Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exercise Intolerance


tamika

Recommended Posts

tamika Rookie

Hello! I am in the process of being diagnosed. I don't think I am going to find a definitive answer. I guess I am just going to have to rely on my symptoms. One of my major symptoms with gluten ingestion is extreme fatigue. I seen a steady decline in my exercise endurance and was wondering if anyone else experienced the same. My allergist even told me I had asthma and put me on two inhalers......no improvement. Any suggestions or comments???? I am trying really hard to be gluten-free but as you know it is very hard....I am slowly learning:-(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

In the early stages of my diagnosis/recovery I couldn't tolerate any exercise at all. My body was too busy healing to have any resources left over for exercise. I can work out now.. 2 and a half years later but have to keep my volume reasonably low as I am still not totally healed and high intensity exercise can push me over the edge. The problem is I know feel so much better that is has become easy to overdo it beacuase, well, because I can now. Listen to your body. If you are tired now it may be because it is now having a chance to heal if you have gone gluten free. I know I have issues with feeling lazy when I have to rest more. I feel like I need to explain myself to others when, in fact, it's really none of their business. I just have to rest, no excuses or apologies needed because I am getting better. Good luck as you go through all these transitions. Be patiently impatient!

tamika Rookie

thanks for the kind words. glad to know someone else felt my pain. I will wait patiently and try my hardest to adhere to the diet....I have to....it sucks feelings this way. thanks again for responding.

dilettantesteph Collaborator

I was surprised to find how much having celiac had affected my exercise endurance. I had thought that it was age that was slowing me down as I wasn't diagnosed until age 48. Every year I do a rowing challenge, It is 200,000 meters between Thanksgiving and Christmas. I kept records of how I did each year. I had records going back to age 35 or so. My times steadily went down as I got older and sicker and sicker. After diagnosis I compared my times, and each each time I was better than I had been a few years younger. After a couple of years I was better than I had been at the start. It is like I am aging backwards. At age 50 I was doing better than I did at age 35. It is truly amazing.

I do have to keep a very clean diet with almost no processed foods.

I wish you the best with your exercise endurance.

curiousgirl Contributor

I was surprised to find how much having celiac had affected my exercise endurance. I had thought that it was age that was slowing me down as I wasn't diagnosed until age 48. Every year I do a rowing challenge, It is 200,000 meters between Thanksgiving and Christmas. I kept records of how I did each year. I had records going back to age 35 or so. My times steadily went down as I got older and sicker and sicker. After diagnosis I compared my times, and each each time I was better than I had been a few years younger. After a couple of years I was better than I had been at the start. It is like I am aging backwards. At age 50 I was doing better than I did at age 35. It is truly amazing.

I do have to keep a very clean diet with almost no processed foods.

I wish you the best with your exercise endurance.

I've never been a high-impact exercise type person. Walking is about it for me. Yoga is a staple. But, I've noticed over the past couple of years, my walks and my yoga sessions just became less often...there was always some reason why I couldn't do it...mostly too tired, lethargic, depressed, or just hurt. Then in May I was diagnosed with celiac disease. Now I wish I wasn't so easy on myself and just continued to do a little bit each day...no matter what! I just got over a bout with a flu virus and just made myself lay down on my yoga mat (instead of in bed) ad did a few simple stretches and restorative poses. It really hurt soooo good and put some much needed energy into my body. It's really scary when our bodies feel like they're wearing out. I hope you feel better.

tamika Rookie

thanks! I probably need to eliminate processed foods from my diet as well. I am not a cooker but now is the time to learn. I would love to be able to do a 5K again. Your kind words of encouragement are appreciated.

tamika Rookie

that is probably the best way to describe it...."my body is wearing out". I am 30 years old...I shouldn't be this tired. I hope to start feeling better soon also. I have to stick with the diet...ugh!!!!!!! thanks:-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

I was surprised to find how much having celiac had affected my exercise endurance. I had thought that it was age that was slowing me down as I wasn't diagnosed until age 48. Every year I do a rowing challenge, It is 200,000 meters between Thanksgiving and Christmas. I kept records of how I did each year. I had records going back to age 35 or so. My times steadily went down as I got older and sicker and sicker. After diagnosis I compared my times, and each each time I was better than I had been a few years younger. After a couple of years I was better than I had been at the start. It is like I am aging backwards. At age 50 I was doing better than I did at age 35. It is truly amazing.

I do have to keep a very clean diet with almost no processed foods.

I wish you the best with your exercise endurance.

I so agree with this. I just turned fifty and am now stronger and healthier than I was in my supposed prime. I am now getting results from workouts I rarely got when I was a teenager and I feel younger in so many ways. I can't wait to see what it is like when I am fully recovered! It was hard to learn the discipline of rest though. That's still the challenge. Then I remember that two and a half years ago I was barely able to walk, an exercise bout would take me a month to recover from and I was losing my hearing and my voice. Not so now. Strength for the journey, friend.

CS

dilettantesteph Collaborator

thanks! I probably need to eliminate processed foods from my diet as well. I am not a cooker but now is the time to learn. I would love to be able to do a 5K again. Your kind words of encouragement are appreciated.

I did both a 5K and a mini triathlon this past summer. I've never run before I started training the year before I did it. It is so great to be able to do things like that. I don't think I would even have attempted it as a teenager, not healthy enough.

Before diagnosis I would take 4 days to mow our 1/3 acre lawn. I couldn't walk further than a mile. I was pretty sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.