Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intestinal Parasites...


tweeks2010

Recommended Posts

tweeks2010 Apprentice

Just wondering if anybody read about intestinal parisites casuing gluten intolerance/allergies/celiac. I read about it today and wanted to know if anybody has been through that or heard of it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

i have not heard of it.... but im sure it's a possible environmental trigger to someone genetically predisposed to Celiac or Gluten Intolerance..

burdee Enthusiast

Just wondering if anybody read about intestinal parisites casuing gluten intolerance/allergies/celiac. I read about it today and wanted to know if anybody has been through that or heard of it?

I didn't get intestinal parasites until 4 years AFTER I'd been diagnosed with gluten intolerance and obsessively abstained from gluten and 6 other diagnosed food allergies. However, I was not diagnosed until I was 56, after years of symptoms and misdiagnoses. So lifelong gluten damage plus too many antibiotics without taking probiotics could have made me vulnerable to 2 different parasites. I've also had 5 pathogenic intestinal bacteria and candida. I've successfully treated all those bugs except the last parasite (dientamoeba fragilis). I need to take another stool test (next week) to learn whether I eliminated that critter.

cassP Contributor

I didn't get intestinal parasites until 4 years AFTER I'd been diagnosed with gluten intolerance and obsessively abstained from gluten and 6 other diagnosed food allergies. However, I was not diagnosed until I was 56, after years of symptoms and misdiagnoses. So lifelong gluten damage plus too many antibiotics without taking probiotics could have made me vulnerable to 2 different parasites. I've also had 5 pathogenic intestinal bacteria and candida. I've successfully treated all those bugs except the last parasite (dientamoeba fragilis). I need to take another stool test (next week) to learn whether I eliminated that critter.

wow- how do you come to find out all the different parasites you have had??? really good health insurance & a very cool alternative doctor??? id love to have all that info.

i was lucky to stumble upon an alternative doc who did the heidelberg test on me- which was GREAT to finally realize i had low stomach acid-> finally broke me of my 4 year Zantac habit- i had no idea i was shutting my stomach down with all that medication!!

ive had no clue with any bugs. my stomach was on fire months ago, so i ASSUMED H.Pylori- i did GSE for a month & was healed. ive never known about parasites.. but ive done paraflush tinctures before just in case

???

Aeva Rookie

I've never heard of that, but that wouldn't surprise me. I've had 15-20 bouts of parasites (always one of two species) in the last 10 years. After being diagnosed as Celiac, I thought it may have been the other way around...damaged intestines caused me to be more susceptible to the little buggers. Who knows!

cassP Contributor

I've never heard of that, but that wouldn't surprise me. I've had 15-20 bouts of parasites (always one of two species) in the last 10 years. After being diagnosed as Celiac, I thought it may have been the other way around...damaged intestines caused me to be more susceptible to the little buggers. Who knows!

hey- i was looking at your "signature"... you have Thallessemia??? minor or major??

im curious- i know it's linked to people from the mediterranean... but are Thallessemia genes also sometimes linked in with Celiac or other autoimmune genes???

im just wondering now... for example- i have celiac, my mom has Hashimoto's (and my mom and dad both have at least 1 DQ8 gene).... my sister's biopsy was negative, but she was already off gluten. my sister DOES have Thallessemia Minor...

my whole family displays sensitivities to gluten...

im just wondering if thallessemia genes are linked in somewhere...????

StacyA Enthusiast

A week after moving my grandmother into an assisted living I had sudden GI symptoms, night sweats, weight loss, abd pain. My doctor thought I may have picked up giardia from the assisted living (very common, I guess) and treated me for that. Half my symptoms cleared up immediately - so I think she was right - but half the symptoms stayed so I saw a GI doctor - celiac panel was positive but my biopsy showed I only had mild intestinal damage - which hinted at a recent triggering of my celiac's. I have read research on parasites being one of many common triggers for celiac's.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

wow- how do you come to find out all the different parasites you have had??? really good health insurance & a very cool alternative doctor??? id love to have all that info.

i was lucky to stumble upon an alternative doc who did the heidelberg test on me- which was GREAT to finally realize i had low stomach acid-> finally broke me of my 4 year Zantac habit- i had no idea i was shutting my stomach down with all that medication!!

ive had no clue with any bugs. my stomach was on fire months ago, so i ASSUMED H.Pylori- i did GSE for a month & was healed. ive never known about parasites.. but ive done paraflush tinctures before just in case

???

