Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Free? Whats That?


VydorScope

Recommended Posts

VydorScope Proficient

I see alot of ppl mention they need gluten-free/CF foods. Recenlty I figured out that CF = Casein Free... whats Casein, and how does it play in to all of this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Casein is milk protein, also known as dairy protein. It often appears in ingredient lists as Sodium Caseinate, but there are other designations. Some celiacs are casein intolerant. Casein has also been identifed as a factor in Autism, and Autistic children often show dramatic improvements after going on a gluten-free/CF diet.

Some products which appear at first glance to be dairy-free, and which are lactose-free, contain casein. Coffee Mate comes to mind: it is lactose-free and often thought of as non-dairy, but Sodium Caseinate is in the ingredient list.

I personally have no problems with either lactose or casein, but I have a friend with two young sons who are Autistic. She put them both on a gluten-free/CF diet and has seen huge improvements in them.

KaitiUSA Enthusiast
I see alot of ppl mention they need gluten-free/CF foods. Recenlty I figured out that CF = Casein Free... whats Casein, and how does it play in to all of this?

The question about what casein is was pretty much answered in the previous post. It is a milk protein. However, not all celiacs are affected by milk and it doesn't play a role in all of us. I was intolerant my whole life(on and off) until going gluten free...once the damage healed I was able to tolerate milk again in any amounts and now have no problems whatsoever with it. You can see that happen frequently among celiacs.

Guest BellyTimber

:)

Vincent,

Hoping what Peter & Kaiti told you helps! I would solely add, the tolerating of dairy that comes back after a while on gluten free refers to the lactose (milk sugar), while as far as I know the casein situation will remain as before. (Simply heard or read that, haven't rersacrhed it extensively.)

Do you believe you have cause to be further interested? I have relevant literature but before you go that way, be very sure you have a very serious reason and good supervision.

Prior to taking blood tests I had a urine test that gave a result for gluten off the top of the graph and one for casein slightly above the 'limit'. (Such a test isn't particularly usual.) I followed up the gluten and wheat issues but dairy retains a big part in my diet, varied a little by quinoa and rice drinks. I could easily have the lactose problem - hopefully rectifying itself after 2 and a half years? - as well as a border-line casein one but feel the gluten and wheat issues are head and shoulders above all that in impact.

In terms of practicalities: I have a gluten-free-CF cookbook but I simply convert "milk substitute" into milk to make sense of it - as no doubt many people are doing exactly the reverse with other recipes!!!

VydorScope Proficient

Thanks all!

Do you believe you have cause to be further interested?

Nope, just thought it might be somthing to worry about with my son (connected to gluten some how...), but since he drinks whole milk, and eats string cheese, I doubt its of any concern. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,856
    • Most Online (within 30 mins)
      7,748

    lyndats
    Newest Member
    lyndats
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.