Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Bloody Krispies


realmaverick

Recommended Posts

Black Sheep Apprentice

I feel your pain! I also find it ridiculous that they could easily leave malt out and make it gluten free :(

Of course I've had malt-less "popped rice" and it tasted pretty bland, so maybe that's their secret ingredient...

Well, if they need malt to make it taste good, I don't see why they couldn't use sorghum malt, like they do for making g.f. beer. Once I've lost the weight I want to lose (I'm halfway there, from eating low-carb!), I want to start brewing my own g.f. beer, using sorghum malt. And yes I can have a beer now and then and not gain weight! :lol:

I just figure, if it works for beer, why not other recipes that normally call for barley malt?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Great question. Hope Kellog's will stand up to the plate!

eKatherine Apprentice

Hi All!

I am still new to this site, I started with a post a short time ago. I was drawn to this posting when I saw "Rice Krispies". I too, have been eating them. Didn't know they contained gluten. Here's my question: How on earth, are people like me, supposed to know

that food such as Rice Krispies are a "No NO", when there's

nothing on the label about gluten? I didn't have a glue that

"Malt" was a gluten factor?

This is exactly why I said to the dietician that it's so hard!!!

So many don't understand. I feel like an idiot. Here I thought

I was doing good. Please tell me, I think I read it in a post,

but is it true that Cocoa Pebbles are Gluten-free?

I am aware that the Chex Cereals are, but I'm so burned out

on them.

Sorry to whine and complain, but this has really been a

challenge for me. If you will read my first post, you will

learn more.

Anxiously awaiting responses...... :unsure:

If you're going to make assumptions, the only safe thing to assume is that all cold breakfast cereals contain gluten unless you've heard that one does not. And even then you have to read the label. That's what I did when I heard rice chex was safe.

You just have to, have to, have to read the labels. Nobody out there who is not gluten-free can be trusted, and those who are gluten-free can be mistaken.

If you're seeing a dietitian and that person didn't tell you to read the labels and look for words like "malt", then that dietitian is grossly negligent. You're not getting good advice. You could do better getting free advice right here.

Noni Rookie

If you're going to make assumptions, the only safe thing to assume is that all cold breakfast cereals contain gluten unless you've heard that one does not. And even then you have to read the label. That's what I did when I heard rice chex was safe.

You just have to, have to, have to read the labels. Nobody out there who is not gluten-free can be trusted, and those who are gluten-free can be mistaken.

If you're seeing a dietitian and that person didn't tell you to read the labels and look for words like "malt", then that dietitian is grossly negligent. You're not getting good advice. You could do better getting free advice right here.

Thanks so much for your reply eKatherine!

Your completely correct, I had very poor advice from the

dietician. :( That's the reason I've had such a difficult

time with the gluten-free diet. I was reading labels, but all

I knew to look for was "wheat" or "gluten". So I was totally

uneducated. I joined one website, but didn't gain much advice

from it. It wasn't until I found this site, that I've learned

so much. In my original post I made a huge error in stating the

date I was diagnosed with Celiac disease. It wasn't 2004, it was

1993. So I've been many years trying to do this on my own. I'm

truly thankful for this website. I've learned more in the short

time I've been here, than in the years I've been on my own.

Thanks again to everyone for your guidance and wisdom.

Noni

clogger69 Rookie

I am 70 years old, dx March 2009. Did the same thing with the rice krispies, and corn flakes, was eating them at first. I just told my 14 yr old granddaughter last night what I miss most is my cereal snacks. Forget pizza, beer, hamburger, I want a bowl of my cereal. I also loved mini wheats, but I know there is no hope for them, but maybe Kellogg would come through for the rice krispies and corn flakes :rolleyes:

Black Sheep Apprentice

I had very poor advice from the

dietician. :( That's the reason I've had such a difficult

time with the gluten-free diet. I was reading labels, but all

I knew to look for was "wheat" or "gluten". So I was totally

uneducated.

Ohmygosh, I hear 'ya there! :huh: The same thing happened to me, about 7 years ago I think. I had over time, become so sick, I could barely function. So I went to an N.D. at a famous clinic run by a phenomenal homeopathic doc (but not all the docs at his clinic do things his way, I've found). Some things she diagnosed or suspected exactly right--like my severe pernicious anemia, which was caused by almost non-existent stomach acid (both of which I was tested for, so those were for-sure things). She was also correct in suspecting Celiac (which probably in turn caused my low s.a.)---but where imo she messed up was in not testing for it, as I had good ins. at the time. She had me do the challenge test, which would have been fine except that she also had me meet w/the clinic nutritionist, who of course warned me extensively about wheat, rye, and barley---as in, the grains and flours. I was so uneducated, I never thought about barley malt, and other things like that! I even bought a couple of books they had, which were mostly cookbooks about food allergies/sensitivities in general, but didn't really educate. At that time I was new to the Web (yeah I was living under a rock!), had no clue that there was so much info out there, or how to find it. Although who knows, maybe back then there wasn't that much celiac/gluten info out there?

Anyway, I tried to go g.f. for a month like she told me to....bought g.f. flours, read labels.....but label-reading only helps so much if you don't know what all to look for. And restaurants---forget it! I had no idea that gluten was in practically everything, and never questioned anything in a restaurant! I just thought that if I avoided breads, pastas, etc. I was safe. :o So with good old 20/20 hindsight, it's easy to see why, after an entire month of being "g.f.", I felt no difference whatsoever. So when I reported this back to my doc, she said "Well, I thought for sure that gluten had something to do with your problems, but....I guess not." :angry: I also kick myself though, for not doing more to ferret out all the info I could.

So don't, as they say, "feel like the Lone Ranger"! :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,557
    • Most Online (within 30 mins)
      7,748

    kghorne3
    Newest Member
    kghorne3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.