Sorry. I missed your questions earlier. My parasites, bacteria and candida were diagnosed by Metametrix DNA microbial stool tests prescribed by my previous naturopath. Although he could read the test results suggestions for treating my specific bacteria or candida strains, he was clueless about treating parasites. He also gave me bad advice about taking probiotics, which left me vulnerable to new gut infections.

I recently found an ND who knows parasites and also considered why I kept getting all those infections. She also suggested I do the Heidelberg capsule test (which diagnosed my hypochloridia) and blood tests (which diagnosed low thyroid possibly caused by Hashimoto's during years of undiagnosed celiac disease).

Rather than guess whether you have parasites, a stool test can tell you want you have and how to treat bacteria and candida. Parasite treatment depends on your doc's experience. However, all purpose parasite treatments may not address your specific parasite. Every parasite responds to different drug treatments.

I'm glad you got off Zantac. Are you now taking HCl supplements? Where did you do the Heidelberg capsule test?

cassP Contributor

Sorry. I missed your questions earlier. My parasites, bacteria and candida were diagnosed by Metametrix DNA microbial stool tests prescribed by my previous naturopath. Although he could read the test results suggestions for treating my specific bacteria or candida strains, he was clueless about treating parasites. He also gave me bad advice about taking probiotics, which left me vulnerable to new gut infections.

I recently found an ND who knows parasites and also considered why I kept getting all those infections. She also suggested I do the Heidelberg capsule test (which diagnosed my hypochloridia) and blood tests (which diagnosed low thyroid possibly caused by Hashimoto's during years of undiagnosed celiac disease).

Rather than guess whether you have parasites, a stool test can tell you want you have and how to treat bacteria and candida. Parasite treatment depends on your doc's experience. However, all purpose parasite treatments may not address your specific parasite. Every parasite responds to different drug treatments.

I'm glad you got off Zantac. Are you now taking HCl supplements? Where did you do the Heidelberg capsule test?

thanks for all the info. im suspecting i have hypothyroid too, i hope its still only borderline.

anyways, i was lead to a doctor in Lakeland, Fl- who wanted to do the Heidelberg test on me. im so glad i did- i had no idea that i had literally been shutting down my stomach. i had sufficient acid in the morning - but as soon as he gave me the alkaline tablet- my stomach could not counter it at all. and i had normal passing time.

he put me on HCI & Digestive Enzymes- i took for a long time, but was still eating gluten lite.

now i am 100% gluten free, and mostly excess fructose free. i rarely take the HCI or enzymes anymore. i took them when i was healing from H.Pylori months ago.

i also have some Chinese Bitters... i sometimes take them 30min before a big protein and fat meal. i dont really have digesting problems anymore, but i know the Bitters are good for my liver.

as long as i stay off the gluten and excess fructose- i dont have any problems.

burdee Enthusiast

thanks for all the info. im suspecting i have hypothyroid too, i hope its still only borderline.

anyways, i was lead to a doctor in Lakeland, Fl- who wanted to do the Heidelberg test on me. im so glad i did- i had no idea that i had literally been shutting down my stomach. i had sufficient acid in the morning - but as soon as he gave me the alkaline tablet- my stomach could not counter it at all. and i had normal passing time.

he put me on HCI & Digestive Enzymes- i took for a long time, but was still eating gluten lite.

now i am 100% gluten free, and mostly excess fructose free. i rarely take the HCI or enzymes anymore. i took them when i was healing from H.Pylori months ago.

i also have some Chinese Bitters... i sometimes take them 30min before a big protein and fat meal. i dont really have digesting problems anymore, but i know the Bitters are good for my liver.

as long as i stay off the gluten and excess fructose- i dont have any problems.

