Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Metagenics Question


mommyoftwinks

Recommended Posts

mommyoftwinks Explorer

I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor.

I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest.

I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them.

TY!

UltraClear Sustain

MetaFiber

CandiBactin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

As far as making them palatable you might be able to mix the powder with something like applesauce instead of putting it in liquid. You might want to ask your provider if that is ok.

Are you aware that the Meta Fiber has oats in it? Not all of us tolerate oats. You may want to try them one at a time to make sure you tolerate the ingredients.

Open Original Shared Link

Ingredients:

Rice bran

Beet fiber

Oat fiber

Apple fiber

Cellulose

Olive oil

D-alpha tocopheryl acetate

mommyoftwinks Explorer

TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better.

I'm wondering if it takes time?

ravenwoodglass Mentor

TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better.

I'm wondering if it takes time?

I saw one of the best naturopaths in my state and was positively shocked how little he knew about what celiacs can and cannot tolerate. He got me with everything he prescribed. Unfortuately we can never take it for granted that even folks that seem knowledgeable really know how little gluten we react to.

Your rash may be DH which can take some time to resolve. I would wait on the stuff with the oats until the rash is resolved. Also with that rash especially do check and make sure all your toiletries, soaps and lotions are free of gluten ingredients. If your concerned about the amount of fiber your getting perhaps getting more fruits and veggies might be the way to go for now. Sweet potatoes are an excellent source of both soluable and nonsoluable fiber as well as loads of vitamins. They are used in oriental medicine to regulate both D and C. It might help to add those to your diet for a bit. If you feel you need more in the way of supplementation there are some good vitamins that are available. County Life and Now are two good brands and likely much less costly than the brand you got through their office.

mommyoftwinks Explorer

i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore.

i can not get rid of this rash.

ravenwoodglass Mentor

i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore.

i can not get rid of this rash.

If the rash is DH it can take some time to resolve. You should stop getting lesions or they should go down in intensity after a bit if you are really stict with the diet and what you put on your body. Even the tiniest amount of gluten will keep those antibodies active, that's the reason I advised holding off on the supplement with oats.

I know how frustrating it can be. I have DH also although it has not been active in a long time now. I also am someone who shows negative on blood work which makes it really hard to get a diagnosis. I went undiagnosed for over 40 years. I am glad you finally were able to figure out that gluten was an issue for you but it does take some time to heal. It is hard to be patient but we really have no choice. In the meantime sometimes cool compresses can help with the itch and avoid things like real hot baths and showers as that can make the itch worse. Use warm water to bathe instead of hot. Hopefully the rash will resolve soon for you.

Charlie's Girl Apprentice

I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor.

I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest.

I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them.

TY!

UltraClear Sustain

MetaFiber

CandiBactin

My last acupuncturist gave me several Metagenics products and I couldn't handle any of them. I tried Sustain, UltraInflamX and Spectrazyme. Several months before I was diagnosed, she gave me SpectraZyme. I had horrible D for almost 2 months. I mentioned this to her every week. After I was diagnosed, I asked her if any of her supplements were causing the D- she said no. I was in such a fog- but one day went through my supplements and saw in very small writing that SpectraZyme was not suitable for people with wheat allergies. When I pointed this out to her- she said "hmph." She knew I had wheat allergies- so that was a bit frustrating- but I digress. After I quit taking SpectraZyme- I was still having problems- tho' not as bad- with the UltraInflamX- so I switched to Sustain- still D. Quit the Sustain and it went away.

Instead of Sustain- I use Intestinew by Renew Life. I had been using it before- but switched as my acupuncturist swore by the Metagenics products that she carried. I am sure they are good products for people without Celiac or wheat allergies (I have both)- but I prefer Intestinew. You can get it at Whole Foods- I order it online from Swanson's Health Products as I believe it is a bit less expensive. I put it in water and can't taste it. (well maybe a little- but it isn't bad)

Don't know what to say about the fiber products- I don't use them. I swing so easily from C to D that I don't even try them anymore. I do eat 1-2 apples per day (no matter what) and a handful of raisins at night if things are backing up.

I was not given the Candibactin- are you using them for liver detox?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyoftwinks Explorer

yes that is why i was given the candibactin.

i just re-read the labels and it said both containers said - GLUTEN FREE

Charlie's Girl Apprentice

yes that is why i was given the candibactin.

i just re-read the labels and it said both containers said - GLUTEN FREE

Sorry I can't help you with the liver detox. I am sure someone else will pop up with some great ideas.

I don't know what it was with the UltraInflamX and the Sustain- but they both got me. Cross contamination? Who knows? Sometimes I just throw up my hands and say "next."

Try the Intestinew. There used to be a really nice lady with an oh so pleasant southern accent who answered their 800 number and she was happy to talk about their products.

Looking for answers Contributor

I'm on Sustain and Glutagenics...just started a week ago. Since then, I've been having pain under my ribs on my left side. Ugh!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.