making 300 trips to the bathroom!! sorry if that is tmi, but i am celebrating :D maybe i will gain weight! good point about brain function - this diet change affects every function of my body. i have to remember that. i am a breadaholic but i have always cooked and eaten minimally processed foods so that won't be that much of a stretch - label reading on everything else! making roasted tomato-garlic soup to can today: it will only include whatever i put into it. wow.

i should have done this two months ago when the doc advised instead of being in denial... ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The important thing is your doing it now. I am glad you are having a good response. We do sometimes have ups and downs at first but we are all here to help in any way we can.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.