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Biopsy Results Today

adab8ca

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adab8ca Enthusiast
adab8ca
Posted

So the report said "total villous atrophy" and I saw pictures of what it looked like (mine-no folds but with veiny looking patches) and what it should look like (smooth with folds and like the inside of your cheek). Dr. couldn't believe that I only had symptoms in the last 6 months and never heard of neurological presentions like my neuropathy. Didn't seem to wonder about other symptoms that I may have (since only GI symptoms were poor appetite and weight loss), which is too bad because I bet there are other patients out there that have the crazy symptoms that I had (incl. depression, anxiety etc). I guess by the time they get to see him, someone has ferreted out the problem.

He then said "ok, you have to see a dietician, see ya" basically and that was it. ALmost brusque!

The visit was very short. Thanksfully my GP is wonderful, so I will work with her and take it from here.

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notme Experienced
notme
Posted

yeah, my doc kinda freaked me a little - for me (us) it is a giant life change. for the doctors i suppose it is business as usual. while i was still trying to wrap my head around the whole thing, she was on to the next patient. not bad, just brief. if that was your experience, too, i guess that is normal. lol maybe we have the same dr :D

granting you PERMISSION TO HEAL AND BE WELL ;) i don't know about you, but i have 4 kids, 1 husband, 3 grandkids and all the accessories that go with them - i always put myself last. but i am letting them help mama get better now. :)

MrsJWells Newbie
MrsJWells
Posted

yeah, my doc kinda freaked me a little - for me (us) it is a giant life change. for the doctors i suppose it is business as usual. while i was still trying to wrap my head around the whole thing, she was on to the next patient. not bad, just brief. if that was your experience, too, i guess that is normal. lol maybe we have the same dr biggrin.gif

granting you PERMISSION TO HEAL AND BE WELL wink.gif i don't know about you, but i have 4 kids, 1 husband, 3 grandkids and all the accessories that go with them - i always put myself last. but i am letting them help mama get better now. smile.gif

Hugs! Sometimes I think the requirement to be a doctor is to be able to remove all emotion from the situation. :( Sad actually!

Notme...you said something so important. We so often put everybody elses needs before our own. I have 6 kids, 3 grandkids and all the accessories that go with them and I too have put myself last on that list. NOW...I have moved myself up the priority list and am letting them help me too. I sometimes wonder if we would have just put ourselfs ON the list maybe we would have figured some of this stuff out long ago. We all need to grant ourselves permission to heal and be well! I like that! Notme..you are one wise gluten-free cookie! :)

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you got the answer. Now you can start healing. I hope you are feeling better soon.

Emilushka Contributor
Emilushka
Posted

It makes me so sad to hear about doctors who behave that way. I'm a medical student and the way docs act these days makes me sad sometimes. A lot of that is due to pressure from insurance companies to see as many patients as possible so they can afford their support staffs (most offices have to have one person dedicated to only handling Medicare claims, for example). But whatever the reason, it just plain sucks. I am sad to see medicine in this state and I take your stories personally because I want to do better for my patients.

adab8ca Enthusiast
adab8ca
Posted
  • Author

It makes me so sad to hear about doctors who behave that way. I'm a medical student and the way docs act these days makes me sad sometimes. A lot of that is due to pressure from insurance companies to see as many patients as possible so they can afford their support staffs (most offices have to have one person dedicated to only handling Medicare claims, for example). But whatever the reason, it just plain sucks. I am sad to see medicine in this state and I take your stories personally because I want to do better for my patients.

Well, I am in Canada and I expect although the reasoning is different, there are HUGE waiting lists for these things, so they have to move people on as fast as possible....There is huge pressure from the gov't (and of course, the general population) to reduce wait times..MRI's can take months to get. I got my endoscopy in just under 3 months and that was considered FAST.

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      Probably celiac but also confused

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      Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't "scream" of celiac disease I think it is important to go forward with the endoscopy/biopsy while still consuming gluten to ensure it will not be a wasted effort. The last thing you want is to have two different test modalities that unnecessarily contradict one another. So, unless the continued consumption of gluten poses an immediate and significant threat to your health, my advice is to (excuse the pun) "gut it out" until the endoscopy/biopsy happens. There is also the option of temporarily going gluten free and then undertaking a "gluten challenge" in the weeks leading up to the appointment in September. Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (the amount found in about 4-6 slices of wheat bread) for at least 2 weeks leading up to the day of the procedure. But I would certainly give it longer than two weeks to be sure. And in view of the fact that it could happen sooner if there is a cancellation, I would encourage you to not go gluten free until after the procedure if your health permits. By the way, what are your symptoms? What led you to investigate celiac disease as the cause of your medical issues?
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      By RMJ · Posted

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      By terrymouse · Posted

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