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Weight Loss


Zoebearsmom

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Zoebearsmom Newbie

How is the weight loss determined. My 7 year old daughter has always been a slow gainer but in 2 years she hasn't gained weight. She does but it comes right back off. Its frustrating because the Dr. seems worried though she is still in normal percentiles at a curve she has stayed on with exception maybe to this last visit showing she hasn't gained since her 5 year well child exam.

Does gaining and losing the same 5 lbs count as weight loss as a symptom? I'm not sure I want to submit her to testing and just try out a gluten-free diet. Should I actually have her tested before removing it form diet.

I suspect we could have had undiagnosed family history. My grandmother had stomach issues most of her life. In her later years they determined she did have Chrohns Disease and I know this sometimes goes a long with celiac.


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WheatChef Apprentice

I believe the correct technical term in such a case is "failure to thrive". Failure to thrive coincidentally is also a possible symptom of gluten intolerance. Besides cost, there are no downsides to testing. There is however a downside in assuming any test can prove that you DON'T have gluten intolerance. In almost all aspects of science it is impossible to state that something does not exist, in reality it could be sampling size, experimental design, sensitivity, accuracy, any host of measures not being able to accurately measure something. This is why tests look to show the presence of something, not the absence.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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