Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms Gluten Sensitivity?


bellysbetter

Recommended Posts

bellysbetter Newbie

I have had the following symptoms since I was 10 and they got worse over the last 3 years. I am now 39.

Bloating

Gas

Burping

Belly feels inflamed after an attack of the above

Painful constipation (never the runs)

Tiredness, sometimes debilitating

Foggy brain

Memory problems

Concentration problems

Irritability

I have been tested for celiac during tests to eliminate things. It came back clear. They diagnosed me with IBS in the end.

During self-experiments I have found I get the "IBS" on eating gluten, dairy and corn. The doctors and specialists were not very helpful so I have self-diagnosed myself as Non-celiac gluten sensitive. By cutting out all these things the IBS symptoms have gone. Can someone who has gluten sensitivity please tell me if that is what they had, these kind of symptoms and if they are also sensitive to dairy/corn. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bellysbetter Newbie

Oh I forgot to add depression and trouble getting off to sleep and waking a lot.

cassP Contributor

yes, ive had all those symptoms and more. i got the "C" more than the "D".

i think you're right on target- self diagnosing yourself as gluten intolerant & identifying gluten, corn, and dairy (which many of us also have issues with).

i think those with ONLY an intolerance to gluten may be in the minority, and im very very very jealous of them :(

those tests are so inconclusive sometimes, and the doctors rarely investigate them- you should get a copy of your results for yourself- you may learn even more about your body.

and stick to your guns & your diet- your body knows best. and of course check up with your doc for any other tests (vitamin levels, iron, etc, thyroid)... routine endos & colonoscopies... you're going to feel A LOT better :)

wheeleezdryver Community Regular

i have every one of those symptoms, except the problem getting to sleep. i am also self- dx'd gluten (if not celiac)& dairy intolerant, and am currently trying to figure out other intolerances (including corn & fructans). Most of my symptoms only started in the last couple of years, and I'm 34. so you're not alone in this!

bellysbetter Newbie

Oh thank you both of you. Other symptoms I forgot to mention was sensitivity to noise and sensitity to perfume, air freshners, bleaches - it feels like it gets down my throat that's all. I am fine with non-aerosol ones. Since giving up the gluten all this has returned to normal levels of tolerance, my old levels.

  • 1 month later...
George Knighton Apprentice

I would like to know as well. I have some of those symptoms.

hkgir1 Newbie

Have you tried going for an IgG test yet? I do not have celiac but I do have an gluten intolerance. I went for test after test for gluten allergy but nothing showed up. Only after I went for an IgG test did I finally find my diagnoses


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
Philadelphia Newbie

I am self-diagnosed NCGS. After 10 years of stomach difficulties, it seems to be the only thing that has worked. I definitely have less IBS-D and IBS-C (almost zero), and feel noticeably less exhausted all the time. And this is just after 2 months of gluten free living.

I am lactose intolerant, and wonder if oddly I have a slight allergy to some nuts as well? I know that people with gluten problems are rarely confined to one irritant. I hope I don't have a problem with corn, as I'm a huge fan of everything corn-based.

Corn and rice seem safe for me so far.

etta694 Explorer

Yes, that could be my post (what you said there..). and I would add 'feels like I'm dieing'. I am also self diagnosed because all the tests came back normal except that I have not had blood work because there isn't enough money on this planet to make me eat gluten again for a diagnosis.

As a note here... I find that, because I am of the C variety, when I get glutened, it seems to stay in my system longer and I feel like 'death warmed over' :( until it goes through, last time 3 weeks (unless I was accidentally getting glutened elsewhere). Thankfully, it has only happened once since going gluten-free.

OasisFlyer Newbie

This will be my first post after reading over this site for a few days. I felt compelled to reply since my symptoms are very similar to those listed by bellysbetter. I am going to my allergist tomorrow to ask about getting tested, but I am already suspecting that I have some type of intolerance to gluten and am going on the gluten free diet no matter what the test results say!!! I can only hope for some minor recovery, since my main symptoms are extreme fatigue and headaches, which are both debilitating when in combination with each other! This is by no means all the symptoms I have, but this is not the place for me to launch into all that. I do not look forward to what lies ahead with all the other sensitivities that could come along with this!

sickly Newbie

I have had the following symptoms since I was 10 and they got worse over the last 3 years. I am now 39.

Bloating

Gas

Burping

Belly feels inflamed after an attack of the above

Painful constipation (never the runs)

Tiredness, sometimes debilitating

Foggy brain

Memory problems

Concentration problems

Irritability

I have been tested for celiac during tests to eliminate things. It came back clear. They diagnosed me with IBS in the end.

During self-experiments I have found I get the "IBS" on eating gluten, dairy and corn. The doctors and specialists were not very helpful so I have self-diagnosed myself as Non-celiac gluten sensitive. By cutting out all these things the IBS symptoms have gone. Can someone who has gluten sensitivity please tell me if that is what they had, these kind of symptoms and if they are also sensitive to dairy/corn. Thanks.

I guess you had to do alot of elimination on figuring this out. I have tried to avoid all things gluten and dairy. I have not heard about a corn allergy. So I am assuming corn chips, corn tortillas, etc. are out! I am try to figure things out myself. Very sick at this moment and very depressed!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.