Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Respiratory Symptoms Of Cd

mishmish

Recommended Posts

mishmish Newbie
mishmish
Posted

I am sure this story is familiar: I have been sick for waaaay too long. Over a year ago I came down with a weird cold that just wouldn't go away. I was (mis)diagnosed with: a virus, sinus infections, pneumonia, GERD, possibly Crohn's, asthma, and I can't remember what else. I was also having GI symptoms that I thought were from four 10 day courses of antibiotics in two months. I didn't respond to any of the meds they put me on: antibiotics, Prednisone, Nexium, Protonix, 2 different inhalers, and so much more. I then underwent sinus surgery. For the most part, the respiratory stuff cleared up, but I still had a cough and frequently coughed up mucus. This was also when I began having other strange symptoms: acne, heavy periods, always cold.

Finally, I got smart and switched doctors. She immediately diagnosed me with hypothyroidism and I began to feel significantly better. She also mentioned the possibility of a wheat allergy. I have been on a gluten-free-diet on and off for the past three months. Not entirely convinced it was helping (it didn't seem like I was getting better), I began to cheat. I had something with soy sauce. The next morning I woke up with a stuffy nose. That day I had a wheat tortilla. The next morning I woke up with the full-blown respiratory symptoms: incredibly painful chest congestion, coughing up mucus, stuffy nose, and I sometimes have a hard time breathing.

I have done a lot of reading on celiac disease, and it seems that most people complain of GI symptoms. I have had those off and on as well, but am particularly concerned about the respiratory thing...My question is this: have any of you had symptoms like this? My doctor is going to be doing some blood tests soon, but I'm not sure how accurate they will be since I have been on the on-again, off-again gluten-free diet. Any advice would be appreciated! Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


julie5914 Contributor
julie5914
Posted

Strange. I do not have this, but I do have the acne problem. I am thinking about getting tested for hypothyroid again even though my numbers came back fine in the fall.

My mom has coughing fits every now and then and some skin rashes that are not DH. She was told it was a reaction to wheat but has never been tested for celiac (although I am making her soon...). She is the only other person I have heard of having respiratory reactions to wheat. She is also hypothyroid.

Carriefaith Enthusiast
Carriefaith
Posted

I used to have plugged sinuses almost all the time before I went gluten free. Now that I am gluten-free, I've noticed a major difference, I can breath clear most of the time, unless I'm around dogs and cats or dust ;) I am almost postive I have read that sinus trouble is a symptom of celiac disease.

*I have read that milk can also cause sinus problems and asthma. I have also been on a dairy free diet, which may also have cleared up my sinuses.

mishmish Newbie
mishmish
Posted
  • Author

Thanks for the feedback! I went to the doctor yesterday and she definitely thinks that wheat is a "contributing factor" although probably not the whole story...*sigh* (As much as I don't want to have celiac disease, it is, at least, a diagnosis, and it has a "cure"...) I do know that I was beginning to feel better over the last three months (which I spent mostly gluten free), even if it was veeeery slowly, and now I seem to have taken a turn for the worse again. It is very frustrating. I have now cut out all gluten from my diet and am being much more strict (and cautious) about what I eat. We'll see what this does for me.

Thanks again!

:)

cdford Contributor
cdford
Posted

celiac disease can play havoc with your immune system. When glutened, a sinus and usually an ear infection follows us like clockwork as the gastro stuff finishes up. As long as we remain gluten-free, no sinus issues. I cannot remember being without a sinus concern for most of my lifetime until I cut out gluten. It took several months of being completely gluten-free for the symptoms to completely subside.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,188
    • Most Online (within 30 mins)
      7,748
    Leeila
    Newest Member
    Leeila
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...