Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! I Got Glutened!

xpaperbackwriterx

Recommended Posts

xpaperbackwriterx Newbie
xpaperbackwriterx
Posted

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

Exactly my symptoms and also why I think I am Coeliac and not just Gluten Intolerant. I know some people that are GI and they sneak bits of Gluten and do not get bowel blockages.... Miralax. Get thee some Miralax and use that. I ended up with Diverticulitis, antibiotics and a water diet for a week ... and that is not fun... and all caused by some mis labelled lollies that had wheat starch....so be careful and get to a Dr if worried. My Dr said if this had not worked then it would have been hospital and an IV.. The dose my Dr told me to take for this I should not say here - but it was a 'lot' of Miralax. Try a fluid diet and Miralax. If you go to hospital it will be similar treatment.

glutenfreesavvy Rookie
glutenfreesavvy
Posted

I am so sorry! I can relate...that's a problem I have to deal with when glutened too. At this point, this is what I'd do.

1. Eat dried fruits, like apricots & prunes

2. Lots of water - at least 1/2 your body weight in ounces - more if you're really active

3. Drink herbal tea that have senna, but be careful it can cause some cramping if you overdo

4. Take some slippery elm - it coats the gi tract & is soothing, as well.

Hope this helps...I feel your pain. :-)

GFinDC Veteran
GFinDC
Posted

Milk of magnesia from the drug store can help. I also suggest looking closely at everything you are eating to be sure it is gluten free. That includes all vitamins, meds, sodas, coffee, teas etc. Staying off processed foods for a while might help also. Being gluten free is not easy if you eat food made by other people. You really need to know what the ingredients are in everything you eat. Wash your fruit and veggies before eating or cooking them also, just in case the picked up some gluten in the grocery store during storage.

Kim27 Contributor
Kim27
Posted

Try a combination of the Miralax and Magnesium Oxide pills. You can get those at any pharmacy, even WalMart, it is usually held behind the counter but is not a prescription.

anabananakins Explorer
anabananakins
Posted

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

I'm sorry I don't have any tips add but I hope you feel a lot better soon. Getting glutened sucks, whether it's by accident or through something like this. But I would encourage you to try and stay strictly gluten free from now on. Whether or not you have officially diagnosed celiac doesn't make much difference unfortunately to how our bodies react to it. There are people with severly damaged vili who don't have any noticable symptoms... others like me who test negative but feel amazingly better gluten free and who feel sick now at the tiniest crumb. So don't let a lack of a diagnosis downplay how much better you feel gluten free. And I really hope you feel well again soon.

cctaylor01 Newbie
cctaylor01
Posted

I don't know if anyone has mentioned this yet, because I didn't read the entire thread, but when that happens to me (as constipation is one of my major problems), I use senna. I find that nothing else works to give me relief. You can buy it in tea form (yogi, traditional medicinals and some other brands sell it) or in pill form at the drugstore. For me it takes about 12-24 hours to work but when it works, it works.

I like it because it's a natural laxative. None of the chemical laxative stuff works for me.

I hope you feel better soon!

Claire

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast.
    2. Scott Adams
      - Scott Adams replied to Russ H's topic in Publications & Publicity
      1

      Coeliac UK Research Conference 2025

      Thanks for sharing this!
    3. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared....
    4. trents
      - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Blood tests low iGA 4 years later digestive issues

      Keep us posted.
    5. Scott Adams
      0

      Celiac.com Video News: November 2025

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,399
    • Most Online (within 30 mins)
      7,748
    Hoyt Marquis
    Newest Member
    Hoyt Marquis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.