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Awaiting Test Results


coultog

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coultog Newbie

For a number of years I have been having "D", which I did pretty much every day. I noticed that some foods caused a terrible reaction and within an hour of eating them I would need the loo.

I did some research online and realised it could be Celiac disease. I went to my doctor to have some blood tests.. They explained they were going to do five tests and if they all come back negative, it will probably be Celiac. This week I went for a follow on celiac blood test and am awaiting the results. I was that confident that my problems relate to gluten I have tried to cut it out of my diet since Tuesday this week.

Since then, my body is feeling a little less tender after food and I didn't wake up this morning dashing to the loo. I am physically feeling some difference. Irrespective of the test results, I definitely believe there is some benefit in me staying gluten free.

Today or tomorrow, I'm going to buy some more gluten free foods...

Do any of your have any top tips to help with this transition?

Thanks


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cassP Contributor

you should limit your gluten free treats... (ie: cookies, cereals, muffins, cakes, breads).. and try to mostly stick to naturally gluten free foods at least for a little while

you should avoid or limit dairy for a little while

it might not hurt you at all to eat the above- but you'll probably feel better faster if you limit/avoid them

SGWhiskers Collaborator

Cass has good advice.

I'll add that it is easy to think "Oh, a little cross contamination won't hurt ME." Wrong. I didn't start really feeling better until 3 months into the diet when I started getting very proactive about cross contamination. I found that reading everything from this site and medical articles helped me the most.

Always have food in your purse, desk, car, briefcase. It helps you resist the combination of hunger and food that might be safe if it wasn't cross contaminated.

Avoid processed foods. Many of us have problems with certain ingredients (either the foods themselves or the preservatives they add). You will likely feel better sooner and having avoided the processed foods will help you figure out what your other food triggers are when you add them back slowly in 6 months or so.

I cook my dinners with an extra 50% added ingredients so that I can eat them for lunch in the next day or two. Many of us cook meals double sized and freeze 1/2 for the following week.

Keep reading and keep posting. Welcome.

coultog Newbie

Thanks for all the tips. This last couple of days has been really strange and interesting.

My whole body is feeling a little strange at the moment.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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