If your stomach couldn't produce enough acid to bring it back down to normal pH, you're probably have achloridia (your stomach doesn't produce hardly any stomach acid). In my capsule test, my stomach acid went down to normal pH 30-35 minutes after I drank the bicarb solution (alkaline). I did 5 bicarb challenges. So my stomach produces some acid (hypochloridia), but not quickly or enough for normal digestion. So I was prescribed a target of 2-3 HCl capsules with each meal. That's working well for me.

I could NOT take HCl while my stomach was healing from H. Pylori. I used mastic gum to kill that bacteria and L-glutamine to heal my stomach. However, I eventually began the HCl and digest much better now.

I understand how the bitters could stimulate your digestion, but I wonder if your stomach can produce enough of its own acid even with stimulation, because it did not return to normal pH after the alkaline challenge. How long did you wait for your stomach to return to normal pH? Did it just stay in the alkaline range all that time?

Have you done recent TSH, T4, T3 blood tests to check your thyroid function? Docs usually won't prescribe thyroid supplements based on patient symptom reports alone. Too many people think thyroid supplements will help them lose weight. Actually they just speed up resting metabolism, so we feel warmer, but not enough to lose much weight without changing exercise and eating habits.

cassP Contributor

If your stomach couldn't produce enough acid to bring it back down to normal pH, you're probably have achloridia (your stomach doesn't produce hardly any stomach acid). In my capsule test, my stomach acid went down to normal pH 30-35 minutes after I drank the bicarb solution (alkaline). I did 5 bicarb challenges. So my stomach produces some acid (hypochloridia), but not quickly or enough for normal digestion. So I was prescribed a target of 2-3 HCl capsules with each meal. That's working well for me.

I could NOT take HCl while my stomach was healing from H. Pylori. I used mastic gum to kill that bacteria and L-glutamine to heal my stomach. However, I eventually began the HCl and digest much better now.

I understand how the bitters could stimulate your digestion, but I wonder if your stomach can produce enough of its own acid even with stimulation, because it did not return to normal pH after the alkaline challenge. How long did you wait for your stomach to return to normal pH? Did it just stay in the alkaline range all that time?

Have you done recent TSH, T4, T3 blood tests to check your thyroid function? Docs usually won't prescribe thyroid supplements based on patient symptom reports alone. Too many people think thyroid supplements will help them lose weight. Actually they just speed up resting metabolism, so we feel warmer, but not enough to lose much weight without changing exercise and eating habits.

i didnt communicate well i guess in that last post... my doc DID say i had Hypochlorhidia... so my stomach must have made the acid after the alkaline tablet.. but it just took too long.

and maybe i didnt take HCI while my stomach was burning- but after about 2 weeks. i DID take digestive enzymes.

i took GSE 3 x a day & some Ionized Silver for the H.pylori, some Pepto, and very little Zantac- (only during the ulcer).

my PCP has been wanting to test my thyroid for years now, cause my mom is Hypo.. i hate needles & i pay a huge deductable, so sometimes i disregard doctors orders.

the last time she checked my thyroid- it was BORDERLINE Hypo- like RIGHT ON THE LINE- but she never said anything.

since then, my GI has said he's sure i have Celiac. on top of that- my hair sheds more than normal, my eyes are puffy, i have shortness of breath and am always tired.

cassP Contributor

ps- id rather NOT have to take any synthroid. i hate pharmaceuticals. my mom is hypo, and lean. we're both lean, we dont have fast metabolisms at all, but we're mindful of what we eat & try to exercise.

being gluten free and carb lite helps me keep my weight down. and also-> all the digestive ailments my family and i have had help us keep our portions under control.

all of us in my family have had so many stomach issues & inflammation issues- we've always been DUMBFOUNDED how some people can be so overweight and eat what they want and walk around and be happy-> cause for example: if i eat a little bit of the wrong thing, or if my pants dig in to my stomach- i could be confined to my home for the rest of the night on a heating pad... so, i really have to do everything right anyways you know..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.