Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The staff of life isn't for everyone - Sacramento News & Review


Scott Adams

Recommended Posts

Scott Adams Grand Master

Open Original Shared Link

Sacramento News & Review

There is an increase in people with celiac disease—but there are also some fad issues at hand. Some people have a true wheat allergy, which is when their ...

Open Original Shared Link Marion Star

Open Original Shared Link Newsmax Health

Open Original Shared Link The Vancouver Observer (blog)

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

:ph34r: O.M.G.

That isn't the worst article I've read recently, but it is up there.

And I have been to that store in Sacramento. Somebody needs to tell the owner that if she does interviews, chances are very good that the person writing the story, if they are a typical reporter, (no serious math/science courses, superficial research) will be an idiot on this issue and they have to be educated very carefully, or they will pull your worst comment and make YOU sound the complete idiot.

SNR used to do very good, in depth articles and they have changed.

from the writer of this:

And some people are gluten-intolerant. They have an adverse reaction to the gluten protein in grains such as wheat, barley, rye and oats. It isn

Skylark Collaborator

The idiot also repeats the living gluten free - "it could lead to nutrient deficiencies" which is the line the idiots from the "Professional Dietician Quoted For This Story" have been repeating all year ad nauseum since the NYTimes and some others ran a story on it.

Gaaaaaah !

Why do you take issue with that statement? Most commercial bleached flour is fortified with vitamins and often iron. Most average Americans don't take a vitamin or if they do it's something so cheap it can't really be absorbed like One-A-Day. People who go gluten-free and substitute rice and tapioca flour breads without taking a decent supplement miss out on the vitamins in fortified flour that are reasonably well absorbed.

Takala Enthusiast

Why do you take issue with that statement? Most commercial bleached flour is fortified with vitamins and often iron. Most average Americans don't take a vitamin or if they do it's something so cheap it can't really be absorbed like One-A-Day. People who go gluten-free and substitute rice and tapioca flour breads without taking a decent supplement miss out on the vitamins in fortified flour that are reasonably well absorbed.

_____________

Because she was just repeating it, without understanding where the original talking point came from and why it was being used. Celiac is a very real auto immune disease. Gluten intolerance is a very real auto immune disease. It is not a "big fad" and questioning the increasing incidence of celiac and the need for celiacs and gluten intolerant people to have real gluten free FOOD available to them so they do not eat gluten and provoke an auto immune response ( aka "Sickness, illness") is a real issue.

This is a no - brainer. It is a non- starter.

Look at what Melanie Weir said, trying to ward this off - "Those with celiac disease don't want to see gluten free become a fad."

Ding-a-ling writer of story, Rolke, has already called "gluten intolerance" akin to lactose intolerance and is probably wondering why people just don't pop a pill like "lactaid" as they do when drinking milk. She has contributed to the erroneous assumption that celiac is serious but that gluten intolerance is a lifestyle choice. This is the same sort of ridiculousness that causes people in health food stores to stock the spelt bread next to the gluten free bread in the frozen foods display. The writer of the story does not realize that the majority of that 1% of the population are still undiagnosed. If everybody who actually needed to be on a gluten free diet was eating one, then the number of gluten free consumer foods available retail would probably be much higher.

If those undiagnosed want to experiment with trying a gluten free diet to see if it makes them feel better, then more power to them. Especially if they have gone to the professional medical profession MANY times complaining of classic celiac and gluten intolerant symptoms, and been told it's All In Your Head, It's Fibromyalgia, it is Irritable Bowel Syndrome. If they respond to a self made diet trial, they can try again for diagnosis, and then just eat as they need to whether or not stamped with the Official Seal of Approval.

The professional dietician response to that sort of thing is to eat more fiber. And continue to suffer. Because you're going to malnourish yourself. <_<

This assumption is bunk.

Here, on this board, on almost a daily basis we see people learning that gluten cross contamination is a real issue, and that they cannot continue to eat wheat family proteins in any shape or form, and not expect to get sick, whether or not they feel sick when they do it. They ask questions all the time that say is a little bit going to actually hurt me ? So again, I am pointing out that the media is inadvertently and frequently contributing to this attitude.

I just googled the phrase "gluten free diet not nutritious" and once again was directed to a story that says "gluten free diet won't help you lose weight" and it has the original Wall Street Journal quote about "gluten free does not mean nutritious" with a link to it.

The WSJ is a business publication that is dedicated to getting people to invest in commodities, not to give them accurate medical advice.

Underneath the first story are 3 comments. One is accurate from a mother with a celiac daughter, who says to eat more vegetables to lose weight. The other two are bogus comments from people trying to sell either supplements or gluten free foods. One says they were gluten free for 10 years and now can eat it again thanks to enzyme "xxxx," and the other says going gluten free when you aren't can make you allergic to gluten and btw here is my website selling gluten free foods.

There is a lot of huckstering out there.

Here is the original article in the WSJ from August 24 2010 Open Original Shared Link

And here is the culprit: Shelley Case, the registered dietician of the Celiac Disease Foundation, who says "Gluten free does not mean nutritious."

People who don't know any better are going to keep quoting this article, and repeating that phrase and the assumption will be made that a gluten free diet is "lacking" in nutrition- when nothing could be further from the truth. It's quite possible to put together a gluten free diet that is. The problem with the hypothesis that everybody is gorging on rice and tapioca is that.... there aren't too many people actually doing that. Most people discover that they can't eat that stuff like white bread. They are already eating the other foods that do have the supposed missing ingredients.

Will the casual reader realize this ? No. Will the celiac or gluten intolerant person realize this ? Yes.

People whose intestinal linings are damaged and not absorbing nutrients from the wrong diet for their bodies, are the ones who are having a "lack" of nutrition.

Skylark Collaborator

You make some very good points. I'm in a debating mood, so I'll reply some more. :) I share your frustration with the hucksters selling useless enzymes and the people who want to dismiss gluten intolerance (which is probably early celiac disease in a lot of people). To be honest, I am deeply disturbed by all the people on this forum who require an official Seal of Approval or a Diagnosis to somehow validate the harm that eating gluten does them. It is a sad commentary on the broken state of medicine in our society, where seeking a label from a doctor overrides common sense.

I think many of these articles are trying to counteract the trendsetters who do not require a gluten-free diet and are doing it anyway. It's great that people who are gluten-intolerant and find the diet. That's fine, and a positive side of the fad.

The negative side is that people are getting really confused about wheat as a food. Whole wheat bread is a very nutritious food, with a decent amount of fiber, some vitamins, and a lower glycemic index than gluten-free breads. I have a friend who has no gluten issues at all, but she was telling me she was thinking of going gluten-free because she had read that wheat is bad for you. Another friend chimed in saying she had read something similar. I had remind them that whole wheat is fine thing to eat if you tolerate it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.