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7 Months And Feeling Bummed

peanjmiles

By peanjmiles
in Coping with Celiac Disease

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peanjmiles Newbie
peanjmiles
Posted

Hello Everyone!

This is my first posting here but I have been reading this forum for months. Well my brief history is that I was diagnosed in February of 2010 by both biopsy and blood work. I started a gluten free diet right away. In June 2010 I was diagnosed with Hashimoto and Polycystic Ovary . I had so many questions so I went to a nutritionist who was not much help and I think I actually new more about Celiac than her.

So now I feel a little bit better than I was but I am still not feeling completely normal. I get tired easy and have gained 15 pounds. I have trouble with what I can eat and cross contamination. My doctor said I was probably very sensitive because the blood work results were very high. I realized that I can

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i-geek Rookie
i-geek
Posted

In the USA, maltodextrin is normally made from corn and is safe unless otherwise specified. If it is from wheat, that HAS to be labeled according to federal law because wheat is one of the 8 major allergens.

"Natural flavorings" are another thing altogether. They may be perfectly safe, or they may include barley malt, which doesn't have to be specified on the label at all because barley isn't a Big 8 allergen. When in doubt, either contact the company directly or avoid the item.

elk Rookie
elk
Posted

Both maltodextrin and natural flavorings can be aliases for MSG, which can cause a bunch of problems. The best thing to do (IMHO) is to just stick with whole/real foods. I used to hate cooking, but I really enjoy it now. It takes a bit to get used to, but it's really just a matter of creating new habits.

As far as thyroid, it is really hard to get right and you could be having issues with that. What kind of medication are you taking? Have you tried Armour? Make sure your doctor is working closely with you on this and isn't getting tunnel vision with with what he's treating you for (celiacs AND hashi's AND...). I would also suggest having your cortisol levels checked to make sure your adrenal glands are functioning properly. A lot of people on thyroid meds break up thir doses throughout the day, especially if they're taking Armour, so that might be something to look into. Always get copies of your lab results so YOU can see what's going on.

As far as what to eat, you can make anything with whole foods: grassfed meats, eggs, legumes, rice, organic fruits and veggies, evo, coconut oil, butter (real butter made with cream & salt only), herbs, spices. If you buy anything processed, make sure the ingredients are actual food, i.e., Peanut Butter should only be peanuts and maybe salt, tomato paste should only be tomatoes, cheese should have minimal ingredients and not food coloring or "??" to "prevent caking", etc.

Wish I could offer insight on the celiacs, but I'm new to that. By eliminating processed foods, you pretty much get out of reading labels. :P

sb2178 Enthusiast
sb2178
Posted

rash... lupus? sorry to suggest it, but autoimmune diseases can cluster.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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