Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have A New Problem Now


mytummyhurts

Recommended Posts

mytummyhurts Contributor

I don't think this is celiac related. But I wanted to ask you guys if you have had this or know what it could be.

A few days ago I started having a problem swallowing and it keeps getting worse. It feels like in the bottom of my throat (where my neck meets my body) that something is getting caught or popping about ever other time I swallow. It's really annoying and kind of scary. I'm afraid it will get worse and it may get stuck (I don't even know what it is that's popping though). It's really bad when I lay down, but almost goes away if I elogate my neck before I swallow. Also, if I push on my neck right before I swallow it doesn't happen. Weird. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Abby-- Sorry :(

My only input is relux/esophagus issues. Have you ever had any? When I had relux years back, the symptom that sent me to the doctor was trouble swallowing when I was eating. For me, it felt like all the food was getting stuck and building up in my throat. It gave me trouble swallowing/eating. My esophagus was inflamed and swollen b/c of the reflux. I had to get it dialated and take some reflux meds, but after that, I didn't have any issues.

Not sure if this will help you, hope it does girl!

mytummyhurts Contributor

I haven't really had nay problems with bad reflux. Sometimes I get heartburn, but not that often and not really bad. The other thing is that I've had really bad sore throats off and on for about 6 months now.

jenvan Collaborator

Sore throat is another possible symptom of reflux. Not that it may be what you have--but it is another symptom of it some have. For me, the swallowing issue was the only symptom.

Saw this---has some ideas on causes for trouble swallowing: Open Original Shared Link

Sounds like you'll have to go to the dr... :( Sorry !

jknnej Collaborator

I have had this problem, too, for a while now.

Yesterday when I had my endoscopy he showed me pictures of my Schatzki's Ring. This is when your esophogus swells up or whatever and it feels like it's hard to swallow.

He dialated mine using a little balloon and I already feel the difference.

You should talk to your GI dr. about this. I don't know if it's related to reflux or not, but he did say that plenty of people have reflux with my symptoms whatsoever.

mytummyhurts Contributor
Sounds like you'll have to go to the dr...  :(  Sorry !

NO! I don't want to!

My endoscope thing was done last year, I wonder if nothing in my throat was showing up at that time. Otherwise, I hope they would have said something. I definitely don't want to have that done again. I'm still paying for the last one. <_<

jknnej Collaborator

Did you have a bad experiene with your endo? Mine was pretty easy and now I can swallow better.

Maybe it hadn't developed last year? I don't know how long these things take to form. Mine had only been happening recently.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Eloisa
I don't think this is celiac related. But I wanted to ask you guys if you have had this or know what it could be.

A few days ago I started having a problem swallowing and it keeps getting worse. It feels like in the bottom of my throat (where my neck meets my body) that something is getting caught or popping about ever other time I swallow. It's really annoying and kind of scary. I'm afraid it will get worse and it may get stuck (I don't even know what it is that's popping though). It's really bad when I lay down, but almost goes away if I elogate my neck before I swallow. Also, if I push on my neck right before I swallow it doesn't happen. Weird. <_<

This is how I found out I had Celiac. I thought it was silly that I couldn't swollow but what would happen first was that I would get chest pains then the next day I couldn't swollow food and if I tried I would gag. When I went to DR. he said it happends when you have so much reflux and all the acid you create irritates the esophogus. My doctor said I probably OD'd on wheat which is exactly what I'd done. I kept thinking it was the beans I was eating thinking they were too heavy but it was the flour tortillas I had eaten.

mytummyhurts Contributor
Did you have a bad experiene with your endo? Mine was pretty easy and now I can swallow better.

Maybe it hadn't developed last year? I don't know how long these things take to form. Mine had only been happening recently.

No, it was just expensive. My insurance basically sucks and we ended up having to pay $600 for it. I don't want to have to pay that again!

So it's looking like maybe the reflux thing. So I may have to go to the doctor again. Crap!

cdford Contributor

Two questions and possible answers to them:

1- Do you have any muscle or neurological problems from the celiac disease? Muscle spasms in the throat can cause what you are describing. I have them when I get glutened or get too fatigued. I take medication for the spasms since they occur so regularly for me. You may also want to take small bites and chew well. This will help keep you from having that scary feeling that something is stuck and you can't get it to go either way.

2- Do you have any allergic type reactions that might cause the throat to swell? Gluten does this to us as well. Benadryl (or it's stonger relative Vistaril) can help this. It is one of the first ways I know I have been glutened. My tongue feels big and my throat feels clogged up.

jenvan Collaborator

Dang Ab--that stinks with your insurance !! I wish I knew of a better way. The one thing would be to even see your dr and try and reflux med, (or an over the counter), and if this reflux issue is your problem you should start to notice some improvement...

How's it feeling today?

Also, if that is your problem, a few helpful things-- may want to cut out spicy foods (at least for a while), try not to eat an hour or so, at least, before laying down/going to bed, and lastly, elevate the head of your bed several inches. That helps prevent reflux at night. The head of my bed has been on bricks for years !

jknnej Collaborator

Yes, that sucks about your insurance. Why don't you ask your dr. if you could try Nexium for a while. That helps reflux, but it probably won't help if you have a Schatzki's Ring...I think the only answer to that is to have the scope done again.

But it may just be reflux and It could really help you...

mytummyhurts Contributor
Two questions and possible answers to them:

1- Do you have any muscle or neurological problems from the celiac disease? Muscle spasms in the throat can cause what you are describing. I have them when I get glutened or get too fatigued. I take medication for the spasms since they occur so regularly for me. You may also want to take small bites and chew well. This will help keep you from having that scary feeling that something is stuck and you can't get it to go either way.

2- Do you have any allergic type reactions that might cause the throat to swell? Gluten does this to us as well. Benadryl  (or it's stonger relative Vistaril) can help this. It is one of the first ways I know I have been glutened. My tongue feels big and my throat feels clogged up.

I haven't had any other muscle or neurological problems. And the problem isn't only when I'm eating, it actually happens less then. Mostly it's just when I'm swallowing my saliva.

It's actually gotten better since I wrote this on here. You know how when you feel sick and then you make a doctor's appt and it goes away. That's kind of what it's like. It's still there, just not as noticeable and doesn't happen as often.

I am really frustrated with my insurane. We pay $2400 a year just to have me covered and even then they hardly even pay for anything. I think it would be a lot cheaper to not have insurance at all and just pay for stuff out of pocket, since I'm basically doing that anyways. I'm just afraid about not having insurance if I have to go to the hospital or get a major illness or injury. So I kind of have to have it.

jenvan Collaborator

Ab--depending on what you want for insurance, there are other options. If you only want coverage for major expenses, you can get a major medical policy, it is far less a month than a full coverage policy. However, it won't pay for drs visits or prescriptions.

mytummyhurts Contributor
Ab--depending on what you want for insurance, there are other options. If you only want coverage for major expenses, you can get a major medical policy, it is far less a month than a full coverage policy. However, it won't pay for drs visits or prescriptions.

I should look into that because what we are paying right now for the coverage we are getting is just silly. <_<

jenvan Collaborator

my mom's an HR VP (knows ALL about insurance!), so if you want more insurance details on that coverage i mentioned, i should be able to get you some more... help you know what to look for...

mytummyhurts Contributor

Thanks, Jen. I would be interested to know how much it costs to get insurance that covers just emergencies and serious illnesses. If that is possible.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.