Ok...so Now What?

[Guest cbphl]

Greetings All!

Ok, so I'm newly diagnosed -- posted earlier -- but now have test results to substantiate my GI Doc's original Celiac suspicion. I actually did the testing in reverse order...had the confirmed biopsy, but then was asked by my GI's partner to submit a blood sample. Sadly, both of the GI docs I saw at the same practice offered very little information beyond the diagnosis and encouragement to follow a gluten free diet, which I have...but have other lingering issues/concerns as well, that have not been fully addressed.

Anyhow, results:

Antigliadin Abs, IgG -- 54 (range is 0-30)...so I'm way high. Does anyone know what this means

Antigliadin Abs, IgA 12, (range is 0-30)...so I was in the negative to weak positive range

t-Transblutaminase (tTg) IgG was 0 (Weak positive is 6-9)

t-Transblutaminase (tTg) IgA was 1 (Weak positive is 4-10)

So, I understand that the results above confirm Celiac, but beyond that, I have no clue. Admittedly, the practice had not yet received the results when I saw the GI doc, so we were not able to discuss the results. Does anyone here have input. I will follow-up with the doc as well, but honestly, after reading this forum, suspect that many on here have more knowledge about Celiac than the average practitioner.

I plan to follow-up with a series of addt'l tests, but 'til then, am curious about the following: I have always had stomach sensitivities. In the past, it almost felt like their was a dull, persistent pain. I didn't affect my lifestyle, but if I thought about it, I would say yes, I certainly have stomach issues. Since the gluten-free diet however, the stomach pain has become more pronounce and persistent. Any thoughts?

I also have chronic fatigue. Recent testing indicated that I do not have hypothyroidism, but I'm certainly on the cusp, based on the range below. The GI doc was dismissive, but it doesn't do me any good for the doc to say, 'yeah, you don't have hypothyroidism', when I can still take a 3-hr nap in the afternoon and not even think twice. When possible, I always take naps and would love to not have to.

Results:

B12: 1122 (range is 211-946). I did however take a b-complex, prior to the test results, so this is the likely culprit.

TSH: 4.4 (range is .450 - 4.5). So, I'm definitely on the cusp.

T4: 7.1 (range is 4.5 - 12.0).

Lymes: <0.91 (negative)

Anyhow, any additional feedback, thoughts, recommended tests, etc. would be helpful!

[frieze]

I believe the upper range on the TSH should be 3.5, in which case you are hypo....also get your T3 checked...my TSH fell when i went gluten extremely lite....2.54 to 1.8......

[Guest cbphl]

Yeah, I heard that there is a revised TSH range, in which case, my 4.4 would qualify me as hypo. So, would you suggest speaking with an Endocrinologist about synthroid?

[nora-n]

Lots of labs in Germany have 2,5 as the upper range, and 3,0 is the upper end of the normal range many places in the U.S.

If you go to a doctor who is a D.O, doctor of osteopathy, they look at the whole picture and decide if you have typical hypos symptoms all in all, and then they can start you on Armour or synthroid.

Definitely a TSH of 4,4 is way high.

I was very tired when my TSH was 2,5.

I was very fatigues until I had been gltuen free for seven months, then I woke up one morning and was more normal . I was too fatigues to fall asleep in the evening, I just tossed and turned most of the night...

I had been on thyroxine since 2000. The celaic thing was in 2005/6

[Guest cbphl]

I recently started taking Adderall for ADD symptoms. A nice byproduct for me has been increased energy. Oddly, I don't feel manic, just not tired. I don't know what it's like not to feel tired. I have to keep going, 'cause if I stop, game over. Yeah, I will consult a DO, as well as an Endocrinologist. I wish I had more direction from practitioners...guess I'll have to figure much of this out through my own research and scouring the Celiac forum.