Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Hypothyroid- Any Tips?


Charlie's Girl

Recommended Posts

Charlie's Girl Apprentice

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Gemini Experienced

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

Skylark Collaborator

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

Charlie's Girl Apprentice

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Thanks for the feedback Roda. I will get a copy of my tests from now on so as to stay up on my levels. I am sooooo looking forward to feeling some pep!

Charlie's Girl Apprentice

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

I read so many positive things about Naturethroid- that's why I switched. People seem to love it. My ND said to give this dosage two weeks before I try a higher level. Should I wait longer? I'll go back to see her in 4-6 weeks for another blood test. Should I wait until then? I understand that as I am still fairly new to gluten free living (and had to remove a few human obstacles to live without cc), that it may take a while for me to feel peppy again.

Thanks for your input Gemini. I appreciate all the help I receive here.

Charlie's Girl Apprentice

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

My "whatevers" were "whoevers" and I am hoping that I have addressed the situation. My 86 year old Mom lives with me and it was/is a huge learning curve for her. She has just gotten the separate shelves in the frig concept. Bless her heart. She is trying. I also had to deal with "one of those" who accused me of being obsessive when I caught her using peanut butter that was clearly labelled with my name. I asked her how long she had been using it and she told me to stop trying to blame my problems on her- sigh :( She isn't staying with me anymore.

I also had an acupuncturist who kept giving me supplements that weren't gluten free. She carries a certain line and their digestive enzymes say - in very small writing- not suitable for people with gluten intolerance. I was in such a haze when I first went gluten free- I trusted her to give me supplements that were ok. Now I don't trust anyone- except forum members. :)

I definitely feel sleepy when I am cc'ed. I am hoping that the combo of thyroid meds and gluten free living will be the ticket to living a more energetic life. I am avoiding soy and dairy products until I feel better. I am going to start the elimination diet to check for other food issues. I am staying on top of my supplements to address low Vitamin D, leaky gut, etc....

I'll be going back in 4-6 weeks for follow up blood tests.

Thanks for all your help Skylark.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,221
    • Most Online (within 30 mins)
      7,748

    Hissyfit33
    Newest Member
    Hissyfit33
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.