Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Hypothyroid- Any Tips?


Charlie's Girl

Recommended Posts

Charlie's Girl Apprentice

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Gemini Experienced

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

Skylark Collaborator

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

Charlie's Girl Apprentice

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Thanks for the feedback Roda. I will get a copy of my tests from now on so as to stay up on my levels. I am sooooo looking forward to feeling some pep!

Charlie's Girl Apprentice

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

I read so many positive things about Naturethroid- that's why I switched. People seem to love it. My ND said to give this dosage two weeks before I try a higher level. Should I wait longer? I'll go back to see her in 4-6 weeks for another blood test. Should I wait until then? I understand that as I am still fairly new to gluten free living (and had to remove a few human obstacles to live without cc), that it may take a while for me to feel peppy again.

Thanks for your input Gemini. I appreciate all the help I receive here.

Charlie's Girl Apprentice

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

My "whatevers" were "whoevers" and I am hoping that I have addressed the situation. My 86 year old Mom lives with me and it was/is a huge learning curve for her. She has just gotten the separate shelves in the frig concept. Bless her heart. She is trying. I also had to deal with "one of those" who accused me of being obsessive when I caught her using peanut butter that was clearly labelled with my name. I asked her how long she had been using it and she told me to stop trying to blame my problems on her- sigh :( She isn't staying with me anymore.

I also had an acupuncturist who kept giving me supplements that weren't gluten free. She carries a certain line and their digestive enzymes say - in very small writing- not suitable for people with gluten intolerance. I was in such a haze when I first went gluten free- I trusted her to give me supplements that were ok. Now I don't trust anyone- except forum members. :)

I definitely feel sleepy when I am cc'ed. I am hoping that the combo of thyroid meds and gluten free living will be the ticket to living a more energetic life. I am avoiding soy and dairy products until I feel better. I am going to start the elimination diet to check for other food issues. I am staying on top of my supplements to address low Vitamin D, leaky gut, etc....

I'll be going back in 4-6 weeks for follow up blood tests.

Thanks for all your help Skylark.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Adeling commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    3. - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,178
    • Most Online (within 30 mins)
      7,748

    Charlene Kearley
    Newest Member
    Charlene Kearley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Flash1970
      Try heallix solution. It's at heallix.com It's a silver and fulvic acid solution.  I just put it on a cotton ball and wiped the shingles area. I also took a little internally once a day. I can't remember how many times a day I applied to the area. Probably  3-4 times a day. It was the only thing that stopped the nerve pain. I don't know if the vaseline is good.  The shingles need to dry out and heal.  Wash everything that comes in contact  with them in hot water. Don't use or wear anything twice. 
    • Sue7171
      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.