Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Frequent Bathroom Urges


Silverfyre

Recommended Posts

Silverfyre Rookie

Hello all,

I've been a diagnosed celiac for five years now and I've been battling the same problem day in and day out since then. I'm very careful with my diet, I only buy gluten free foods and take painstaking measures with what foods I cook with. My wife has gone gluten free with me as well (God bless her for it!). But, I'm beginning to wonder if there is not something I'm missing or if I suffer from some other bowel related problem. See, I will eat a meal and then, twenty minutes later, I'm instantly in the bathroom, having to do the dirty deed. I've been on Imodium to try and regulate this but it doesn't work half as much as it used to. I chalk that up to being on it long term and have recently come off it and am trying probiotics (Digestive Advantage for IBS). Still, nothing. I'll have one good day and a bunch of bad days. I have been trying to cut lactose and casein completely out of my diet as well but it hasn't been helping much. I've been tested for other allergies twice now and nothing has come up. Does any one have any ideas or perhaps suffer the same? I'm running out of hope here and with starting a new job soon, I'm quite fearful that this is going to prevent me from working...

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator

I also battled some issues like you.. I did find out the Naturally Gluten Free Sour Cream wasn't.. My wife and daughter started reading labels and calling. The last thing we thought was the culprit.. That Naturally Gluten Free Sour Cream carried a warning that it may contain traces of wheat, of course it was in small print.. We were sure that we read the label in the past and that warning wasn't there... Removed that produt from my diet and life is much better.. Still struggling with some other product here & there, but life is getting better... Just seems to take the DH a little longer to settle down after an oops...

lamegirl Newbie

My dad has had similar issues, ever since he had his gallbladder out. He also has liver issues, stemming from too much iron in his blood.

He hasn't found the reason either, but we suspect it might have something to do with diary- he won't go off of it though, instead defaulting for high doses of cholistid (sp?). The medication he uses is supposed to help reduce overall cholesterol levels, and flush them out of your system, and he finds it helps his D as well; but he hasn't been able to get off of that either - he might be on that for life?

ravenwoodglass Mentor

You mentioned being tested for other allergies but have you been tested for other intolerances or tried eliminating things that are common for us to be intolerant to? Soy, eggs and casien would be the most common ones. If you don't want to do an elimination of them you could get tested for them through Enterolab. I didn't realize the continued issues I was having were from soy until I got tested and then eliminated it. That took care of a lot of the issues.

This is going to sound like a strange suggestion but you may want to see if a referral to a physical therapist who deals with these issues might help. The first visit I had I was very apprehensive and embarrassed as I had almost no control at all at that time but the therapist helped me a great deal.

It is a hard thing to deal with and I hope you get some resolution soon.

Cheryl-C Enthusiast

I'm by no means an expert here, but I'll throw in my two cents anyway. What you're experiencing may not be related to allergies/intolerances at all. Have you talked with your doctor about having a colonoscopy? There could be something else, unrelated, going on in your bowel that should be looked after.

Hope you feel better soon!

Silverfyre Rookie

Thanks for all the support and ideas, guys. I'm going, once my insurance kicks in, get myself tested for casein, soy, and other allergies. I'm going to try eliminating casein first and see how that goes. Thanks again!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,720
    • Most Online (within 30 mins)
      7,748

    Donna Spivey
    Newest Member
    Donna Spivey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.