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No Celiac Symptoms

marcar6

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marcar6 Newbie
marcar6
Posted

Hello,

My son is 8 years old and weighs 41-lbs and hasn't grown for 6 months according to his doctor's reports. He is a picky eater at times. My son has always been small, so when he was 6 years old, his physician did a bone age determination resulting in a bone age of a 4 year old. He is quite active and is actually ADHD and very intelligent. Two weeks ago, he had bloodwork done and his doctor called me yesterday (Sunday) regarding his results. All bloodwork was in normal range except for the Celiac Tests. If I am remembering correctly, she said that the amounts would be in the normal range of 0-10 and his score was 70, and another score was at 79. To be honest, I know she said something about G and A,and TTT, but I didn't understand it at all, so I don't know which was which.

The Endocrinologist called me today and asked a million medical questions regarding genetics and current symptoms. My son is actually a healthy boy except for being delayed in growth. He does not get stomach problems except if he has the flu or something, which is seldom. (once every couple of years) They are going to call me with a date to get a biopsy of his intestine soon. My question is this....Are there other instances where someone would test high for celiac, but really not have it or have something else? Are there others out there with this type of symptom-free- diagnosis out there? By the way, there is no one in either family that has this disorder. I have Leinden Mutation, Pre-Ovarian Failure at 35 yrs., and my older sister has Crohn's Disease. No cancer of colon in family histories. Is there anybody that knows what could be going on here? Another thing was that the specialist asked about height and he thinks that this small stature has nothing to do with Celiac Dx. He thinks that he will grow to be at least 5'10" tall, give or take 2 inches.

Any help or concerns would be appreciated at this time as we are all a little confused and anxious.

Sincerely,

Marla

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ravenwoodglass Mentor
ravenwoodglass
Posted

He actually may be symptomatic, the failure to grow and the ADHD can both be the result of undiagnosed celiac. False positives on blood work are basically unheard of but false negatives are common. Keep him on gluten until after the biopsy is done. The day the biopsy is done take him gluten free. You are in a great place to learn what you need to do to transition to the lifestyle. You should also have everyone in the family tested now even if they don't seem to be symptomatic. Silent celiac or celiac without strong GI symptoms can cause just as much damage to the body as to those who have daily D.

  • 2 weeks later...
bincongo Contributor
bincongo
Posted

He actually may be symptomatic, the failure to grow and the ADHD can both be the result of undiagnosed celiac. False positives on blood work are basically unheard of but false negatives are common. Keep him on gluten until after the biopsy is done. The day the biopsy is done take him gluten free. You are in a great place to learn what you need to do to transition to the lifestyle. You should also have everyone in the family tested now even if they don't seem to be symptomatic. Silent celiac or celiac without strong GI symptoms can cause just as much damage to the body as to those who have daily D.

I am a new Celiac. I told my daughter to ask her doctor about being tested. She was told if she didn't have any symptoms that she didn't need testing. Is this not true or is this just a doctor who doesn't know enough about Celiac. I haven't had time yet to go through this whole web site to check this out.

Skylark Collaborator
Skylark
Posted

I am a new Celiac. I told my daughter to ask her doctor about being tested. She was told if she didn't have any symptoms that she didn't need testing. Is this not true or is this just a doctor who doesn't know enough about Celiac. I haven't had time yet to go through this whole web site to check this out.

Celiac can be silent. People with silent celiac don't have GI symptoms but they are are still at high risk for vitamin deficiencies and osteoporosis. All of your first-degree relatives should be screened, whether or not they have symptoms.

GFinDC Veteran
GFinDC
Posted

Right, try a search on silent celiac or latent celiac. Symptom free people are in danger just like people with symptoms. And there are many, many symptoms besides digestive issues that are related to celiac.

bincongo Contributor
bincongo
Posted

Right, try a search on silent celiac or latent celiac. Symptom free people are in danger just like people with symptoms. And there are many, many symptoms besides digestive issues that are related to celiac.

Thanks to all you guys. I really think my daughter has Celiac because all the symptoms she has had for years but when I told her mine she said she didn't have any of those. She also had had a lot of problems getting pregnant and she was married six years before getting pregnant. Can anyone be specific about what blood tests should be ordered.

sb2178 Enthusiast
sb2178
Posted

antibody tests:

IgA and IgG AGA

IgA TTG (IgG TTG if available)

IgA EMA

total IgA

there are also DGP (deaminated gluten peptide, maybe?) antibody tests, which may or may not be available.

She absolutely must be eating significant amounts of gluten for the tests to even have a chance of being valid.

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