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7 Months And Feeling Bummed


peanjmiles

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peanjmiles Newbie

Hello Everyone!

This is my first posting here but I have been reading this forum for months. Well my brief history is that I was diagnosed in February of 2010 by both biopsy and blood work. I started a gluten free diet right away. In June 2010 I was diagnosed with Hashimoto and Polycystic Ovary . I had so many questions so I went to a nutritionist who was not much help and I think I actually new more about Celiac than her.

So now I feel a little bit better than I was but I am still not feeling completely normal. I get tired easy and have gained 15 pounds. I have trouble with what I can eat and cross contamination. My doctor said I was probably very sensitive because the blood work results were very high. I realized that I can


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i-geek Rookie

In the USA, maltodextrin is normally made from corn and is safe unless otherwise specified. If it is from wheat, that HAS to be labeled according to federal law because wheat is one of the 8 major allergens.

"Natural flavorings" are another thing altogether. They may be perfectly safe, or they may include barley malt, which doesn't have to be specified on the label at all because barley isn't a Big 8 allergen. When in doubt, either contact the company directly or avoid the item.

elk Rookie

Both maltodextrin and natural flavorings can be aliases for MSG, which can cause a bunch of problems. The best thing to do (IMHO) is to just stick with whole/real foods. I used to hate cooking, but I really enjoy it now. It takes a bit to get used to, but it's really just a matter of creating new habits.

As far as thyroid, it is really hard to get right and you could be having issues with that. What kind of medication are you taking? Have you tried Armour? Make sure your doctor is working closely with you on this and isn't getting tunnel vision with with what he's treating you for (celiacs AND hashi's AND...). I would also suggest having your cortisol levels checked to make sure your adrenal glands are functioning properly. A lot of people on thyroid meds break up thir doses throughout the day, especially if they're taking Armour, so that might be something to look into. Always get copies of your lab results so YOU can see what's going on.

As far as what to eat, you can make anything with whole foods: grassfed meats, eggs, legumes, rice, organic fruits and veggies, evo, coconut oil, butter (real butter made with cream & salt only), herbs, spices. If you buy anything processed, make sure the ingredients are actual food, i.e., Peanut Butter should only be peanuts and maybe salt, tomato paste should only be tomatoes, cheese should have minimal ingredients and not food coloring or "??" to "prevent caking", etc.

Wish I could offer insight on the celiacs, but I'm new to that. By eliminating processed foods, you pretty much get out of reading labels. :P

sb2178 Enthusiast

rash... lupus? sorry to suggest it, but autoimmune diseases can cluster.

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    • Theresa2407
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    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
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