Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ever Bailed On A Trip B/c Of Cd?


jenvan

Recommended Posts

jenvan Collaborator

Hey all. I was just curious if any of you have bailed on a trip before. I am supposed to rent a cabin with some friends this weekend and am trying to decide if I should skip out. At this point, I feel like I barely make it through the weeks, and that the weekends help me do that. I don't think my friends or husband really understand how I feel. I had to pack up all the food, which I did. There will be 7 of us in a one room cabin. I have been feeling worse for a few weeks, and I so just want to go home and sleep forever. I am afraid if I go this weekend (and feel fairly confident if I do), that I will come away feeling worse, and extremely run down. I've already missed a lot of work for my health, and am trying to conserve days for when I am desperate for them. I think I am a good sport most of the time and do a lot of activities my husband wants to do. But I know sometimes he doesn't feel that way... Anyway, just wanted to get some thoughts I guess... Maybe I'm just processing out loud as I think of what to do ! :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Because of celiac disease, no. But what you describe is more than celiac disease; you're not feeling well at the moment and need to get better so you can keep making it to work. The two may be connected, but I wouldn't say it's just celiac disease that'd be keeping you from going.

If it's just celiac disease, not additional tiredness or other symptoms that you're fighting, I'd say you should go - the more practice you have planning around these kinds of things the easier it is. But if you need a restful weekend full of sleep, you need a restful weekend full of sleep. (And if your husband goes, but you don't, maybe you'll get a really restful weekend? ;-) )

jenvan Collaborator

Tiffany-

Yeah, as you described, its more how I'm feeling physcially that iscausing me to think of staying home... not the food thing itself. That's more of an annoyance, but something I can certainly handle.

and yes... without the husbands means a better sleep for me ! He was tossing and groaning about all night last night while he slept for some reason ! :huh:

jknnej Collaborator

Yes, I do sometimes cancel trips because I don't feel well, not specifically b/c of bringing food, but just b/c I don't feel good.

If you haven't been feeling well and you have to share a cabin with 7 people you may be miserable there. I know I would, but this is just me. I also want to be alone with my bathroom when I don't feel good..it's embarrassing if you have stomach issues in front of other people! Or if you're really tired and they all want to go do something, you look like the stick in the mud if you don't go.

I completely understand. If you don't feel good, don't go. You won't have fun and neither will your hubby. Do what feels right for you.

Carriefaith Enthusiast

If I were feeling ill like you described my decsion would be based on if I had a room to myself or not. If you and your husband have a room to yourselves, than you could sneek away for a nap in the afternoons. My tip if you go... Bring Ear Plugs! Very nice to have in times like this!

Oops :blink: I just noticed that your post says that it is a one room cabin... hmmm if you need peace and quite on the trip and still want to go maybe you could bring a tent or if you have a van/sport utility take out the seats and sleep on a matress in the back.

KaitiUSA Enthusiast

A 1 room cabin...wow talk about no privacy. That would drive me crazy. Like 8 years ago my moms side of the family rented a beach house in SC and it was 2 bedrooms. There were about 16 people that went...talk about crazy...anyways, I just got sidetracked...

By the way you are describing how you have been feeling then it would probably not be the best idea to go. If you know you are struggling and think that the weekend may make it worse then you should stay home.

I have cancelled trips because of not feeling well before and I didn't feel bad about it at all. They have to realize sometimes plans change and they need to understand and if they don't get it then o well thats their problem but don't let it worry you.

Do what is best for you :D

LaurieAnn13 Newbie

I agree that you need to do what is best for you.... If you are not feeling well, then you are not feeling well. All of your friends should understand that because everyone has been sick before, regardless if it is related to celiac disease or not...

: ) Hope you have a great weekend either way!

Laurie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Thanks for the thoughts all. I guess I just wanted a little pat on the back that whatever I choose is okay :P

Turtle Enthusiast

I just wanted to let you know that you're not alone. I'm going through the same thing. I'm exhausted all the time and like you I too rely on my weekends to regroup, catch up on sleep, rest and give my body a break so I can tackle another week. I too have used tons of sick leave and I am having to reserve days for REALLY bad days. I'm also frustrated at times for having to always explain myself to everyone. It's nice to at least come here and read that i'm not alone in my symptoms, feelings, etc. Hang in there! My new philosophy is if they really care about me and my health then my friends, family, co-workers, etc. will at least make an effort to understand and not always treat me like an alien. My goal is to get healthy and I have come to realize that means I have to practice taking better care of myself (which I am bad at doing but improving on since being diagnosed w/ celiac disease). So hang in there and good luck!

Guest Eloisa

I remember feeling like this after being diagnosed and before I was diagnosed. I cancelled lots of trips and parties that I refused to go to. I would send my husband alone and have him tell everyone I wasn't up to it and felt bad. If you really feel funky then don't go cause you'll regret it. But if its more of an emotional thing it might make you feel better to be around good friends. A one room cabin is way to small for that amount of people. Also if they don't understand your Celiac and all the sacrifices you have to make and have too many questions and make you feel guilty for eating the way to have to and having to explain over and over again then don't feel bad about not going.

Guest BellyTimber

In only one room the practicalities might not work, of keeping your supplies separate from theirs.

For 50 years I have enjoyed recuperating in my space while everyone else goes off "enjoying" themselves. Not just the two and a half years I've gone gluten-free under my doctor's direction. Constitutionally for some people, just getting through most of the week means lots of wear and tear. I love to spin my favourite CDs, eat simple favourite foods, and sit or lie down.

At the same time I shall need those people sometimes and I have grown apart from set after set of people.

Yeah, have a realllllly good one either way!!!!!

Guest nini

I would say also to do what feels right to you. If you just aren't feeling up to it physically, be honest. Would you feel better or worse if you went and felt the way you are feeling now? If what you think you need is rest without the stress of worrying about the gluten-free diet around people that may not completely understand, then stay home and rest and don't feel guilty.

If on the other hand, you really want to go on this trip (which it doesn't really sound that way) then go and make the most of it. But again, be honest with yourself, your hubby and your friends. You owe it to yourself!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.