Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Hypothyroid- Any Tips?


Charlie's Girl

Recommended Posts

Charlie's Girl Apprentice

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Gemini Experienced

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

Skylark Collaborator

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

Charlie's Girl Apprentice

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Thanks for the feedback Roda. I will get a copy of my tests from now on so as to stay up on my levels. I am sooooo looking forward to feeling some pep!

Charlie's Girl Apprentice

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

I read so many positive things about Naturethroid- that's why I switched. People seem to love it. My ND said to give this dosage two weeks before I try a higher level. Should I wait longer? I'll go back to see her in 4-6 weeks for another blood test. Should I wait until then? I understand that as I am still fairly new to gluten free living (and had to remove a few human obstacles to live without cc), that it may take a while for me to feel peppy again.

Thanks for your input Gemini. I appreciate all the help I receive here.

Charlie's Girl Apprentice

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

My "whatevers" were "whoevers" and I am hoping that I have addressed the situation. My 86 year old Mom lives with me and it was/is a huge learning curve for her. She has just gotten the separate shelves in the frig concept. Bless her heart. She is trying. I also had to deal with "one of those" who accused me of being obsessive when I caught her using peanut butter that was clearly labelled with my name. I asked her how long she had been using it and she told me to stop trying to blame my problems on her- sigh :( She isn't staying with me anymore.

I also had an acupuncturist who kept giving me supplements that weren't gluten free. She carries a certain line and their digestive enzymes say - in very small writing- not suitable for people with gluten intolerance. I was in such a haze when I first went gluten free- I trusted her to give me supplements that were ok. Now I don't trust anyone- except forum members. :)

I definitely feel sleepy when I am cc'ed. I am hoping that the combo of thyroid meds and gluten free living will be the ticket to living a more energetic life. I am avoiding soy and dairy products until I feel better. I am going to start the elimination diet to check for other food issues. I am staying on top of my supplements to address low Vitamin D, leaky gut, etc....

I'll be going back in 4-6 weeks for follow up blood tests.

Thanks for all your help Skylark.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,431
    • Most Online (within 30 mins)
      7,748

    Dave162
    Newest Member
    Dave162
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Thoughtidjoin
      Can I wash gluten off dried chickpeas or green lentils when the packet says “may have been cross contaminated?” Has there been any research into this?  If so what are the results? If no research has been done why not? I am getting mixed advice from different sources, how serious is this or are the food manufacturer being over cautious? Many thanks Catherine
    • catnapt
      I've got some lab work results going back to 2010, various MRIs and CT scans and ultrasounds. I discovered two things that MIGHT be of interest to the GI doc tell me what you think? one is the results to an abdominal CT scan with contrast in 2013 that includes this:  "there is some thickening seen in the second and third portions of the duodenum"    Since this CT scan was for left lower quad pain, it was not followed up on   Then in May of 2024 I saw a foot specialist for problems with my feet. Some of that pain is due to a very obvious deformity of both of my legs- the right worse than the left. The dr suggested that my symptoms sounded like an auto immune condition (???) and I thought he was nuts but he ordered some lab work- it came back negative except for a weak positive on one test HLA-B27 and there was a follow up test recommended but that was never ordered and this dr gave me a useless Rx for custom insoles which he refused to address - and my calls to his office were never returned.   At that time I was having all over joint pains, plus some numbness in my feet (also stiffness) and some burning pain in my toes- esp the big toe on the right foot (the more deformed side of my body)   The last time I was eating any appreciable amount of gluten containing foods was in the period of Nov 2024 to around sometime in the summer of 2024. I regularly ate a barley soup that I loved and had subs and pizza and toast etc. I was no longer eating wheat pasta, had already switched to brown rice pasta but otherwise I had not yet made a clear connection between what I was calling 'refined grain products' and any symptoms that I had. And the symptoms were vague and could be attributed to other things.   I was referred to a neurologist in late 2023 for symptoms  of confusion/disorientation, that included loss of balance that I attributed, in part, to the inability to feel where my feet were. Some symptoms such as high spikes in blood pressure (some close to 200 over 100! scary stuff) were later determined to be due to covid or long covid (also had loss of sense of smell and taste)    I had periods of dizziness that did NOT include any spinning sensations, it was more of a feeling of lightheadedness as if my mind would go blank- very strange, never really got any answers about that but that eventually went away so not worried about that   WHAT OTHER THINGS from my past records might be good for the GI dr to know? I had my very first Vit D test done in 2023 and it was low at 23, supplements have gotten that up in the range of adequate but values varied up and down... most recent test was Nov 2025 and it was 45ish I think. That's on a min of 5000Ius per day (there are some fortified foods I eat sometimes that have added vit D)   I thought my serum calcium ran on the low side but it turns out that the reference ranges have changed for the labs that I use- one changed their RR back around er, 2014 I think? so I have no clue how to compare the results before and after those changes   calcium has never been below normal and most of my blood work looks "normal" except during illness or other issues like if I'm in afib- blood work looks insane LOL    I don't know what to make of all this but it sure will be nice to get some answers!         
    • catnapt
      just a few days off of that drug and my digestive system is finally getting back to normal stopping the gluten challenge was not enough to get back to normal, I was still horribly constipated with what seemed like a paralyzed digestive track- nothing was moving! but now, with a few mag citrate capsules that I had to order online and stopping the chlorthalidone, things are getting back to my usual "working well" digestion   so it's clear that the symptoms I had during the gluten challenge were compounded by the new med that was started the same day (I feel like the Dr really should have known better than to do those two things at the same time, add a new drug and start a new diet protocol... but I'm just the patient, what do I  know, right?)   I am going to do another 24 hr urine in a few weeks to see if lowering the dose of vit D gets my urine calcium down to a more tolerable level. that's the plan.  hope it works.  
    • Wheatwacked
    • catnapt
      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.