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Has Your Child Had A Colonoscopy?

Gardening

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Gardening Apprentice
Gardening
Posted

I'm really nervous - the GI wants to rule out IBD/Crohn's and seems pretty confident that my daughter has celiac.

She has to be on a liquid diet for two days w/Miralax in preparation for surgery. She is only 2.5 and I don't know how to explain why she can't eat for two days. :( I'd do it with her in solidarity, but I don't want to be physically weak for her surgery.

Any tips? How long should the procedure last? I know I need to make a list of my questions and call a nurse...

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MacieMay Explorer
MacieMay
Posted

My 17 mos old had the scope last Tuesday, endo and colon. She did really great with the prep, and it was tough! I just offered lots of different varieties of juice (watered down of course)and kept her busy. We went to a local amusement park to keep her mind off of food and I didn't let her sisters eat in front of her.

The surgeon came out right away and told us what he saw, biopsy results took almost a week.

I hope this helps. Good luck!

Gardening Apprentice
Gardening
Posted
  • Author

My 17 mos old had the scope last Tuesday, endo and colon. She did really great with the prep, and it was tough! I just offered lots of different varieties of juice (watered down of course)and kept her busy. We went to a local amusement park to keep her mind off of food and I didn't let her sisters eat in front of her.

The surgeon came out right away and told us what he saw, biopsy results took almost a week.

I hope this helps. Good luck!

Thank you! I'm glad she did so well! How did the amusement park work out with all the (I assume) diarrhea? I was planning on staying at home.

Also, how long did the actual surgery last? And what were her results?

finally diagnosed Apprentice
finally diagnosed
Posted

Thank you! I'm glad she did so well! How did the amusement park work out with all the (I assume) diarrhea? I was planning on staying at home.

Also, how long did the actual surgery last? And what were her results?

Hi Gardening. I just wanted to clarify for you that this is a procedure not a surgery, there is no incision, they refer to this as a "flip flop", she will have the endoscopy then the colonoscopy right after.. they are given light sedation "twilight" usually by an IV and they don't remember anything...I hope this helps, everyone's procedure time is usually different due to the anatomical make up of our insides.. some are an 1hr some are more.. i like to think of it as long as the doc does the job right the first time.. a surgeon once said to me when i asked how long will the procedure take (i was having my gallbladder out) and his response was "as long as it takes me to do a good job and do it right".. good luck, as for the liquid thing, you can do it with her and then eat in hiding when she can't see you to keep your energy up.. ;) I hope this helps some, no matter what procedure our children or even we have is nerve racking enough.....

MacieMay Explorer
MacieMay
Posted

Ohhhhh! My daughter didn't have the Miralax prep. She had to take little tummies, day 1 and day 2 and then an enema the night before and morning of. I didn't even give her the little tummies on day 1 because she had 3 hugh BM's, earlier in the day. She still wears diapers so the pooping wasn't really an issue for us. Maybe if you start the prep early enough in the day she you can get out later in the afternoon. I guess it will probably depend on how she is feeling.

The procedure took about an hour and the Dr. came right out to talk to us to let her know how she did. I was more concerned about her going under anethesia for the first time, then anything. She did fine with the procedure and the dr. told us that everything looked ok but the biopsies would reveal more. Turns out, her biopsy results came back normal too. So, we are still looking for answers.

I hope this helps and you get the answers you are looking for.

Gardening Apprentice
Gardening
Posted
  • Author

MacieMay - Thank you, that is very helpful! My daughter isn't potty-trained, either, but she has a terrible time with diarrhea and blistering diaper rash.

finally diagnosed - True, no incision - I guess I was thinking of the biopsy component, though. A friend's child's duedenum was perforated during the same procedure, so I have a lot of anxiety about it. :(

finally diagnosed Apprentice
finally diagnosed
Posted

MacieMay - Thank you, that is very helpful! My daughter isn't potty-trained, either, but she has a terrible time with diarrhea and blistering diaper rash.

finally diagnosed - True, no incision - I guess I was thinking of the biopsy component, though. A friend's child's duedenum was perforated during the same procedure, so I have a lot of anxiety about it. :(

i hear you about the anxiety.. yes perforation is a risk, i was trying to be helpful regarding the surg/procedure.. that is why we can't compare time frames.. you want to make sure your doc goes slow and gets it done once and right.. good luck with this.. i hope all is well..

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MacieMay Explorer
MacieMay
Posted

My daughter had a terrible time with diaper rashes too starting shortly after her 1st birthday, after 6 weeks of treating it with desitin and nystatin, I finally linked it to whole milk. I stopped giving her the milk and the rash went away. I think she is lactose intolerant. We give her some milk products here and there, but she drinks lactaid now, her diaper area doesn't look great but nothing like the blisters and irritation before.

Ohhhh... it was horrible, the poor thing. I know how it is, I hope your little one does OK with the prep.

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