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Test Results - Symptoms (help?)

Caperon

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Caperon Newbie
Caperon
Posted

I have been diagnosed with Chronic Urticaria (22 male) as of December 2004.

About a month ago I started getting new symptoms: weight loss, pale, bloating, smelly stool

Someone directed me towards Celiac's. VERY rarely is CU linked to Celiacs. Well, I have had some blood work (after I noticed an improvement in a glutton-free diet after about 72 hours). I attempted to piss my system off again by eating my normal diet. It has worked after a good week of a normal diet. I can't seem to find the information I want on IgG without IgA. Is mine even high enough to do some scoping?

Here are some relevant test results:

VITAMIN B12:

B12 *269* (Ref: 243-894) -*Normal-*

Gliadin Ab IgG *31 H* (Ref: 30+ = mod to high positive)

Gliadin AB IgG *16 H* (<15 Units)

CBC TEST:

White Blood Count *11.2 H* (Ref: 3.8-10.6)

SEGS *80 H* (38-77)

LYMPHS *14 L* (22-39)

Other Results:

Endomysl ab, IGA = NORMAL

Gliadin ab, IGA = NORMAL

Reticulin Ab, IGN = NORMAL

Reticulin Ab, IGG = NORMAL

Transglut Iga = NORMAL

Allergy Prick Test (Wheat) = NEGATIVE

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KaitiUSA Enthusiast
KaitiUSA
Posted

With your tTG and EMA both normal as well as all the IgA's then I would say you probably do not have celiac. The tTG and EMA are the most specific tests you can get for celiac.

I would investigate into what is going on with your CBC counts though.

Your IgG can be high maybe due to something else..with the other tests negative I would seem to doubt celiac.

A possibility is though you may be IgA deficient which would make otherwise positive tests negative so I'm not saying you do not have celiac because you very well could and just be deficient.

If it was me I would probably do further testing to see if I could get to the root of the problem.

If you plan to do further celiac testing then DONOT go gluten free yet because that can screw up results and heal damage if you have it.

You may want to try the diet now(if you do not do further testing) and see how you feel and if things get better then you may be on the right track.

Another thing is maybe you have a sensitivity to it but not celiac yet.

mommida Enthusiast
mommida
Posted

Do not go gluten free til all celiac disease testing is done!

I do not believe the testing for celiac disease /gluten intolerance is as accurate as it needs to be. If it were accurate it should not take an average of 11 years for diagnoses in the US.

Get the the endoscopy with biopsy, and other tests to rule out any health problems. Make sure the doctor you are with is knowledgable about celiac disease and can clearly explain things to you. (I think your doctor should have explained your test results so you don't have to ask strangers on the internet.)

When the testing is over try the gluten free diet.

Laura

Caperon Newbie
Caperon
Posted
  • Author

Well, it isn't my doctors fault... I just got them and I am leaving the country. I am going to stay away from glutin while I am abroad.

The main reason is that glutin not only gives me bloating but it makes me break out in hives as well and I'd rather not deal with it in a third world country :)

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      Son's legs shaking

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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