Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Pure Lactose


KevinG

Recommended Posts

KevinG Apprentice

I know I have a mild/moderate reaction to dairy products, but I've never been able to isolate whether my reaction is to casein, lactose, or something else. Last week I tried some cheese (high casein/low lactose) and didn't have much of a reaction.

To further isolate the source of my symptoms, I bought pure lactose powder, and plan to consume about 10 grams, the same amount as in a glass of milk. My physician says it's safe.

Can anyone think of a reason this would be less safe than drinking a glass of milk?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Can anyone think of a reason this would be less safe than drinking a glass of milk?

No, but I think I would just drink the glass of milk :D

tarnalberry Community Regular

Not unsafe, but not useful. Lactose intolerance isn't an all or nothing type of thing. Your body needs to produce only enough lactase to digest the amount of lactose you consume. Almost ANYONE is going to get lactose intolerance symptoms by consuming 10g of lactose, because your body doesn't generally handle that much. "Lactose intolerance" generally means that you don't have enough lactase to digest normal amounts of lactose. This is one reason why milk is a better test - it has what we consider "normal" amounts of lactose for a meal.

'lynrn Apprentice

OK folks!!! This is the newbie question of the week.. Why can't we just have a lactose intolerance test done? I used to work in the lab and we routinely ran these. Do these not pick up the lactose intolerance that frequently goes along with celiac??

Skylark Collaborator

OK folks!!! This is the newbie question of the week.. Why can't we just have a lactose intolerance test done? I used to work in the lab and we routinely ran these. Do these not pick up the lactose intolerance that frequently goes along with celiac??

Around here we don't trust doctors or clinical tests as far as we can throw 'em. :lol: The whole medical system has failed many of us miserably. So many of us are self-diagnosed we're just in that self-diagnosis mindset.

Yes, the clinical lactose intolerance test works fine for celiacs.

KevinG Apprentice

Not unsafe, but not useful. Lactose intolerance isn't an all or nothing type of thing. Your body needs to produce only enough lactase to digest the amount of lactose you consume. Almost ANYONE is going to get lactose intolerance symptoms by consuming 10g of lactose, because your body doesn't generally handle that much. "Lactose intolerance" generally means that you don't have enough lactase to digest normal amounts of lactose. This is one reason why milk is a better test - it has what we consider "normal" amounts of lactose for a meal.

THANK YOU Tiffany. I love reading replies from people who know their stuff.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.