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Gluten Intolerance


UIDancer

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UIDancer Apprentice

I had the necessary Celiac tests done, they came back negative, so my GI doc said I am just gluten intolerant. He came to this determination after seeing the results coupled with the fact that my condition improved/disappeared after going gluten-free. He lead me to believe that gluten intolerance is basically an allergy: if I ingest some, I will be sick for a bit but no actual harm will come to my body. This is the assumption I've been going on since being diagnosed a couple months ago.

But now I'm completely confused because of a post on another forum. The post is as follows:

"Just because you're not diagnosed Celiac does NOT mean that gluten isn't JUST AS harmful to your body. Either your body manifests its reaction in other ways, or just damages areas other than the intestines."

Can someone please explain what my condition means and if the above statements are true? I'm kind of scared I've been taking this too lightly.


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KaitiUSA Enthusiast

Well that basically means your body does not want gluten. If you are gluten intolerant you need to follow the same diet as a celiac....if you do not then it may lead to eventually getting celiac disease.

If something makes you sick..stay away from it.

PreOptMegs Explorer

I am considered gluten intolerant as well. My bloodwork was positive, but biopsy negative. Anyway, I am reading the book "Dangerous Grains" and it is such an informational book. It basically says that they are trying to get doctors to realize that gluten intolerant and celiac are both an equally negative reaction to gluten, and thus should be treated the same. There are so many, many symptoms of celiac now, and some people don't have any symptoms at all, thus the book is just trying to get doctors and patients aware of the gluten phenomena that is becoming incredibly prevalent in America. It also says that now there are more overweight celiacs than underweight and the number of undiagnosed gluten problems is astounding. It is a fantastic book and I do not believe my little synopsis is doing it justice, but you should check it out because it is incredibly informative!!

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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