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Exercise Intolerance

tamika

By tamika
in Coping with Celiac Disease

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tamika Rookie
tamika
Posted

Hello! I am in the process of being diagnosed. I don't think I am going to find a definitive answer. I guess I am just going to have to rely on my symptoms. One of my major symptoms with gluten ingestion is extreme fatigue. I seen a steady decline in my exercise endurance and was wondering if anyone else experienced the same. My allergist even told me I had asthma and put me on two inhalers......no improvement. Any suggestions or comments???? I am trying really hard to be gluten-free but as you know it is very hard....I am slowly learning:-(

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chasbari Apprentice
chasbari
Posted

In the early stages of my diagnosis/recovery I couldn't tolerate any exercise at all. My body was too busy healing to have any resources left over for exercise. I can work out now.. 2 and a half years later but have to keep my volume reasonably low as I am still not totally healed and high intensity exercise can push me over the edge. The problem is I know feel so much better that is has become easy to overdo it beacuase, well, because I can now. Listen to your body. If you are tired now it may be because it is now having a chance to heal if you have gone gluten free. I know I have issues with feeling lazy when I have to rest more. I feel like I need to explain myself to others when, in fact, it's really none of their business. I just have to rest, no excuses or apologies needed because I am getting better. Good luck as you go through all these transitions. Be patiently impatient!

tamika Rookie
tamika
Posted
  • Author

thanks for the kind words. glad to know someone else felt my pain. I will wait patiently and try my hardest to adhere to the diet....I have to....it sucks feelings this way. thanks again for responding.

dilettantesteph Collaborator
dilettantesteph
Posted

I was surprised to find how much having celiac had affected my exercise endurance. I had thought that it was age that was slowing me down as I wasn't diagnosed until age 48. Every year I do a rowing challenge, It is 200,000 meters between Thanksgiving and Christmas. I kept records of how I did each year. I had records going back to age 35 or so. My times steadily went down as I got older and sicker and sicker. After diagnosis I compared my times, and each each time I was better than I had been a few years younger. After a couple of years I was better than I had been at the start. It is like I am aging backwards. At age 50 I was doing better than I did at age 35. It is truly amazing.

I do have to keep a very clean diet with almost no processed foods.

I wish you the best with your exercise endurance.

curiousgirl Contributor
curiousgirl
Posted

I was surprised to find how much having celiac had affected my exercise endurance. I had thought that it was age that was slowing me down as I wasn't diagnosed until age 48. Every year I do a rowing challenge, It is 200,000 meters between Thanksgiving and Christmas. I kept records of how I did each year. I had records going back to age 35 or so. My times steadily went down as I got older and sicker and sicker. After diagnosis I compared my times, and each each time I was better than I had been a few years younger. After a couple of years I was better than I had been at the start. It is like I am aging backwards. At age 50 I was doing better than I did at age 35. It is truly amazing.

I do have to keep a very clean diet with almost no processed foods.

I wish you the best with your exercise endurance.

I've never been a high-impact exercise type person. Walking is about it for me. Yoga is a staple. But, I've noticed over the past couple of years, my walks and my yoga sessions just became less often...there was always some reason why I couldn't do it...mostly too tired, lethargic, depressed, or just hurt. Then in May I was diagnosed with celiac disease. Now I wish I wasn't so easy on myself and just continued to do a little bit each day...no matter what! I just got over a bout with a flu virus and just made myself lay down on my yoga mat (instead of in bed) ad did a few simple stretches and restorative poses. It really hurt soooo good and put some much needed energy into my body. It's really scary when our bodies feel like they're wearing out. I hope you feel better.

tamika Rookie
tamika
Posted
  • Author

thanks! I probably need to eliminate processed foods from my diet as well. I am not a cooker but now is the time to learn. I would love to be able to do a 5K again. Your kind words of encouragement are appreciated.

tamika Rookie
tamika
Posted
  • Author

that is probably the best way to describe it...."my body is wearing out". I am 30 years old...I shouldn't be this tired. I hope to start feeling better soon also. I have to stick with the diet...ugh!!!!!!! thanks:-)

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chasbari Apprentice
chasbari
Posted

I was surprised to find how much having celiac had affected my exercise endurance. I had thought that it was age that was slowing me down as I wasn't diagnosed until age 48. Every year I do a rowing challenge, It is 200,000 meters between Thanksgiving and Christmas. I kept records of how I did each year. I had records going back to age 35 or so. My times steadily went down as I got older and sicker and sicker. After diagnosis I compared my times, and each each time I was better than I had been a few years younger. After a couple of years I was better than I had been at the start. It is like I am aging backwards. At age 50 I was doing better than I did at age 35. It is truly amazing.

I do have to keep a very clean diet with almost no processed foods.

I wish you the best with your exercise endurance.

I so agree with this. I just turned fifty and am now stronger and healthier than I was in my supposed prime. I am now getting results from workouts I rarely got when I was a teenager and I feel younger in so many ways. I can't wait to see what it is like when I am fully recovered! It was hard to learn the discipline of rest though. That's still the challenge. Then I remember that two and a half years ago I was barely able to walk, an exercise bout would take me a month to recover from and I was losing my hearing and my voice. Not so now. Strength for the journey, friend.

CS

dilettantesteph Collaborator
dilettantesteph
Posted

thanks! I probably need to eliminate processed foods from my diet as well. I am not a cooker but now is the time to learn. I would love to be able to do a 5K again. Your kind words of encouragement are appreciated.

I did both a 5K and a mini triathlon this past summer. I've never run before I started training the year before I did it. It is so great to be able to do things like that. I don't think I would even have attempted it as a teenager, not healthy enough.

Before diagnosis I would take 4 days to mow our 1/3 acre lawn. I couldn't walk further than a mile. I was pretty sick.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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