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Silly Question?

VitaminDGirl

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VitaminDGirl Apprentice
VitaminDGirl
Posted

I have not had my daughter tested for celiac or gluten intolerance.

Because she tested 'negative' for wheat allergy on a RAST test, I assumed she 'couldn't be'.

But now I'm wondering if I assumed wrong?

Thanks for any feedback.

Vitamin D Girl.

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psawyer Proficient
psawyer
Posted

Am allergy to wheat, and an intolerance to gluten, are two independent conditions. You can have both, either one by itself, or neither. Most of us here do not, in fact, have an allergy to wheat.

You should have your daughter tested for celiac. But, be aware that testing in young children is not as accurate as in teenagers and adults.

VitaminDGirl Apprentice
VitaminDGirl
Posted
  • Author

This is extremely helpful info.

Thank you so very much.

I think I might just take her off the gluten.

She has eczema and chronic constipation as her 2 biggest symptoms. She is adopted with no family history in our possession.

How imp. do you think an official diagnosis is for a child?

ps she is Asian, and it is more rare for Asians, but not unheard of, right?

mommida Enthusiast
mommida
Posted

You HAVE to EAT GLUTEN for the Celiac testing! Do not start the diet until the testing is finished!

VitaminDGirl Apprentice
VitaminDGirl
Posted
  • Author

You HAVE to EAT GLUTEN for the Celiac testing! Do not start the diet until the testing is finished!

Yep. Got that. Just trying to decide if I want to get her officially tested is all. But thanks for saying as much, as my dr. did not when I was asking for futher celiac testing. Though I'd done my research and knew.

Thanks. :)

psawyer Proficient
psawyer
Posted

While celiac disease is most common in persons of European descent, it is possible for anyone to have it.

A formal diagnosis may be useful when dealing with schools who are reluctant to make accommodations. In the US, a diagnosis allows you to force reasonable accommodations under the Americans with Disabilities Act.

VitaminDGirl Apprentice
VitaminDGirl
Posted
  • Author

While celiac disease is most common in persons of European descent, it is possible for anyone to have it.

A formal diagnosis may be useful when dealing with schools who are reluctant to make accommodations. In the US, a diagnosis allows you to force reasonable accommodations under the Americans with Disabilities Act.

Interesting. I did know that.

For now, we homeschool, but you never know what the future holds and it may be helpful for her to have.

hmmm...

Do you know what the most accurate mode of testing is for kids and the best kind of dr. to see for it?

My drs in my small town don't seem real up on this.

Is there a list of dr's database or something with drs who know celiac well?

Thanks again so very much for your responses.

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