Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Funny You Don't Look Sick?

Nor-TX

By Nor-TX
in Coping with Celiac Disease

Recommended Posts

Nor-TX Enthusiast
Nor-TX
Posted

Met some friends for dinner at Chili's last night. Two I work with and 1 I hadn't seen in 3 years. I try to keep my medical issues low key because no one is interested in my Colitis, Remicade issues, upcoming knee surgery, GERD, and all my other stuff. So when asked how my health was, I answered, "Not great, but I am dealing with things day by day." One of the friends I work with said, "Didn't you have your chemo on Friday?" I said, "Yes I did." Then she said "Funny you don't look sick?"

No one knows or understands. When they brought the bowl of chips and salsa and I didn't take any, the three "friends" chided me for not eating them. I told them this isn't a diet that you can cheat on like a calorie counting diet, but if I eat the chips and salsa, I will get sick. Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

Wanna hear the saddest thing? One has a husband who has Diabetes, one's husband died within a week of finding out he had cancer, and one is a nurse. All of them are well into their 50s....

So much for dining out with unsympathetic "friends".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

kareng Grand Master
kareng
Posted

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

No. Actually, I live in Kansas City. My BIL/SIL live in Plano. He is starting a "healthy fast casual" restuarant in Plano. Looking into the gluten-free certification for restuarants. Should open in December. I'll let everyone know when it does.

I really like PF Changs. I feel safe eating there. One of the owners has a daughter (?) with Celiac.

ohsotired Enthusiast
ohsotired
Posted

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

Nor_TX I'm sorry your coworkers are so insensitive!

I DO live in north Dallas, so if you ever want to go grab lunch or something, just holler.

I don't participate on the boards here much anymore but I do still lurk.

Kareng - please do let us know about the new restaurant! I would frequent it for sure!

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.

ohsotired Enthusiast
ohsotired
Posted

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.

Actually, I have never been to a PF Chang's either! LOL Been dying to try it, but the hubby isn't fond of the place, so I've never been.

We should go!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Katie B Apprentice
Katie B
Posted

Time to get new friends! That reaction is appalling.

cassP Contributor
cassP
Posted

im sorry you're having to do chemo :( i hope u feel & get better SOON.

ya, look for PF changs- they've got a fairly sized gluten free menu :)

kareng Grand Master
kareng
Posted

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.

They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.

kayo Explorer
kayo
Posted

If I lived in Texas I'd meet you for lunch too! No chiding, teasing or guilt trips!

We have a lot in common, I have arthritis and colitis too. I was on methotrexate (chemo) for years and the side effects were awful. So glad they came out with new meds. How do you like the Remicade?

ohsotired Enthusiast
ohsotired
Posted

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.

They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.

I hope not too! Please let them know that if they need any help, I would be willing - whether it be just ideas or actual labor in getting the place set up!

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

Me too... my husband is pretty handy. Mmmmmm gluten free pizza restaurant... is it too early to put in my order?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jay Heying
      - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    2. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    3. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    5. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748
    Nicole King
    Newest Member
    Nicole King
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jay Heying
      Celiac friendly probiotics

      By Jay Heying · Posted

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.