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Your First Time Eating Gluten Free Poducts


IHateMyStomach

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IHateMyStomach Newbie

I'm going grocery shopping this morning and I'm going to buy a handful of gluten free products for the first time. I wasn't diagnosed gluten intolerance, but I'm so sick of food making me sick and it's worth a try. I was wondering if you noticed a huge difference with your symptoms the first gluten free dish you ate, or do you still experience the symptoms until your stomach (villi) heals?

Thanks in advanced, and I hope I posted this in the correct forum.


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Guppy Newbie

I'm going grocery shopping this morning and I'm going to buy a handful of gluten free products for the first time. I wasn't diagnosed gluten intolerance, but I'm so sick of food making me sick and it's worth a try. I was wondering if you noticed a huge difference with your symptoms the first gluten free dish you ate, or do you still experience the symptoms until your stomach (villi) heals?

Thanks in advanced, and I hope I posted this in the correct forum.

I think I started feeling better about a week or so after I stopped eating gluten. Most of the major symptoms went away at that point anyway. I didn't really start to feel "normal" again until about two months had passed though. I would hazard a guess that it is different for each person though. It probably depends on how much damage was done, how faithfully you stick to the gluten free diet, and how quickly your body normally heals itself.

Skylark Collaborator

Hi there. I got some relief from the "IBS" by the end of two weeks on my elimination diet. Like many celiacs I was also initially sensitive to casein and soy. It took a few months for my energy to return, the canker sores to go away, the anemia to resolve, and so forth.

tarnalberry Community Regular

Many people notice a difference within the first week (not all, by any means), but as a gluten reaction lasts for two weeks in the body, expecting big changes after one meal from gluten is expecting too much.

That said, I wouldn't go out and buy specialty gluten free stuff - eat naturally gluten free foods to minimize cross contamination concerns.

SGWhiskers Collaborator

I applaude you for taking charge of your health and looking into gluten inolerance/celiac disease as a cause.

I'm unsure if you are currently eating a gluten filled diet and are planning on substituting in some glutenfree products in the hopes of feeling better or if you have been on a gluten free meat/potatoes/veggies diet and are planning on adding the variety of gluten free cookies and pasta back to your cooking. I'm going to write my response as if it is the former as I suspect.

Be forwarned that gluten is in most of the store bought products most Americans normally eat. It hides under a variety of names and in lots of places. Simply substituting your morning cereal, pasta, and cookies with gluten free versions will not work to make you feel better. In order to do a trial of the gluten free diet, you will need to 1) learn where it hides 2) switch to a meat/potatoes/veggie/fruit based diet 3)replace a few cookware items/utensils (yes, it is stuck in your wooden spoons). Small amounts can stop you from healing and can make you sick.

If you have not been tested for Celiac and would like testing, do it now while you are still eating gluten. Once you go gluten free, the tests will start to read negative even if you have the disease (that is one way we monitor our success with the diet). If you don't care about numbers and tests, then by all means, start the diet as soon as you learn what you need to be truly gluten free. It is well worth the extra effort for 3 months of a trial diet if it helps you feel better.

I didn't have GI symptoms (and I hear those people will see improvement sooner), but it took me 5 weeks until I started noticing changes and 3 months before I didn't contaminate my food in some way almost daily. I was stubborn and didn't believe how strict I would need to be.

Best wishes in your trial diet. On the home page to the right is a list of safe/unsafe foods. General Mills, Kraft, and Unilever will clearly state the grain source of gluten containing products. For example: Modified food starch (wheat) vs. Modified food starch (corn). This makes reading labels at the grocery store so much easier. When you are ready to start the diet, many find that a basic whole foods from scratch diet is the easiest and safest way to start out. Also, many find that lactose is on the no no list for a while (and some permanantly).

good luck. This web site is full of great information. Oh, and when you decide on bread, Udi's is the best!

aeryn Rookie

My stomach pains disappeared after the first day. I've been gluten free for a month now and the rest of my symptoms are slowly starting to resolve. I have felt so much better since going gluten free though :)

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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