Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Hunger!


brett31em

Recommended Posts

brett31em Rookie

Did anybody find that while on gluten, you couldn't eat enough food? Like, full meals wouldn't fill your ravenous appetite? Now that I am on the gluten free diet, I feel like my appetite isn't outrageous anymore. Share your thoughts! Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



coffeetime Explorer

Did anybody find that while on gluten, you couldn't eat enough food? Like, full meals wouldn't fill your ravenous appetite? Now that I am on the gluten free diet, I feel like my appetite isn't outrageous anymore. Share your thoughts! Thank you!

I can definitely identify with you as could my also gluten free brother. I use to eat a full meal then leave the table and still be hungry. It didn't matter if I was sick, I could still eat, there was never a feeling of being full. I would often have a bowl of GoLean cereal in the morning for breakfast and it has something like 13g of fiber and be starving 20 minutes later. Now a small bowl of chex and I forget to have lunch, lol, I always wanted to forget to eat, now I do.

Wolicki Enthusiast

Yes, I was constantly starving for 1o years. There was not enough food on the planet to satisfy. Come to find out, the celiac body is starved for nutrients due to malabsorption. Once I went gluten free, the hunger intensified for about a month. I became an eating machine! Once my nutrient levels evened out, my appetite normalized. I sometimes forget to eat now. Weird how the human body works!

  • 3 months later...
CeliaCupCake Apprentice

I'm new here and hope it's okay to post to an old(ish) thread.

Yes, developing a ravenous appetite has been an issue for me too for about three years, and now I've been diagnosed with celiacs (well, half diagnosed with positive bloods and negative biopsy) it's all adding up.

Last year I went to see my doctor about putting on two stone and being starving all the time, and how nothing on earth would shift the weight, even when I went on a 1000 calorie a day diet. I put it down to quitting smoking and depression that also started at around the same time. I was convinced it was my thyroid as I had all the symptoms (overweight, depression, mental and physical sluggishness, very dry skin, etc) and it turned out to be celiacs.

I've been gluten free for a couple of weeks and have had days where the hunger isn't half as bad so I live in hope that once I start to heal, I'll be less hungry and be able to shift this excess weight.

I understand that the hunger is due to malabsorption. Please anyone correct me if I'm wrong as I'm a learner celiac.

Dixiebell Contributor

CeliaCupCake

I have heard that quitting smoking can be a possible 'trigger' of celiac for some people.

I believe the weight gain and hunger is because your body has been starving for nutrients and holds on to what ever it can to survive. 1000 calorie diet is not good for you, I think someone posted recently that kind of diet can cause you to gain weight because your body is not getting what it needs to function properly. Try eating more protein to keep you feeling full longer and smaller more frequent meals during the day.

divamomma Enthusiast

This is my daughter as well and was one main reason that I took her to the dr in the first place. She is a good weight, neither above or below for her age but constantly hungry.

CeliaCupCake Apprentice

Dixiebell, thanks for the advice. I wouldn't be surprised if quitting smoking can trigger celiacs as well as other illnesses that are caused by stress because quitting smoking IS stressful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,022
    • Most Online (within 30 mins)
      7,748

    Pesto
    Newest Member
    Pesto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.